Neurocardiogenic Syncope with mixed response - new diagnosis
so I’ll try to make a long story short. I (31f) started having “migraines” when I was 5. along with fatigue and heat intolerance. I say migraine in quotes because several neurologists said they weren’t neurological and standard treatments never work, but it’s all the proper symptoms minus aura. then steadily developing IBS over the years, then after college the afternoon crashes became unbearable. so much so that I was tested for narcolepsy (negative) and eventually given ADHD meds just to stay awake. failed those for high heart rate. Also failed beta blockers in college because it exacerbated the fatigue And headaches. now I constantly wake up with headaches/migraines in the mornings and middle of the night. my afternoon crashes are so consistent and scary. My bp crashes during migraine events. my bp typically starts around 100/65 in the morning and goes down from there. some evenings, on a normal day, I end up as low as 82/56. just failed a tilt table spectacularly at around 15 minutes and they called it NCS with a mixed response (bp and hr drop).
my issue is - I wake up like this after being horizontal all night and it happens on a cycle every day, even if I’m sitting a lot and have an increased salt intake. I feel like NCS isn’t the whole picture. has anybody else seen symptom improvements from big universal symptoms like that simply from treating NCS?