r/Tourettes

I have both Echolalia and coprolalia and I got most of my tics from my brothers arguing or playing games together. It’s been a rough week for me my tics have been crazy.

Is there a specific process for doing so. I know barely anything about tourettes but ive seen clips of people ticcing and they jerk around quite a bit. Do you have to be restrained in any way so as not to get cut by the razor?

I have been diagnosed with tourettes since I was 8 years old but had tics before then. Was diagnosed later in life (at the age of 26) with adhd. Ive always knew I had adhd but my father was old and stubborn and didn't believe in it.

It seems like no matter what medication I try, one always tends to cancel out one another. For example, im on fluphenazine for my tourettes and it tends to lower dopamine but my Adderall which helps my executive dysfunction and motivation to do things increses dopamine. So it feels like theres never a good balance between the two.

Its either im rotting on the couch or in my bed all day or im having constant tics that I have no control over but have more motivation and energy to do things.

Ive tried multiple different medications for my tourettes In my lifetime. Fluphenazine, Haldol,Clonidine, Guanfacine, Pimozide, and more. The only adhd meds that work are stimulants for me.

And yes before you ask, I am depressed and this is about 90% of the reason why. I hate living like this, its miserable. I feelike I have two decisions currently, be im a zombie like state and not have tics, or be motivated and not be tired all of the time but have constant tics the entire time im awake.

Can anyone on here relate to this? Like has anyone figured out a solution to this?

For context I am a senior in high school and have been dealing with Tourette’s since I was 12. I’ve never really had my tics ramp up like this and it’s really starting to make me sore. I have no clue if it has to do with stress but it’s been progressively getting worse since about September. Below are a few questions I have:

1.)Do you guys have any suggestions or tips to make them kinda subside?

2.) Those of you who have been medicated, do you recommend it?

Thank you all for reading, any help is appreciated.

I experience tics even in my sleep. Sometimes they are so bad I will wake myself. My tics that wake me up are my jaw clicking (TMJ), shoulder shrugs, head/neck twisting, or I’ll be talking or whimpering. I have pretty bad restless legs too. But the twisting and clicking are what annoy me and it causes me pain. So much pain that I sleep in a travel pillow that snaps around my neck so I don’t tic it off. I find it really cosy and comfortable and it seems lessens my tics. I actually get really excited to wear my pillow for the night because it calms my tics down significantly.

Does anyone else have to do this? I feel like I look silly, but if it helps lessen my tics it’s not silly at all. If anyone else does this and the pillow helps I would love to know. Also if you have any pillow recommendations please let me know. I like my current pillow, but I would love to have one that is a little bit more snug for better support (soft fabric is a must).

My kid has lots of vocal tics that go through periods of happening every couple seconds. Lately these periods have been getting worse and more long-lasting, and my kid has recently developed coprolalia too. They power through their speaking, but it's so cluttered with near-constant throat noises and muttered swears I've started having an impossible time deciphering what they're saying and am always having to have them repeat themself more slowly. My kid is an extremely verbal fast talker and is understandably finding it very frustrating we can't do our usual verbal playing because I can't follow along with what they're saying. I feel terrible about it.

Are there tips or tricks they might be able to learn to speak more slowly and distinctly around their tics so that people listening can better understand what they're saying? Could working with a speech language pathologist help with that? Anything I might be able to do differently about my own listening to be able to better catch what they're saying? I'd appreciate any advice thank you.

Last year I had an English teacher with Tourette’s and I think I developed one of his. Is that possible?

So, im looking to become a paramedic which involves being able to drive and im unsure how my tics will react. On a bike (like pedal bike) my tics become worse. I was wondering if anyone’s tics act up on a bike but not in a car.

Hi! I have grabbed a lot of tics from people with tourettes online (content creators) and it makes me feel like if someone knew the person my tics came from, it makes me feel like I'm faking or something. Is it common for the majority of someone's tics to be tics you've heard? It just makes me feel like i got tics in the first place because of that person. Does this even make sense?

Thank you for any advice!

