u/Sad-Swing2000

Anyone else experence aditional mobility disabilities besides just CP?

So I have spastic diplagia CP with coordination difficulties. I also have Ehlers-Danlos Syndrome hypermobile type, osteoarthritis in my lower back and hips and also fibromyalgia. I use a manual chair most of the time because I am terrified of falling and breaking something or dislocating something. I know that healing from those things can be very very difficult with the spasticity. I personally don't mind being in the chair because to be honest, I believe that wheelchairs are tools and if it makes a person feel safer/less exhausted to use one then why not? I keep getting pushback from therapists and family that I should "setle" for being in a chair and that I should just just get out of the chair and start walking. I feel like the more I explain my situation, the more they assume that I'm being lazy.Does anyone else experience multiple disabilities and feel shame for existing in a way that people don't understand or agree with?

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u/Sad-Swing2000 — 1 day ago

Muscle Relaxers

Does anyone else experience muscle relaxers like baclofen or Zanaflex not working for spasticity? I have spastic diplagia and ataxia for reference. I also have hEDS so subfluxation can happen sometimes just due to leg spasms.

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u/Sad-Swing2000 — 2 months ago

Anyone Else Triggered by Christian Music?

Ever since deconstructing I cannot listen to Christian music without feeling sad, anxious and angry all at once. The only artist I can even somewhat listen to is Audrey Assad because she has a beautiful voice. As a teen it was shoved down my throat to listen to Christian music and not "secular" music unless it was country, soft pop or oldies. But it had to be mostly Christian. And I don't know about you but Christian music back in the 90's/00's was even worse than it is today. but I still can't listen to it.

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u/Sad-Swing2000 — 2 months ago