u/Thats_A_Arti

Anyone else's memory getting worse as time gets further from your original head injury?

I'm 2 1/2 years post concussion syndrome and I find myself setting something down and not knowing what I'm looking for within seconds or walk away a minute to come back confused how something got there when someone clearly seen me put it there I struggle to believe them.

It seems like these occurrences are becoming more frequent.

My mom's side does have a heavy history of dementia/alzheimers so unsure if this makes things worse or not.

Anyone else eat more yet still losing weight since their head injury?

Anyone else feel so deeply it hurts? Like it physically and mentally hurts. I'm not just talking just sad things I'm talking even the good.

It's overwhelming on the nervous system.

https://preview.redd.it/2z20h8prrmah1.png?width=1222&format=png&auto=webp&s=5ff7feb2670fb39ef1488164dd09ca470a1ed9d6

Lod issue or just the material? I feel like if I can see arm hair clearly that would imply it's not an lod?

I'd like to keep the replies to people who've had or have a concussion.

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You can post a realization if you'd like or just talk about the symptom that effected you the most amd vice versa.

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For me I think the realization I had is time doesn't stop so we can heal. We lose a lot of precious time to just try to get better that we will never get back.

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But physical symptoms I'd say fatigue has robbed me the most aside the nerve injury pain.

Hey there has anyone experienced more tension in their relationships after their head injury?

Being so overstimulated almost all of the time has made it to where I feel like my patience isn't what it once was. Example: My mother has told me I'm more irritable after the head injury. Others have pointed out similar.

How has your head injury effected your relationships with others?

My Experience With a Head Injury in Analogies:

On my best days, I feel conscious to everything, like I'm normal. But I know I'm not well because I remember who I was so vividly, my struggles, yes, but most of all the peace I had with myself.

I feel lost, like I'm in a maze of mirrors with no way out. I find myself clawing at the walls. The walls are my former self, and I'm desperately holding onto that person in fear that I might lose them if I go any deeper into this abyss of my mind. Yet I can't quite get ahold of them to hold on.

I feel stuck, as though I entered a revolving door and keep going in circles, unsure how to get out. I can clearly feel the need to do so, but I keep passing up my original entrance, my former self. We cannot go back, and the other side is the exit to post-head-injury recovery.

I feel tired while awake, yet I feel awake when I sleep, even during my deepest REM. No, not the band. Although my brain has lulled itself off into an endless ocean blue, like I'm hearing beautiful singing, I think it's my destination. Here, it's just a siren, a disconnection due to the brain fog. Now I'm lost out here and have no idea where I'm from or where to go, for that matter.

We eat for energy, yet it's like food doesn't sustain me anymore. It's just there for show. I gain nothing from it aside from weight.

I'm like a broken alarm. I'm conflicted. My brain tells my body to panic to save itself, but at all the wrong times usually just false alarms in a normal persons life.

The fire department is there in the form of doctors to douse the flames, yet it feels like the flames are growing even when I know we've made progress together.

I'm terrified to go out after having so many random panic attacks from overstimulation, yet I can't wait to go out because I miss being able to do so without feeling off.

Even if I block out the stimulation to make things as bearable as possible, I panic. I don't have a single thing on my mind, and I am not overdoing it personally. My brain was just out partying all night and forgot it had responsibilities.

People tell me things, and I understand them, but I can't remember the purpose because I'm confused.

That is, I can't seem to remember the purpose of life.

I'm not living. I'm merely existing now, trying to feel okay.

But when you're like a calendar that requires rechargeable batteries and can't get energy from the outlet, time ceases to exist it's hard to keep track of the days. It feels much faster because I have no sense of it anymore. I just know the months are fleeting, and I'm missing out on my prime years. It should feel slower because I feel slower, yet somehow it doesn't.

Like a sloth on jet-powered roller skates, it doesn't make sense. My thinking is slow, but my body wants to go fast. It's a recipe for disaster.

The odd part is that even with the assistance of the skates, I still feel tired from walking, even if I'm going downhill. It doesn't matter if there is no resistance at all. The friction still wears down my bearings.

The only thing I can say with certainty is that time and health are never guaranteed.

But take heart in knowing you're okay, even when the doctors and even your own brain seem to be struggling to put out that fire that isn't actually visible to anyone but you, unless you make it visible.

Be proactive in your journey. Hold onto hope and never give up on trying to make every day a normal, mundane one.

Not that it has to be boring, but figuratively, a boring day is balance. And balance is good for everything especially when you're not stable due to the dizziness that is your new brain and the ever-shifting goalposts.

Yet I don't think they've shifted. My patience has.

My nerves scream for a timeout, but the ref is on a lunch break. Foul after foul. Chaos.

Don't let this merry-go-round fool you. It's going a lot slower than it feels. That's part of the problem. Perception.

But that's what happens to an injured brain. It slows down, and that's okay, but not for extended periods.

Do you know what's better than okay?

Getting off the ride.

Just don't jump too quickly, or you'll hurt more. Take it slow. Even though that's not what we want we want it now. Where we are, don't let it be where we stay.

The exit to recovery is calling us. It's probably best to just ride it out and be at peace while doing so, right?

Personally I know it's rough, but this is my concussion analogy story, the trials, tribulations, and quite frankly, confusing journey of navigating a head injury and PCS for the past two years.

If you feel like you relate, and I've been here long enough to know a lot of you do, which is ironically only a few days, it seems like forever.

But reassurance has made this feel like an AA group.

I felt so alone in my suffering, yet there are so many of us facing the same struggles, just in different variations. And just remember even if you don't have enough energy to care that day about yourself it's okay. I've learned from loved ones, doctors and even here in this Reddit forum that there are still people who care about our well being and that's a wonderful feeling that gives me hope not only for them, but me and even you.

Words. 🙃

Anyone else have PCS lasting beyond 2 years and what is your experience? Did you heal?

I'd like to start by saying I've been in cognitive therapy for months as well as physical therapy for weeks straight.

Some things I've personally experienced but not limited too is overstimulation of a few senses leading to panic attacks.

My visual processing is so slow now. I am well under half of what my age group average should be around in certain tests thus inducing strain, and as the doctor put it my brain just gives up due to overstimulation.

Constant fatigue no amount of sleep or food helps. I can't feel full anymore either. I always wonder if that's apart of needing extra energy to compensate so my body just allows me to eat endlessly if I want. But I eat a healthy plethora of foods, but it was something I noticed on days I eat a bit more than usual like Thanksgiving.

I get dizzy, memory, brain fog etc.

I don't feel like myself. I'm merely existing to feel better at this point. I long for my former self.

It's the most debilitating thing I've ever experienced. I'm doing what they want me to do to heal and I'm just hoping it helps eventually.

What's your experiences and did you ever get better or just staying the same? If so how?

Use this post to vent if you'd like I'll read them all.

Thanks for your time.

Hey all just been looking around to see if LSPDFR is stable and working or if they were still having to do workarounds to get it to run. I haven't played in a few years due to the constant updates breaking it. Thanks.