Is there a manual for this? I'm doing my best but, I've spent every day for the last couple of weeks ugly crying and doubting everything I do. Its the end of the school year and my wonderful kid is struggling so much. This year has been a mixed bag of support vs teachers who make every day hard for her. I truly know she's disruptive and most of the time when she gets a referral for it she's doing things that are more impulsive than actual tics, which we all know is still part of the package, but the school and specific teachers have a harder time with. She's had to sit out a lot of fun stuff, she's had a lot of ISS and detention.

I fight for her (she has an IEP) but sometimes even I'm confused on when to discipline and when to let it go. I'm doing my very best, but most situations I feel lost on how to handle. With my non-TS kid it was more clear cut - bad behavior = punishment, usually resulted in appropriate deterring of future bad behavior. With her its the wild wild west and I don't know what the rules are, or when I'm fighting too hard for her or when I'm not fighting hard enough, and I'm so tired. I'm an involved parent - I talk to her openly, I show up to volunteer for everything, I check in with her teachers - I know she's a good kid at the core, and that makes it easier for me to understand that these are more impulse-control issues rather than disciplinary problems, but the school always makes me feel like I'm coddling her too much or that these behaviors should be disciplined and then I doubt myself. When they call and say oh she made noises or loud comments it's an easy fight from me, but when it's behavioral stuff like throwing things or saying inappropriate things that are not part of her tics, it's harder for me to know how to react or how hard to bat for her about it. I mean I know she still has to practice impulse control, but I don't know how to encourage that outside of discipline, which seems only to make her depressed and angry and make her issues worse.

I guess I'm looking for both perspectives: parents who've been through it, and people with Tourette's who have been there. What helped? What didn't help? What do you wish your parents understood more? What do you wish your school did differently? Help a mom who loves her kid more than life do better by her.

Just an interesting question that I’ve been asked before and recently came up again. Do you tic in your dreams? Not “do you tic while you sleep”, but as the dream version of you that you may (or may not) see when you sleep.

Someone asked me this a couple of years ago and I had never really thought about it or paid attention before; since then I’ve noticed it a couple of times.

My tics are generally mild so I often don’t realize I’m ticcing, which is why when I dream, that version of me doesn’t often tic; if I do, it’s not noticeable. But, recently I had some very deep sleep with intense and vivid dreams, and woke up and realized that I had some severe tics in that dream, which reminded me of this question.

If you have never noticed it before, try to think about it before you go to bed or try to remember how you were in your dreams. I just think it’s an interesting question and really weird the way our brains work.

So… Do you tic in your dreams?

My son has always had anxiety on and off. Some tics on and off and some ocd traits. His tics seem to be more prevalent lately. A mouth breathing tic and at the same time his anxiety has been through the roof.
Please tell me whether anxiety drives an increase in tics. Have you used meditation to address anxiety and it has helped with reducing tics? What meds have worked? We provide lots of support in our household and he knows it’s a safe place. Just want to provide all the support I can. He is almost 9 and 1/2 years old and I already see puberty signs.

Thank you in advance.

I thought it was impossible, what the fuck is happening to me? What do i even do? It's a developmental thing right? So why the fuck do i scream "HEY" and "FUCK YOU" and grunt n shit all the time even though I don't want to? What the fuck???

Does anyone else experience being able to suppress from extended periods of time? I dont have tics daily and sometimes I get stuck in the habit of suppressing. I learnt at an early age that I could "ignore the tingle" so I wouldn't "bend over" it was my first tic and I would get in trouble for it. After I learnt about tics I stopped ignoring it henceforth, tics, they were really bad for a year, now I have gotten to the point i have been fake claimed so much, I now feel guilty for having tics so now I suppress for weeks, sometimes months. I dread stopping because I know they'll be bad. I dont want to stop but I think its starting to affect me more because im now having frequent absent seizures. I just wanted to know if anyone else experienced this but it sort of turned into a vent, sorry about that.

