u/StructureTerrible990

Neurocardiogenic Syncope with mixed response - new diagnosis

so I’ll try to make a long story short. I (31f) started having “migraines” when I was 5. along with fatigue and heat intolerance. I say migraine in quotes because several neurologists said they weren’t neurological and standard treatments never work, but it’s all the proper symptoms minus aura. then steadily developing IBS over the years, then after college the afternoon crashes became unbearable. so much so that I was tested for narcolepsy (negative) and eventually given ADHD meds just to stay awake. failed those for high heart rate. Also failed beta blockers in college because it exacerbated the fatigue And headaches. now I constantly wake up with headaches/migraines in the mornings and middle of the night. my afternoon crashes are so consistent and scary. My bp crashes during migraine events. my bp typically starts around 100/65 in the morning and goes down from there. some evenings, on a normal day, I end up as low as 82/56. just failed a tilt table spectacularly at around 15 minutes and they called it NCS with a mixed response (bp and hr drop).

my issue is - I wake up like this after being horizontal all night and it happens on a cycle every day, even if I’m sitting a lot and have an increased salt intake. I feel like NCS isn’t the whole picture. has anybody else seen symptom improvements from big universal symptoms like that simply from treating NCS?

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u/StructureTerrible990 — 13 days ago

Neurocardiogenic Syncope with mixed response - new diagnosis

so I’ll try to make a long story short. I (31f) started having “migraines” when I was 5. along with fatigue and heat intolerance. I say migraine in quotes because several neurologists said they weren’t neurological and standard treatments never work, but it’s all the proper symptoms minus aura. then steadily developing IBS over the years, then after college the afternoon crashes became unbearable. so much so that I was tested for narcolepsy (negative) and eventually given ADHD meds just to stay awake. failed those for high heart rate. Also failed beta blockers in college because it exacerbated the fatigue And headaches. now I constantly wake up with headaches/migraines in the mornings and middle of the night. my afternoon crashes are so consistent and scary. My bp crashes during migraine events. my bp typically starts around 100/65 in the morning and goes down from there. some evenings, on a normal day, I end up as low as 82/56. just failed a tilt table spectacularly at around 15 minutes and they called it NCS with a mixed response (bp and hr drop).

my issue is - I wake up like this after being horizontal all night and it happens on a cycle every day, even if I’m sitting a lot. I feel like NCS isn’t the whole picture. has anybody else seen symptom improvements from big universal symptoms like that simply from treating NCS?

reddit.com
u/StructureTerrible990 — 14 days ago

Disc golf near five forks

asking for my husband. Are there any disc golf courses near Five Forks? he’s got some buddies in that area, but they can’t find anything on Google so they just keep going to the same 3 spots.

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u/StructureTerrible990 — 28 days ago

Endocrinologist recommendations

Looking for recommendations for an endocrinologist, specifically someone who is knowledgeable about cortisol/adrenal insufficiency. A friend mentioned trying for someone in the Spartanburg Regional system rather than Prisma for better wait times, so anyone outside the Prisma system with that experience would be great.

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u/StructureTerrible990 — 1 month ago

just as the title says. there’s a deceased gray and white cat on Kimbrell Road near Kimbrell Oaks apartments. looks like a male, but I can’t be totally sure. I didn’t see anything that matched it on Pawboost. probably a stray, but figure it never hurts to post.

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u/StructureTerrible990 — 2 months ago

here’s a super specific one for you! I have a hankering for some home made egg rolls, but we have had to cut out wheat/gluten since I last made them. I tried to search all the grocery store apps and DoorDash and all that, but only came up with gf spring roll wraps which I think will be too thin for how we do it. I found some online, but trying to avoid that if possible. so, is there any spot you know of locally that sells gf egg roll wrappers?

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u/StructureTerrible990 — 2 months ago