My history - probably ALS
Female, 46, currently being evaluated, but I just want to hear if anyone has experienced something similar. This has been the hardest time of my life so far, and probably it will get worse. Here is my story, which I’m fairly sure will end with an ALS diagnosis.
In January 2026, I noticed a kind of numbness, first on the top of my ankle, and then a couple of days later the numbness spread down my arm and into my hand on the same side (left). Since then, things have only progressed and the symptoms have increased. Painful elbows, numbness that moves around a bit in my arms and legs (both sides), arms and legs that fall asleep easily, a burning sensation in the muscles and especially around my left shoulderblade. Not to mention muscle twitching everywhere, but mostly in my legs. Sometimes I get a kind of internal trembling, especially if I’ve been a bit active. It feels almost like when i haven’t eaten for many hours. Sometimes the numbness feels like it goes up into the left side of my face. I feel weakness and fatigue in my thighs and calves. My legs work, but it feels like they can’t keep going for very long and that I need to sit down. I also have muscle wasting on the inner side of both thighs (the quads?). I can see that some muscle mass has “disappeared” there. The thighs also ripple/shimmer when i tense them.
My mother was diagnosed in January 2026 after a year of evaluations (sporadic)😢