Ever since I got hyperqcusis, got more hypervigilant and anxious, my sleep has been off.

Right when I sleep, and only when I sleep, I’d get mind pops(Random words that were said throughout the day, birds, beeps) and split screens(awake brain and asleep brain happening at the same time)

Ai says it’s because hyperacusis makes us hypervigilant so the brain is stuck on fight or flight which takes a lot cognitive load so we’re extra exhausted at night. Also because it’s so quiet, our auditory system takes random phantom sounds because it doesn’t have much sound/input to take in.

Anyway, anyone else experience this? If so, does it subside over time as the anxiety is regulated and hyperacusis gradually recovers?

Or do I need to see a sleep dr. I hear it’s normal. But it’s only been 2 weeks. I don’t want it to get worse if anything.

Curious if any of you have moved since being diagnosed? Has it helped? Would it make a difference? Where would be a good area?

I’m supposed to get an MRI on Friday to rule out acoustic neuroma.

I already got a cat scan at the ER and results came back ok. I was told by someone with acoustic neuroma that cat scan could’ve shown the results already and that I might not even need to do an mri…
But the doctor suggested to get an MRI as it is gold standard

It’s my first time getting an mri and I recently had sudden sensorial hearing loss and still in the middle of healing/recovery of the injury…

But they said the sounds in the machine can go up to 100db…

Is it even safe for someone with hearing loss to undergo this kind of procedure? I know they give ear plugs but is that even enough?

Any suggestions on what I could do in order to have a safe experience?

Im currently suffering from anxiety and depression due to hearing loss

On August 23, I suffered from sudden left side mild to moderate hearing loss sloping 25db at 4000 to 45db at 8000

Since then, I had taken prednisone and intratympanic steroid injection

Since the shots, I started suffering from tinnitus, hypercausis, and panic attacks

As well as facial numbness, off balance, waves of confusion, brain fog

Because of this, I’m now struggling with anxiety and depression

The ENT recommended I get an MRI to rule out acoustic neuroma

Aside from that, my hearing remained the same. The doctor said it’s “unlikely to change” and claimed the sound sensitivity and tinnitus will lessen over time

However, I tried to desentesize myself and quickly learned about noise bandwidths and setbacks

I also learned about the different kinds of hypercausis and have a strong feeling that I have pain hypercausis / noxacusis, after my hearing got more sensitive to sound after attempting to desentize

Toilets, faucets, and showers were once painful and became tolerable after a month of quiet. Then outside sounds became tolerable. But then after spending the day outside and hearing the screeches of my 1 year old nephew, now TVs and phones started to hurt and I’m back to square one.

Ive read about a few strategies that people have tried to cure/heal their hypercausis:

(many from success stories, some from ongoing healing journey)
- desensitize through podcasts during sleep (even if barely audible)
- 8 hour pink noise everyday for 12 months (only saw improvement after 6 months)
- managing their mental health through vitamins (omega 3, vitamin d, b12, fish oil, CoQ10), exercise, breath work exercise, mediation
- CBT therapy
- hypercausis therapy
- avoiding earplugs unless it’s loud (construction, babies, car traffic, restaurant, bars, concerts, anything over 60db)
- avoiding setbacks
- doing everything with BABY steps, gradually and slowly over time (20-30 exposure min a day)
- learn to not fear the sounds, fight through mild discomforts. But avoid if things feel too sharp and make you feel tense
- Carbamazepine or clomiparine - but I read that the side effects tend to cause self harm and suicidal thoughts. Which would be a struggle since I already struggle with depression. Or is there a way to counter this?

Any advice, experience, strategies, healing journey stories, success stories, process and attempts to cure would help so greatly.

Hi everyone! I’m working in art/advertising and would love to build a little community of fellow creative professionals in Sunnyside, especially people in their 26-36ish (all ages? still gathering data on who might generally be interested) looking to build more of a local creative community.

I feel like so many of us are working from home or scattered across the city, and it’d be nice to have a creative circle right in the neighborhood. Thinking casual monthly meetups for coffee/drinks, sharing what we’re working on, exchanging ideas, and maybe even finding people to collaborate on projects with.

Designers, photographers, writers, artists, producers, filmmakers, stylists, creative directors, etc. all welcome :) Mostly just looking to meet creative people nearby and see what comes out of it.

Comment or DM me if you’d be interested and I can start a group! Open to suggestions as well!