u/SpeedReader20

I have started my mind body journey for recovery from POTS and CFS over the last month or so and have gathered the following resource recommendations from this community and outside too. Can anyone tell me what’s the best spot to focus on in their opinion and which of these is worth spending money on? Or if anyone has personal experiences with any of these?

Curable app. I like it so far in my free trial due to the live sessions you can attend. But thoughts on continuing by buying the subscription?
FreeME
DNRS
primal trust
CFS health

Books-
* Unlearn Your Pain — Howard Schubiner
* The Mindbody Prescription — John Sarno
* The Way Out — Alan Gordon
* Breaking Free — Jan Rothney
* Back in Control — David Hanscom
* The Great Allowing — Sam Miller
* Tessa malcarne

I’ve been using curable recently and attending some of their live classes but a lot of the people and focus on that is on some pain, which I know I should substitute for CFs symptoms but was hoping to see if there are any groups, video classes, etc that are specific for CFS?

I would also be interested if there is like an accountability chat here in this sub to check in on helpful things (not stating problems repeatedly etc)

Thanks

Three years into my symptoms that started with iron vitamin B12 deficiency.
Diagnosed with dysautonomia a year and a half ago and CFS earlier this year

Let me preface by saying, I am definitely not looking to do any more unnecessary testing, or Go diagnosis hunting as I believe that has been super detrimental to my health.

What I would love to know if anyone had these similar symptoms, and if they have recovered, if yes, would they be willing to share what helped them.

Secondly, does this Group or anyone know of any weekly calls/groups that meet periodically virtually to discuss recovery and tips.

Symptoms include, but are not limited to

- Constant dizziness/light headedness, this is my biggest one, and what started my whole journey
- Orthostatic intolerance beyond 20 minutes or so at a time
- Horrible fatigue after physical activity, like walking
- Intermittent GI discomfort such as early fullness, nausea, bloating
- Muscles after exertion
- heat intolerance
- My newest and most bothersome - vision disturbances, like eyes having a hard time, adjusting to screens/lights / motion
- burning eyes
- Feeling hypoglycaemic, if I don’t eat every few hours, even if my blood sugar is normal
- muscle twitches
- brain fog

Thanks. I just want to focus on recovery and appreciate any insights. I recently joined a Support group for a virtual meeting, and the experience was quite negative with the overall tone being one of defeat. I refuse to accept that.

I have had dysautonomia for close to 3 yrs now but over the last 5 months the frequency with which I get cold/sore throat/flu like symptoms and the fatigue that comes along with it has increased.

I am always in contact with my pcp and did a regular bloodwork panel recently. Nothing too crazy except low vitamin D and high cholesterol both of which I’m working on.

Anyone else here notice that their body catches flu like illness quicker with dysautonomia?