u/Strange-Ride-214

I have tourettes and adhd and im sick of it

I have been diagnosed with tourettes since I was 8 years old but had tics before then. Was diagnosed later in life (at the age of 26) with adhd. Ive always knew I had adhd but my father was old and stubborn and didn't believe in it.

It seems like no matter what medication I try, one always tends to cancel out one another. For example, im on fluphenazine for my tourettes and it tends to lower dopamine but my Adderall which helps my executive dysfunction and motivation to do things increses dopamine. So it feels like theres never a good balance between the two.

Its either im rotting on the couch or in my bed all day or im having constant tics that I have no control over but have more motivation and energy to do things.

Ive tried multiple different medications for my tourettes In my lifetime. Fluphenazine, Haldol,Clonidine, Guanfacine, Pimozide, and more. The only adhd meds that work are stimulants for me.

And yes before you ask, I am depressed and this is about 90% of the reason why. I hate living like this, its miserable. I feelike I have two decisions currently, be im a zombie like state and not have tics, or be motivated and not be tired all of the time but have constant tics the entire time im awake.

Can anyone on here relate to this? Like has anyone figured out a solution to this?

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u/Strange-Ride-214 — 1 day ago

How long did it take you notice it was working?

I started out at 10mg and just upped it to 20mg per day and have been on this dose for like 4 days now.

I dont really notice anything, im not sure if I even notice any side effects either. But honestly im just hoping something will eventually work because ive tried almost every snri and ssri possible with no improvement.

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u/Strange-Ride-214 — 3 days ago

I am so tired and I dont know why

I have been so tired so many years now. Im only 29 years old and I feel like how I would imagine in my 60s would feel like.

Ive paid out of pocket for so many different blood tests to rule things out at this point and have found not one solution to my fatigue.

My iron levels are fine, b12 fine, vitamin d fine, am on trt because I had low testosterone, Estradiol is in check, thyroid is fine.

Ive not had a sleep study done because the only place that my insurance will cover is a POS and you can never get them to answer the phone to setup a sleep study. I called them for a straight month every day and they never would answer so I gave up.

I am straight uo miserable currently. I hate how I feel every day. It take the biggest effort for me to push myself to get out of bed each day. Im.sick of living like this. Also forgot to mention but every doctor near me is garbage that ive went to. They never find anything wrong and act like Im completely fine. And always say my bloodwork looks great. Even though I tell them im exhausted.

Ive tried increasing water intake, exercising more which just makes me feel even mpre tired. And ive tried almost every supplement in existence.

Nothing ive tried works. Im honestly so frustrated that Im almost about to give up. Ive been looking for a solution for around 3 and a half years now. I thought for sure trt would make me feel better but it didn't.

Im honestly have no hope currently with finding out whats wrong with me. If anyone has any advice for me or has dealt with something similar please just let me know.

I will take any advice i can get at this point. I have no idea of the next step to take to fix this.

Also I forgot to mention, I have adhd and Tourette's syndrome

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u/Strange-Ride-214 — 9 days ago

Doctor is worried about my test level being too high

Reference Range is between 250-827 ng/dL according to labcorp which imo is bullshit to begin with.

Just a couple of days ago I had blood test dome and my kidney function and total t were tested.

My kidney function came back perfect. Amd my total t was 836 ng/dL. Like why in the fuck is she worried about that when my kidney function is perfect. Egfr was 122.

I mean are doctors just that fucking dumb these days. I know 20 years ago the reference Range was completely different. Like what the hell is going on

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u/Strange-Ride-214 — 14 days ago

I for as long as it can remember havent been able to breathe out of nose very well. I would say I have about 50% tge breathing functionality out of my nose compared to a normal person. The only thing that helps temporarily is blowing my nose and within an hour I cant breathe very well again. I bought thing with a camera on the end of it to view inside my nose and no im not sticking it far up my nose lol. Just enough to see what going on in there.

Does the inside of my nose look inflamed? I'm not currently sick or anything. My guess is I have enlarged turbinates but honestly im not 100% sure.

u/Strange-Ride-214 — 21 days ago