r/alphagal

After a month of going vegan my blood test shows undetectable. Am I cured? It only took a month? Sounds too good to be true

Hi all, let me start by saying that I don’t think I have alpha gal. However, I do think I have MCAS, and I know there is often some overlap in symptoms and people, so I would appreciate insight here if anyone can provide. I get sick on any food I eat, but beef and chicken were the first culprits, resulting in really bad histamine dumps.

Has anyone noticed they feel sick after frozen food? One of the things I’ve read repeatedly is for histamine issues to immediately freeze foods, but if anything I’m noticing that a fresh food that is somewhat ok becomes absolutely horrific after being frozen, even with quick thaw/reheat.

Separately, has anyone here tried Pectasol for their reactions and if so, has this helped you?

A few days ago now we were on a long trip in the middle of nowhere. I had to go to the bathroom and there wasn't going to be one for a very long time. I pulled off to the side of the road in a heavily wooded area with nobody around. I was in basketball shorts, slides, and a t-shirt. I went up 10 feet into the woods behind a tree just in case anyone would happen to pass by. Normally if I'm going to be in an area like this, I am well covered and vigilant about ticks. I would never dress like this in the woods. That's when I saw it as I was doing my business. A Lone Star Tick, easily identifiable by the white dot (NOT on my body). I immediately booked it out of there and had my wife help me conduct a full body check at the car. There was nothing. It's been a few days and I have found no ticks embedded and nothing that would feel or resemble a tick bite. But naturally I'm a bit worried about it.

When you were bit, did you find the tick on you? Did it embed into your skin? Did you ever feel or see an obvious tick bite? Thanks for any help.

Hi all. This is a new one for me. Hubby (non-AGS) and I have been doing pretty well splitting cooking and doing all we can to avoid cross-contamination for me. Sunday night my husband was cooking hamburger and I had to reach over the stove to put my impossible burger into the microwave. In the process I got a lung full of the fumes and oils coming off the burger he was cooking.

Sunday night I felt off and sick but yesterday and today have been miserable. GI issues, lungs feel tight, coughing, sinuses running, headache, exhausted. Is this typical of what those of you with fume reactions experience?

Anyone here try the product MyBacon from https://myforestfoods.com/mybacon
I was poking around the subreddit r/vegetarian and stumbled upon it. It’s mainly mushroom based products.
They do list natural flavor as an ingredient, I just emailed them asking for clarification if it’s AlphaGal safe. Bone char, carrageen, etc free. Waiting on a response, will delete if they don’t confirm it’s AlphaGal safe and will add an edit to this if they confirm it’s safe.

The bacon is a little pricey $9.49 at a local grocery store in St Louis. They do have a store locator on their site and believe I read at all Whole Foods.

Nothing hits better than a BLT in the summer. The people on the vegetarian subreddit said it tastes like bacon, but that’s kind of like getting the best directions from someone who just arrived in that city, versus someone whose lived and spent all kinds of time in that city.

Has anyone tried the MyBacon? They do warn to only cook on stove top and flip consistently.

https://www.facebook.com/share/1FzvVCdYqR/

This published article written by "biothics" professors about aphagal is listed in pub med. I am sooo angry

I never realized what a blessing it is to not think about what I'm eating. I've taken for granted not having allergies. Went through a lot of these threads and the level of isolation and research you have to do on food is staggering. I've also read some vegan threads clueless as to what this does.

The worst has to be the "scientific" paper published claiming AGS is "beneficial" for climate change. It's not that these people think this way as much as it is that a journal published it (ironically called Bioethics!). I found myself thinking how satisfying it would be if the professors had to experience what AGS sufferers go through. Now I'm having to take a breath and realize how quickly I can spiral. Anyway, God bless you all.

