u/Valstango

Hi all, let me start by saying that I don’t think I have alpha gal. However, I do think I have MCAS, and I know there is often some overlap in symptoms and people, so I would appreciate insight here if anyone can provide. I get sick on any food I eat, but beef and chicken were the first culprits, resulting in really bad histamine dumps.

Has anyone noticed they feel sick after frozen food? One of the things I’ve read repeatedly is for histamine issues to immediately freeze foods, but if anything I’m noticing that a fresh food that is somewhat ok becomes absolutely horrific after being frozen, even with quick thaw/reheat.

Separately, has anyone here tried Pectasol for their reactions and if so, has this helped you?

Hi everyone, recently diagnosed with a nickel allergy. Diving into that rabbit hole has led me to think I also have MCAS - the symptoms and triggers align in the extreme.

I started taking Pectasol for the nickel about a month ago and have seen several posts here about excellent results. For these people, a few questions, please: what is your dosing regimen? Number of capsules or grams of powder, number of times a day, with/without the out meals? Do you seen better results with powder or pills? Have you gone beyond the max suggested or seen better results with less? What foods are you eating?

At first I had great results (mainly BMs) but my histamine flairs have lately gotten a lot worse and I’ve noticed it doesn’t seem to help me at all during these times. I usually take 6 capsules 3x per day but have tried as many as 9x when it wasn’t working (which was a waste).

I’m reacting to anything I eat at all, so I’m fasting a lot (I know I shouldn’t, but I can’t function when I eat, an ugly cycle). One strange thing I’d also love thoughts on: I react really badly to frozen food. If I have freshly cooked beef that I’m ok with, freeze it almost immediately, and warm up quickly the next day, I’m a goner. Emotional and physical basket case. Wrenching fatigue, brain fog, spaced out, depression, hives, and pain in my kidneys.

Any suggestions very much appreciated.