I know it's not good for me I just want to know if anyone else can relate

I am a 14 year old who has tics and I got conscious of it when I was 5 when I couldn't stop blinking rapidly, I really need help as it has been bothering my studies, I tried to talk it to my parents earlier in my life and they always noticed I did those "weird" things like how I couldn't stop jerking my head and stuff like that, and all they said was... "it's just mannerisms it will go away" they kept using that excuse for years. Not wanting me to go to a Psychiatrist/Neurologist, i knew they are afraid. They are afraid that their normal child has problems. Every day my health keeps deteriorating, no matter how much I try to control my tics they just seem make it worse. I also cant stop chewing anything and doing stuff like "I have to do that or something will go wrong" for example whenever i sing i will get bad luck, its like stuck inside my mind that doing that specific task will trigger something. My parents won't help me, people keep pointing it out and make fun of me, I can't focus on school and I'm scared of my future.

not only parents though, my whole family wont take it seriously. I talked my problems with my aunt who also had mental problems but ironically she said the same thing, mannerisms.

I was too young to remember properly, but apparently my tics started up when I went on ADHD meds back when I was only five or six. They never really went away and got worse when I was anxious.

I'm still waiting to get back onto ADHD meds, I haven't been on them for a long time, so I dont know how they'll affect me now, but I have noticed that other stimulants like coke makes my tics much worse.

For example, even though I'm comfortable and in a setting my tics would usually be calm and unnoticeable, i would tick anyway after doing some, and they would be brutal tick attacks that ended with me getting a killer headache, and I woke up the next morning with full body aches from the intensity of the ticks, but coke doesnt hype me up like most people, it makes me sleepy and slow, so I don't see how it's stimulating my tics but not stimulating that hyper "get up and go" energy that people seem to get on it.

The severity of the tic attacks make me really nervous to get back on adhd medication, but I am finally in the process of maybe getting some type of medication or something for my tics from my doctor so we'll see how thats gonna go.

But yeah. Just something I've noticed, at least, has any research been done on this type of thing? I'd assume so but I wouldn't even know what to write in the search bar for it. And I'd love to know the Why's and stuff, but you'll have to ELI5 because that stuff confuses me.

hey everyone

I’ve posted here before about my medication that worked for me if you guys remember.

so I started a YouTube channel playing scary games because I get scared easily with hope I could get monetization one day to recoup some of the money I pay for medication.

but my YouTube is actually getting quite large fast - but there’s something weird happenijt

there are a lot of nasty comments from people saying I don’t have Tourette’s. I’m using it as a crutch even tho I don’t have it? . I’m lying about it. etc etc. it doesn’t make any sense.

ive decided I’m literally not able to use the platform to raise awareness about the condition in the way I initially wanted to, because of how intense the hatred is.

I wanted people to see the brutality of living with severe TS. I guess I should not have been suprised by this.

i figured just not reading comments on videos or shorts, not reading chats during livestreams and not posting specifically about my Tourette’s is going to be the best bet.

I never thought someone would be that dumb they’d act jealous over a disorder that creates such havoc I’ve had zero quality of life and almost offed myself last year until I found the experimental medication I’m on. but I guess idiots are everywhere.

does anyone have any advice on how to handle this going forward

thank you

Do you feel the need to say the curse word before you say it? My daughter has Tourette’s but I think she now has coprolalia, but she told me she feels she needs to say it and then will go to her room or somewhere and say it. (I have told her since then that going to her room isn’t necessary). She said she thinks it’s her tics making her do it.

I have two questions.

So this is confusing. I have suspected tourette’s. I’ve talked to doctors about it and the only thing stopping me from getting the diagnosis is a med that has an incredibly rare side effect of tics. It’s been observed before i started the med. But that’s not the point. I have tics. Whether they‘re caused by medicine or not they, suck. Is it okay for me to be on this subreddit? Doctors agree about me meeting all the qualifications for the diagnosis, but won’t give it to me on the off chance its not.

Second question: Can i fake my real tics to get things. My biggest tic is jerking my neck to the side repeatedl. It typically happens in groups (like five or six in a row, then rest for a minute). Sometimes I can have a good day where it’s happening a couple times an hour max. If i’m at an airport and not actively tickin, can i fake my tics to, for example preboard if they won’t let me?