I was already not a meat-eater when I experienced gastric symptomps post-tick-bite that were consistent with alpha-gal, so I got tested. The results only indicate overall number, beef, lamb and pork, which is useless to me. The local allergist who allegedly specializes in alpha-gal can't see me until January. I gave up dairy, of course, but would love to learn more detail while I continue to ask as my own food detective (like all of you, and I thank you for sharing what you have on this forum!) => Does anyone have a lead to another lab test with more useful results?

Has anyone in the United States found a vegan progesterone? Would it be possible and safe to try draining the liquid from the gelatin capsule into an empty vegan capsule?

I am not sure if all the ingredients are vegan, but I finally figured out that it has a gelatin capsule that I react to every night after I take it. Since I take it with dinner, I was getting so frustrated trying to figure out what I had eaten wrong when it finally occurred to me tonight that I should check my medicine. It causes my lips to swell, heart palpitations, nausea, and dizziness.

I am not actually diagnosed but have been allergic to meat for about thirty years, dairy and lanolin for about eight, and started reacting to cosmetics about a year ago. As a hiker, I've had many tick bites over the years. I've just quietly said I was a vegetarian since I didn't think anyone would believe I had allergic reactions to meat. My family told me about alpha gal syndrome, and I am trying to figure out how to get tested.

Wondering if those of you who can’t tolerate* *magnesium stearate had any luck with vegetable magnesium stearate? wrote it wrong in the title

I read this sub often but decided I needed to interact now after I saw the mods have banned a user that got fed up with the misinformation being posted here.

Mods, will you ban me now too and delete this post for speaking up? Sure you can sweep me under the rug if you want but how bout explaining your actions instead.

I think the mods made a decision based on anger and not fact. This is disturbing to see valid comments being deleted.

What’s next? Probably will delete this and ban me too.

Good luck out there finding reliable info fellow AGS comrades.

I’ve seen Amaroo farms recommended several times as a safe provider of emu/ostrich/duck etc, but I saw on their site they offer Alpha-gal free pork?? They say it has not detectable Alpha-gal via genetic modification. Has anyone tried it??

Recently I was diagnosed with alpha-gal a tick born disease that causes an allergy to all red meat and byproducts I’m on vacation and it’s the worst trying to explain I cannot have any kind of red meat and or dairy products. I feel bad for my kids and husband as we’ve literally had to leave two restaurants as there’s cross contamination and no way to have anything. I feel so defeated. I was diagnosed a week before vacation and I’m just sad. I want to eat and enjoy food with them and not have to leave a restaurant. They’re more than understanding but I feel like I’m taking them away from joy.

What is the one thing you’d eat, right now, if your AGS suddenly disappeared?

I’ll go first: an ultimate cheeseburger from Jack in the Box. It’s my favorite cheeseburger and I’d cow down on several right now if I could.

I've had AGS for about a year now but after eating at a local restaurant last week which I'm assuming they used real butter while cooking. I've had heart palpitations since. Has anyone else experienced this?

Let me preface this by saying I’ve had AG for nearly 25 years, symptoms since 2003, diagnosed in 2009. I’ve run the gamut from just hives to full on anaphylaxis where I thought I was going to die. I haven’t deviated from the AG diet ever aside from one accidental exposure. Has anyone dosed up on Benadryl and indulged? How did it go?

I’m really sorry I am again asking a food question this week. I feel like every time I think I understand one aspect of this, something else comes up.

I know some are more sensitive than others here, but I’m curious if it is generally necessary to purchase organic non-red meat (ex plain chicken thighs) to avoid mammal derived ingredients in any injections they may receive? (Is this even a real thing?)

Edit: I appreciate the kind responses and info!

First off, super glad I found this page. I’m not a super big Reddit-er, but I have gotten a lot more help here than a lot of the nonsense on the interwebs.