I work in a kitchen and with my new diagnosis followed what I thought would be an extremely minor cold. What followed has been a 12 day journey of one of the most persistent sicknesses of my life. Even when I had COVID, flu or pneumonia they never lasted more then 7 days (I’m not counting the rsv cough, that shit lasted for months).
I can’t take any medications that I’m used to taking because almost all of them have some sort of mammal byproduct.

I think that just being in the kitchen and over the grill is making me sick, maybe I can’t feel it right away, but I’m more tired then I’ve ever been at the end of the day in the weeks before the diagnosis.
I don’t know what to do and I’m loathe to bring it up to my boss or anyone else at my job, because I need this job and its benefits

Hey y'all, it's the Tuesday ~*^MeGaThReAd^*~ for sharing AGS-safe meals and snacks!

Folks regularly describe frustration and big feelings about dealing with their dietary restrictions related to Alpha-Gal Syndrome.

Some long-timers are bored of the same meals every day and craving inspiration, while some newbies are just plain shell-shocked and not sure where to turn for safe ideas.

What this thread is for:

• Tell us this week's AGS-safe meal plan, or a summary of what you ate last week. Inspire us! Sometimes simple is king, sometimes it feels good to treat yourself to a fancy meal, but you never know when you'll give someone stuck in a rut a great idea.
• That's literally it.

What it is NOT for:

• Yucking yums
• Product advertising
• Promoting consumption of anything that contain alpha-gal
• Arguments about dairy/gelatin/etc, or arguments in general
• Medical advice

Hi everyone! I was diagnosed with AG in 2014 but had symptoms ranging back to 2010ish.

For the last several years, I have had severe cramping pain in my upper left and right quadrants, not necessarily at the same time. The pain will go away for 2-3 weeks at a time, but then come back.

I have had every test under the sun at least 2 times. All come back negative. But it has to be something. When they hit, most times, they put me on the floor, writhing in pain. It seems to let up, but when I stand up, it will hit again and back to the floor I go. Frankly, it's embarrassing. I am a natural red head, so my pain tolerance is considerably high.

Recently, I have noticed a correlation between cross-contamination and these pains. They typically hit the next day.

My question is, does anyone else with AG experience this reaction? I also have the standard GI issues, headache, ect. TIA.

Has anyone been able to successfully decrease their sensitivity to alpha-gal by taking a prescribed Mast Cell Stabilizer?

I asked my allergist about it and she thought it might be a good idea, also because I seem to have some form of mast cell dysfunction other than just IgE reactions, although I‘d want to wait since I am pregnant, unless my reactions to accidental exposures get more severe.

I particularly am frustrated with still reacting to all mammal byproducts, even normal sugar, which is worsened by vocal chord dysfunction and HSD. I am tired of not being able to eat anything out (as im sure many of you are) and not being able to eat anything someone makes for me because most people don’t know how to not cross contaminate and I don’t want them to go into all the trouble of cooking just for me to see them using a cast iron pan and go “I am so sorry, I can’t eat this”. It’s really frustrating because I can’t even show them I appreciate their cooking and everyone is nice about it but I feel so rude bringing my own food everywhere. And it’s really time consuming to have to make everything at home and then leave events early because I have to go home.

I also really want to eat dairy again. That’s my goal, but at the very least not being so sensitive to cross contamination would help. Just curious if anyone has had any improvement with any of those medications such as Xolair (Omalizumab) or Cromolyn? Thanks ahead of time!

Hey guys, my dad is having trouble putting on weight after getting out of the hospital and he is convinced that it is contributing to him not feeling well. Do you recommend anything that he would be able to eat that would help him gain back some of his lost lbs? Any advice is appreciated.

When someone without alpha-gal says "I could never give up meat," how do you respond?

I’m frustrated to no end that my social media feed has been inundated with “bill gates is sprinkling ticks around to make everyone allergic to red meat!!!”

I want more research into alpha gal to get a cure or a preventative. And this nonsense I worry has people all up in arms and may cause there to be less research into it. Generally it’s very silly and frustrating to see.