u/TizzyBumblefluff

My feet are kind of a mess. Without support I can get around “okay”. With medium support (think Brooks adrenaline runners, warming up with stretches) it’s 50/50 whether I’m okay. With support like custom orthotics and taping, they both cause their own pain, it’s like my body doesn’t like the “correction”. Can rarely keep the tape on longer than 24 hours without burning neuropathy type pain.

I’m sure basically everyone here can commiserate with having just anatomically incorrect body parts. I’ve been doing small physio exercises focused on my feet/ankles, plus shockwave treatment. Resting and icing. My feet are pronating (flat) but also my physio said my big toe/2nd/3rd plus that medial part of my foot doesn’t make good contact when I step.

I’m now 41, overweight from meds plus crappy diet (thanks GI issues) and I’m getting to the point of that joints and nerves being mad at every minor inconvenience. I’m booked in for my next ketamine infusion next month for my general chronic pain but these dang feet are a pain. Am I just destined to not walk for exercise? Do I need to switch completely to something non weight bearing like swimming or reformer Pilates?

Appreciate any commiserations, advice, etc.

Edit to add: my left foot is the main problem. I’ve had two grade 2 and one grade 3 sprain of that ATFL, and the peroneal tendon seems to slip/sublux over the bone.

I truly wish some doctors would be willing to think outside the box. I’ve had pelvic pain which was stage 3 endometriosis blamed on IBS, and just had my first gastroscopy in over 10 years yesterday and guess what! Surprise surprise, it’s not “just IBS”. Report says my entire stomach lining is inflamed, eroded and friable, plus short segment Barrett’s oesophagus / oesophageal erosion.

I’ve been complained of intense heart burn at least for the past 3 years. Not every night, but some nights it takes me till 3am to finally fall asleep due to pain and that’s with a PPI or H2, mylanta, etc. 9 months ago I called an ambulance thinking I was having a heart attack - it was oesophageal spasm which still took 36 hours to stop hurting after meds.

I’m now on PPI and going to try really hard to make the commonly suggested lifestyle changes to go with them. Just so frustrated not being listened to and it’s my body that’s been harmed as a result.

Certainly appreciate any tips regarding lifestyle changes.

I’ve been under a lot of extra stress the last couple months so my emotional dysregulation is even worse than normal. I hope it’s okay to vent and maybe ask for any suggestions.

TW: ableism, verbal abuse

One of my biggest triggers is actually a neighbour and her kids. She often yells at them (usually when the dad isn’t home), they are frequently late or absent from school as well so they are just home a lot. When she doesn’t want to deal with them, they are usually outside. On some level I can deal with them, as kids are kids but the noise of them, their chickens, dog, at one point there was puppies left outside for weeks, they burn garden rubbish and it often blows towards my room (my room is on the side of the house closest to them).

It’s basically non stop stimuli.

The icing on the cake was yesterday she accused me of flipping off one of her kids (but couldn’t confirm when, where and I know for a fact I didn’t, what I can say is often if I’m in the backyard I may be stimming or pacing and their kids will stare at me from the jungle gym in the yard). Then tonight she started burning garden rubbish after the kids had been running around screaming for like 2 hours. I called her over and said I know you don’t like me (I’ve asked her not to do stuff like burn rubbish before) but why do you keep doing things that you know will upset me? And she basically told me I was being ridiculous, that I am a loser, a liar, a dickhead. Well I didn’t have my most gracious moment so even though I could barely talk I said back that she was one of the hardest neighbours I’ve ever dealt with and that’s why I’ve complained about her (to the real estate agent, they are renters) and that she’s hell bent on thinking she’s perfect yet lives to be awful to me. I said calling a disabled person who’s struggling a dickhead is terrible and then I said I can’t wait for you to move out (her kids were talking about it like 2 weeks ago), she told me I’m lonely and obviously spy on them to know that.

I’m late diagnosed and also unfortunately have cptsd so my ability to cope with people like this is really hard at the best of times. I already often keep my windows shut, the fan on, wear headphones or earplugs to help. But it can still feel suffocating because some days they are noisy from 7am-8pm. I am going to be working on some of this with my OT but happy to hear any advice from others.