I was diagnosed with AGS about three years ago. I stopped red meat completely (someone explained it to me as anything with hooves, you cannot eat). I still kept to my cheese and would not let go. I usually didn’t have anything too serious with cheese, especially if I took my meds from my GI (I mainly only ever had GI issues with reactions, but I also have a bit of a mix up from birth with most of my GI system).

This year, I flew a little too close to the sun I guess you could say. I started introducing red meat back in to my diet, first once or so a week, then a couple times a week. Same thing, as long as I took my meds (dicylomine aka bentyl) it kept it at bay with minor issues. I actually thought I was starting to beat it and able to start eating beef again. I did try a club sandwich with ham and that was the worst attack I had ever had at the time.

A little over a week ago, my wife and I were waiting on a rental while our car got dropped off at the dealer. The only place within walking distance was Steak n’ shake. I didn’t think it was a very good idea, but she said she thinks I will be fine. Mind you, my wife has zero medical skills or knowledge and I think is trying to off me for the insurance money. TOTALLY KIDDING.

I feel as though I’m rambling so I’ll get to the point. My symptoms are you usually delayed by 20-24 hours. The next day, this hit me about 12 hours. And absolutely destroyed my body. Not just GI, but my joints, my entire back, neck and I couldn’t stopping from expelling what seemed like everything I had eaten in the past month. This kept going on and on for a week straight. I was finally able to move around a little and get around this week, but my joints still hurt and I had noticed this was a normal occurrence more and more the previous few weeks before this. I still have to be extremely careful with what I eat, which is apparently only dry rice, pastas, and eggs.

I have a network of doctors (as my body is just a complete dumpster fire already) and I found out that I just lost my GI Doctor and my PCP (gotta love the VA) so I’m basically in a holding stage experimenting with my body. I have learned a whole plethora of knowledge from this page and reading everyone’s comments and how their reactions go and now I have so many unanswered questions that are answered and makes sense. I did have another doctor tell me that I really need an EpiPen, but then didn’t write me one or send me in any direction to get one, lol.

Anyways, if you stuck around this long, thanks to everyone and for this page and the comments. It just 100% made me feel better mentally.

The Tick That Hunts Down Its Hosts—Including Us, by Burkhard Bilger

Hey y'all, it's the Tuesday ~*^MeGaThReAd^*~ for sharing AGS-safe meals and snacks!

Folks regularly describe frustration and big feelings about dealing with their dietary restrictions related to Alpha-Gal Syndrome.

Some long-timers are bored of the same meals every day and craving inspiration, while some newbies are just plain shell-shocked and not sure where to turn for safe ideas.

What this thread is for:

• Tell us this week's AGS-safe meal plan, or a summary of what you ate last week. Inspire us! Sometimes simple is king, sometimes it feels good to treat yourself to a fancy meal, but you never know when you'll give someone stuck in a rut a great idea.
• That's literally it.

What it is NOT for:

• Yucking yums
• Product advertising
• Promoting consumption of anything that contain alpha-gal
• Arguments about dairy/gelatin/etc, or arguments in general
• Medical advice

I just got diagnosed last week and have to wait a few weeks to even be able to get an appointment with an allergist because my area doesn't have one. Had a mild allergic reaction last night because I forgot a food I'd eaten earlier had cheese on it. Then my head hurt after work so I took some ibuprofen and lo and behold awhile later I was having a little trouble breathing. My bf took me to the er but they didn't really pay attention when I mentioned the allergic reaction so that was frustrating. Gonna talk to my doc about getting an epipen for emergencies. Sorry for the rant I feel like I'm learning new things about ags every day and it's overwhelming even with the resources provided here and by the CDC.

As the title says, I’m scared I was bitten again. I had SAAT around 5 years ago. Did the whole trial period with introductions and have been absolutely fine since. Last night I cooked some delicious pulled pork and I also had a burger yesterday. I woke up with hives on my wrists this morning, I didn’t really think anything of it.

Ate my pork for lunch around 12 and since around 330 pm I’ve slowly started developing more hives.

Is it possible I could have been bit again and not known? I’m freaking out over here and I’m insanely itchy.