u/Street-Jelly-9742

Good morning everyone, I really just need to let this out because I’m beyond frustrated and overwhelmed with my body…more specifically, how my body is working…or not working.

History:
40F I’ve had chronic pancreatitis since 2014. In 2021 I had a TPAIT surgery (total pancreatectomy with islet cell transplant). They removed my entire pancreas, spleen, a portion of my intestines and stomach. The islet cell transplant didn’t take, so I’m now insulin dependent with brittle diabetes. Anyway, I’ve come to terms with forever being a diabetic…I suppose it’s a bit of a trade off for the pancreatitis. I still experience the same pain and symptoms after pancreas removal which blows my mind but the doctors tell me it’s like having an arm or leg removed..they call it “fantom pain syndrome”. My chronic pancreatitis is due to the CFTR mutation.

Vent:So I’m 5 years post pancreas removal, and my body has been struggling hard core with all sorts of chronic problems but what I need to vent about is how my body reacts with physical activity/stress/anxiety/seasonal/environment. I have a major problem with excessive sweating and it’s like my body no longer can regulate my core body temperature any more. Not only is it embarrassing to be soaking wet, dripping with sweat any time it’s hot or I exert myself in literally anything. Doing chores around the house? Sweaty. Running errands? Yep. Gotta walk outside in August to get into my car? Absolutely drenched. Let’s not forget to mention when my blood sugar is high or low…I look like I just got a bucket of water tossed on my head. I really really hate this and I have no clue how to deal with it anymore. Along with the sweating, I also get super overheated, but if I’m in the AC I have to wear a hoodie and cover up with a blanket.

I take cold showers and I keep a mini fan in my purse. I’ve been to the doctors a lot over the years and my lab work is always “normal”. I just need a doctor who will listen to me and take me seriously. It’s not just being hot or sweating outside in the heat. It’s literally ruining my life and I’m so tired of feeling like this.

TL;DR: Overheating and excessive sweating after pancreas removal, CFTR mutation, Insulin deficiency, possibly perimenopause related.

Good morning everyone, I really just need to let this out because I’m beyond frustrated and overwhelmed with my body…more specifically, how my body is working…or not working.

History:
40F I’ve had chronic pancreatitis since 2014. In 2021 I had a TPAIT surgery (total pancreatectomy with islet cell transplant). They removed my entire pancreas, spleen, a portion of my intestines and stomach. The islet cell transplant didn’t take, so I’m now insulin dependent with brittle diabetes. Anyway, I’ve come to terms with forever being a diabetic…I suppose it’s a bit of a trade off for the pancreatitis. I still experience the same pain and symptoms after pancreas removal which blows my mind but the doctors tell me it’s like having an arm or leg removed..they call it “fantom pain syndrome”. My chronic pancreatitis is due to the CFTR mutation.

Vent:So I’m 5 years post pancreas removal, and my body has been struggling hard core with all sorts of chronic problems but what I need to vent about is how my body reacts with physical activity/stress/anxiety/seasonal/environment. I have a major problem with excessive sweating and it’s like my body no longer can regulate my core body temperature any more. Not only is it embarrassing to be soaking wet, dripping with sweat any time it’s hot or I exert myself in literally anything. Doing chores around the house? Sweaty. Running errands? Yep. Gotta walk outside in August to get into my car? Absolutely drenched. Let’s not forget to mention when my blood sugar is high or low…I look like I just got a bucket of water tossed on my head. I really really hate this and I have no clue how to deal with it anymore. Along with the sweating, I also get super overheated, but if I’m in the AC I have to wear a hoodie and cover up with a blanket.

I take cold showers and I keep a mini fan in my purse. I’ve been to the doctors a lot over the years and my lab work is always “normal”. I just need a doctor who will listen to me and take me seriously. It’s not just being hot or sweating outside in the heat. It’s literally ruining my life and I’m so tired of feeling like this.

TL;DR: Overheating and excessive sweating after pancreas removal, CFTR mutation, Insulin deficiency, possibly perimenopause related.

Good morning everyone, I really just need to let this out because I’m beyond frustrated and overwhelmed with my body…more specifically, how my body is working…or not working.

History:
40F I’ve had chronic pancreatitis since 2014. In 2021 I had a TPAIT surgery (total pancreatectomy with islet cell transplant). They removed my entire pancreas, spleen, a portion of my intestines and stomach. The islet cell transplant didn’t take, so I’m now insulin dependent with brittle diabetes. Anyway, I’ve come to terms with forever being a diabetic…I suppose it’s a bit of a trade off for the pancreatitis. I still experience the same pain and symptoms after pancreas removal which blows my mind but the doctors tell me it’s like having an arm or leg removed..they call it “fantom pain syndrome”. My chronic pancreatitis is due to the CFTR mutation.

Vent:So I’m 5 years post pancreas removal, and my body has been struggling hard core with all sorts of chronic problems but what I need to vent about is how my body reacts with physical activity/stress/anxiety/seasonal/environment. I have a major problem with excessive sweating and it’s like my body no longer can regulate my core body temperature any more. Not only is it embarrassing to be soaking wet, dripping with sweat any time it’s hot or I exert myself in literally anything. Doing chores around the house? Sweaty. Running errands? Yep. Gotta walk outside in August to get into my car? Absolutely drenched. Let’s not forget to mention when my blood sugar is high or low…I look like I just got a bucket of water tossed on my head. I really really hate this and I have no clue how to deal with it anymore. Along with the sweating, I also get super overheated, but if I’m in the AC I have to wear a hoodie and cover up with a blanket.

I take cold showers and I keep a mini fan in my purse. I’ve been to the doctors a lot over the years and my lab work is always “normal”. I just need a doctor who will listen to me and take me seriously. It’s not just being hot or sweating outside in the heat. It’s literally ruining my life and I’m so tired of feeling like this.

TL;DR: Overheating and excessive sweating after pancreas removal, CFTR mutation, Insulin deficiency, possibly perimenopause related.