u/TheGriffin5

When I was diagnosed my hematologist mentioned that they are seeing ET in young people more often, has anyone heard similar or know why this might be?

I’m 21 and a trans woman (3 years hrt, 1 year post op), I’m really hurting right now with the news of this diagnosis, and the fear of it affecting my transition. Right now I’m just on baby aspirin, I saw almost immediately on this sub that I should seek out an MPN, what could they do for me and does anyone have advice for me.

I’m really scared. How do I keep going and live a normal life with this diagnosis?

I’m also now hyper aware of any pain in my legs or arms, worried they might be a clot, is this just the new normal and how do I know if not?

Any advice on how to return to a normal life I’d love. 😭

Edit: I really appreciate all of your insights, it’s nice to see that how I’m reeling with it doesn’t seem to be unique, and that all of you have hope and happiness while coping with this. While my life will look different from here, I’m glad I’m not alone.

I’ve been having issues with my computer for a while and some of which manifested as things like helldivers 2 hard crashes and refusal to close after I close the window. I updated my bios and the game runs so smoothly now I’ve never experienced helldivers so smooth before!

I have CPTSD with symptomatic ptsd, and I get scared by loud noises, quick movements or sudden flashes. I go to college and a couple times in classes with demonstrations, (most recent was a capacitor flash) things trigger my ptsd and I go in a panic attack. We have epilepsy warnings, nsfw warnings. I wish we had sudden event warnings. I find it discouraging that we haven’t come that far as a society yet.