u/RepulsiveCall624

Literal joke between my partner and I. Due to us only having one bathroom in our home, we share it. He tells me when he's going to take a while in the bathroom in case I should pee first as I pee frequently. He does this in a very silly a cute way sometimes and says "the poop man in coming" even if he's just washing his face or whatever.

Now, I have started doing the same thing. When I have to go pee and he's in the washroom showering or anything I announce something like "the pisstress is coming". It's a funny joke to cope with the fact that this condition sucks.

as another little bit, sometimes I call my IC my piss-ability to cope as a joke. It's a disability for many and incredibly disabililing for me so a little giggle feels good now and then.

My Dr was assuming I had rheumatoid arthritis and was the most likely thing according to his screening and my symtoms. I have made a few posts about my journey and I'm completely confused and upset with my results.

Rheumatoid factor: normal range <20

Anti-ccp: <8 where normal range is <16

ANA: normal range with titre of 1:80

All my blood tests were normal and negative for autoimmune or inflammation. Over the past year it's been normal and negative blood test and ultrasound after another. No, I don't want a positive test, I want answers and treatment to my hurting body. Why on earth do I feel like I've been hit by a bus, joint pain, brain fog, I don't have enough energy to do anything, headache and do I have all the debilitating symptoms when I'm "normal". I can't do anything without feeling the worst have ever felt.

This is the most supportive community I've had with my current physical state and I am sorry if it's not allowed. I'm young and don't know anyone going through what I'm going through. I don't have a rheumatologist and I don't know what to do because according to my tests, I'm as healthy as can be.

Does this sound like anyone else's story? I'm at such a loss... I dont know enough about chronic pain conditions to even know where to start again. I can ask for an x-ray of my bones as they hurt very much everywhere but is that a good place to go from here?

Thank you everyone here for all your kind words in my previous posts 🫶💕 you are the reason I am keeping going and you truly have been so helpful.

My test came back today from this morning and it told me that my Rheumatoid Factor is <20 kU/L and the normal range is <20 kU/L.

Where I'm confused is am I at the cusp of 20 kU/L or could it be 5 kU/L and they just didn't care to be specific? A lot of my tests come back "semi normal" like for example, I'm very low in WBC and it's abnormal read together but it's still considered normal because I'm literally on the lowest "normal" range of WBC.

Does anyone else have this experience? My entire body hurts and I'm exhausted on top of a million issues so I know there's something wrong. My anti-ccp and ana blood tests are coming back later this week. Thank you!!

RA is in my family, low grade fevers, crunchy joints, hurts, body so tired I can do nothing, Interstitial Cystitis, GI issues, etc. so many symptoms it's not worth listing them all.

I'm 23 F and been dealing with chronic pain and health issues for too long. I always knew RA was an option, but was too scared to test. I don't quite fit the criteria for Marfin Syndrome but I fit the criteria for RA. Im being sent for an ANA, Rheumatoid factor and Anti-ccp soon. I'll need to book it soon but I'm terrified. I don't want to learn about my health because I'm scared I won't be able to do the same things I love. I already and having trouble with my favourite things.

How do I cope? Is RA commonly something else? Should I hope I don't have RA in hopes it's something cureable? How do I deal with the anxiety of my chronic pain suddenly being something I wasn't prepared for.

I guess I need words of advice and support. I know nothing about this. All I know is my body, joints and bladder hurt. I can't open or hold things well and I feel so unwell. I'm tired and don't even have the energy to think about this being permanent.

I F23 Canada have posted a bit in the Interstitial Cystitis subreddit. I deal with basically all the symptoms of MCAS after eating certain foods, temperature changes, stress or anything lol. (hives, itchiness, bloating, GI issues, really exhausted, weakness in muscle, hypermobile, joints popping in and out, brain fog, urinary issues like burning in urethra and trouble holding as well as lots and lots of pelvic pain with nausea and sometimes a low grade fever) I have celiac and eczema from prior conditions as well.

How do I ask to be tested? Is there similar conditions I should rule out or test for? Does this sound like something else? I am waiting for a urologist referral and I am asking for an basic allergy test this Friday from my GP.

Thank you in advance!!

(F23 Canadian) It's been over a year. So far I have been fighting with the Canadian healthcare system and have not seen a single urologist due to the wait list but have seen a gyno to rule out endo. I can't see this gyno again.

I'm so tired!! I have all the fun symptoms associated with IC and my GP has suggested following a treatment plan of "acetaminophen when needed". He has suggested I take AZO and helped with quite a bit considering how debilitating this has been- however, he isn't a specialist and I haven't been diagnosed with anything relating to my bladder or pain issues.

Im in a lot of pain in my pelvic area. My bladder gets inflamed when I exercise or eat most food, there is tissue-like stuff in my pee. I pee probably a million times a day and it sometimes burns. I'm exhausted and weak. Even if I manage to sleep 8hrs, I can barely lift 20lbs. I get hives, extreme itchiness and some foods give me low grade sickness. (For example, I ate a bit of honeydew yesterday and my throat is itchy and hurts, I am exhausted to the level of almost passing out, I'm either too warm or too cold like a low grade fever, brain fog and my prior diagnosed eczema is flaring.) I can't explain it well but my joints are wonky. They pop in and out with minor movements like putting on a shirt and I know I am hypermobile. My symptoms flare with trigger foods, too warm or too cold, stress, tight clothes like jeans, dehydration. I have existing GI issues where I just throw up and in pain for a week with gluten (celiac) and my old GP said I most likely have IBS but never tested me for anything due to my bloating and nausea. I have eczema and have since I was a child.

The pain is really bad sometimes and I use my heat pad but sometimes I can barely get out of bed. I'm always in some discomfort and my body just feels overall unhealthy and I can't work due to it- my symptoms are currently unmanageable because I can't see a specialist. A lot of my symptoms are MCAS related I've found out and I ,truthfully, just want someone to tell me what's wrong with my body.

I'm once again asking my GP tomorrow for an allergy test panel. I can't eat strawberries and melons (and probably much more) without getting allergic reactions.

How do I ask for support from Drs when I've gotten nowhere in over a year?? I barely have the energy to get to appointments and it feels like every time I get on a wait list I magically get put on another and I get nowhere. I don't wanna be in pain any more:(

Please leave support or advice. I'm in Canada and still young. I don't have a lot of money and I don't want to struggle physically anymore. Thank you in advance <3