u/RevMaria99

June 30
Peace, Comfort and Joy
Chronic Pain Anonymous

“In this moment, I will remember that maintaining mental, emotional, and physical balance does take effort, but I am rewarded with greater serenity and joy.”

Even suffering #severemecfs, I can experience some serenity and joy.

I survive the loneliness. I am disabled and housebound. I have a roommate but he is either at work on 3rd shift or visiting his family and friends. I’m too sick to do hobbies. I’m even mute due to illness so can’t talk, no FaceTime, no Zoom. I watch tv most hours of my waking day.
Some days the loneliness cuts my heart, so I do every thing I can to withstand the loneliness and distract myself.
I text a few friends I made online from chronic illness groups. I ache to see a face, kind and warm but friends died years ago. Family do not believe or understand my illnesses. No one visits and anyway I am too sick for company. I don’t have opinions about how life should be. I make the best of this hard situation. I am not happy but I wasn’t before I got disabled.

I had double stress on mecfs awareness day. Not only did I create a few posts but I also had a court date over Zoom. I new I would suffer post exertional malaise but I am ravaged with sadness and loneliness. I usually love May 12 and it’s festival of posts in all the social media but this year losing a court case and my financial assets has ruined my Holy Day. I’m re-reading all the hopeful posts to lift myself out of this sadness. I know I can. I have done it countless times. I await the grace of hope and joy.

Help us celebrate awareness of myalgic encephalomyelitis/ chronic fatigue syndrome.