u/Southern_Dig_4461

I’m about 3 months post-concussion and still struggling every day. My CT scans and brain MRI have been normal, but my symptoms have persisted and, in some ways, have gotten worse. I initially had a headache/pressure that lasted 6 weeks. I started getting better than did vestibular therapy and got new onset constant nausea, dizzy, and rock/sway vision the last 4 weeks. It’s been miserable.

My main symptoms are:

Constant nausea and dizziness - rocking on a boat, when focus object is swaying
Dry heaving at times
Eye pain and eye fatigue, especially with screens
Body tremors and shakiness
Balance problems and feeling pulled off-center walking
Neck pain and a pulsing/internal vibration feeling in the back of my head and neck
fatigue and weakness, just feel like I have the flu
Screen intolerances and it’s hard as I’m trying now to return to work and keep my job
wake up some nights with my heart pounding and feeling nauseous.

So far I’ve had:

Multiple ER visits - CT scans and a brain MRI (all normal)
Vestibular therapy (which made me much worse and set off nausea, dizziness was new symptoms.
Neuro-optometry evaluation and being prescribed prism glasses for eye alignment issues next week
ENT evaluation with suspected vestibular dysfunction, put on prednisone didn’t help
Upcoming neurology follow-up and additional testing

I’ve tried medications including Zofran, meclizine, prednisone, and amitriptyline with limited improvement. Zofran hasn’t really helped my nausea.

I’m trying to stay hopeful, but it’s been difficult because I feel sick almost every day and haven’t been able to return to normal work or activities.

Has anyone experienced persistent nausea, dizziness, eye pain, and neck symptoms this far into recovery? What ended up helping you the most, and how long did it take before you noticed meaningful improvement?

Edit: I was referred by urgent care (after ER) to ENT and was able to get in today. They confirmed no ear infection but told me I likely have vestibular neuritis. They are prescribing steroids to try to calm it down.
Has anyone had this happen during concussion recovery and after starting vestibular PT? The symptoms match and this is the sickest I’ve been as I was starting to recover from my concussion.

I never imagined I’d still be struggling this much two months after a concussion.
About two weeks ago, I felt like I was finally turning the corner. I was walking 2 miles, spending time with my kids, and thought I was getting close to returning to work.
Then I started vestibular therapy.
After my first two sessions, everything changed. My symptoms didn’t just flare for a day, they progressively worsened over the following week. I feel like I have a severe flu.

Now I’m dealing with:
Constant deep aching pain behind both eyes
Severe nausea
Dizziness and balance problems
Extreme fatigue and weakness
Brain fog
Feeling like I can barely get out of bed some days
I’ve ended up in the ER and urgent care, had another normal CT scan, a normal brain MRI before PT, and even been treated for a possible ear infection.

Despite all of that, I still feel awful.

The hardest part is that I genuinely thought I was almost through this. Going from feeling hopeful to feeling this sick has been mentally and physically exhausting.
Has anyone else experienced a major setback after starting vestibular therapy?

If so:
How long did the flare last?
Did you continue therapy or back off?
What ultimately helped you turn the corner?
Right now I’m waiting to see my concussion specialist, neurologist, and neuro-optometrist. I’m hoping to find some answers because this has been the toughest health challenge I’ve ever faced.

2 months post concussion was staring to feel better. I did 2 sessions of vestibular and eye therapy this week and have rapidly declined. Nausea, dizzy, eye pain, fatigue and weakness. Anyone else had this experience? Been almost a week and not getting better

I’m 8 weeks post concussion and dealing with bad eye pain and nausea. Pain is behind the eyes and it aches all the time making me nauseous. Anyone else dealing with this and what helped?

I started PT too which is likely contributing to feeling worse but it’s been bad for about a month