u/Sincerly_Char

Recently in July I was diagnosed with a syrinx.
Here’s a little background: a year in a half ago I was having left shoulder neck pain not super bad but would come and go but would have flare ups. I went to see a ortho provider we did an extra and he said that it would be a pinched nerve, but to do PT and start steroids and then if it was worse I could get an MRI. Well it got better and life got busier but I continued with my trigger point therapy and went about my way.

Fast forward back to July of this year. For about a week straight I was having left sided weakness that started to get worse, also left sided facial weakness and headaches to the point I would throw up and some eye twitching. I went to the hospital we did the work up and they diagnosis me with a syrinx. I got sent to a nearby hospital that same day to see neurosurgery and they said it was stable but was a decent size and wanted me to check back at the beginning of the year with another MRI to see if we need to consider surgery. In the meantime I have seen neurology. They said my case if weird because I’m only getting these flare ups on one side at a time and usually it’s a “cape like” effect. But I will be fine then one day my left arm feels numb and left sided neck pain and the next week it can switch to the other side. But more noticeably my brain fog is just BAD. Like I’m so forgetful and also my speech seems a little off sometimes. I’ll get my words mixed up or can’t remember. I’m not sure if anyone else has that symptom? Or if something else is going on.
But my MRI with contrast didn’t show any brain lesions and they said that I haven’t had a stroke or TIA. (I’m in my 30’s) but I haven’t had these symptoms till this started as well. And I’m also still learning so any information is helpful I’m feeling a little lost and a little down about how to manage this new diagnosis.

Recently in July I was diagnosed with a syrinx.
Here’s a little background: a year in a half ago I was having left shoulder neck pain not super bad but would come and go but would have flare ups. I went to see a ortho provider we did an extra and he said that it would be a pinched nerve, but to do PT and start steroids and then if it was worse I could get an MRI. Well it got better and life got busier but I continued with my trigger point therapy and went about my way.

Fast forward back to July of this year. For about a week straight I was having left sided weakness that started to get worse, also left sided facial weakness and headaches to the point I would throw up and some eye twitching. I went to the hospital we did the work up and they diagnosis me with a syrinx. I got sent to a nearby hospital that same day to see neurosurgery and they said it was stable but was a decent size and wanted me to check back at the beginning of the year with another MRI to see if we need to consider surgery. In the meantime I have seen neurology. They said my case if weird because I’m only getting these flare ups on one side at a time and usually it’s a “cape like” effect. But I will be fine then one day my left arm feels numb and left sided neck pain and the next week it can switch to the other side. But more noticeably my brain fog is just BAD. Like I’m so forgetful and also my speech seems a little off sometimes. I’ll get my words mixed up or can’t remember. I’m not sure if anyone else has that symptom? Or if something else is going on.
But my MRI with contrast didn’t show any brain lesions and they said that I haven’t had a stroke or TIA. (I’m in my 30’s) but I haven’t had these symptoms till this started as well. And I’m also still learning so any information is helpful I’m feeling a little lost and a little down about how to manage this new diagnosis.