u/WestSeason2860

Does anyone have tired hips by their groin area? I notice it when I sit at a desk or drive. I can no longer sit cross legged on a chair, sit with one leg tucked under my butt, or sit with one leg propped up on the chair.

I’m really hoping this is temporary because it’s pretty uncomfortable to sit with both legs on the floor in a 90/90 position all day long. Even if I sit the proper way, my hips my the groin area are still absolutely exhausted and sometimes comes with SI pain. No stretching helps when this flares up and I’m at a loss.

For anyone who experienced this symptom, what made it better and were you able to eventually sit however you liked with time? Driving obviously can’t be avoided so there needs to be some kind of solution here.

I’ve had PFD for a little over three months now, and while I feel like I’m finally starting to get a better handle on the nervous system side of things, I’m really struggling with how incredibly non-linear recovery has been.

Last week was actually pretty decent, and then this week was horrible. It’s hard not to feel discouraged when it seems like I’m making progress one minute and going backward the next.

My symptoms also seem to constantly morph. It started with pelvic pain during the first week, then shifted into mostly muscular pain, and a few weeks ago the pelvic symptoms returned again. Some things have definitely improved, but I still seem to flare frequently—if not every day to some degree.
The hardest symptom lately has been this deep pelvic floor pressure/tightness which won’t go away.

For anyone further along in recovery: did you also go through periods where your symptoms constantly changed and good weeks were followed by really bad ones? When did the bad weeks become less frequent?

I suspect my nervous system is driving a lot of my muscle pain. Things that I feel are helping:

-Prozac (started a week ago and already feel a difference)
-LDN
-Gabapentin
-Acupuncture weekly
-Walking
-No drinking or caffeine
-Magnesium and vitamin d supplements

Anything else that you swear by?

Get those sneakers on kids. Ask me anything!

I have a severe case of PFD and my nervous system seems to be attacking my muscles no matter what I do.

I was getting slowly better until about 2 weeks ago when I over stretched and over walked. Since then I have been back sliding + getting new symptoms.

I now have pelvic pain (first time in 2.5 months) which feels like left sided cramping and pressure. My left leg is shaking after stretching gently last night. I have pain sitting and standing. Can no long lay on my side or stomach. I’m in discomfort 24/7. Si, hip, lower back, even mid and upper bc of stress and my posture.

Please tell me why this is happening and what I’m doing wrong. I have external pain points on my hips glutes thighs and can’t stretch or roll them without flaring. I can’t find internal trigger points even though I know they are there. I’m a normal 36 year old who had the best life before this nightmare began and idk what to do anymore. I’m really scared.

I’m 9 weeks into PFD and I’m really struggling to stay hopeful. I have 24/7 muscular pain in my hips, SI joint, tailbone, and back. Sitting hurts, I get vaginal spasms and cramping, and some days my whole body feels like it was hit by a car.

I know many people here have been dealing with this much longer, but mentally I’m exhausted and cry every day. I miss feeling normal and trusting my body.

If anyone has had symptoms like this and eventually recovered or got their life back, please share your success story. I really need to hear that there’s a light at the end of the tunnel.

I have almost no pelvic pain but my entire spine hurts 24/7. Does anyone else have this? I know it’s connected to my PFD because the pain started around the same time as my other symptoms.

Pain areas: tailbone, SI, lower back, upper/mid, itchy/burning feet. I used to get vibrating legs and so far one has resolved and the other one is on its way to resolving (small win).

Sometimes the pain moves around and at times if I over stretch or walk too much the full spine hurts. It hurts to lay on my back because it pulls it. I’m feeling very discouraged as this is triggering a massive pain anxiety cycle and nothing is breaking it.

I’m getting internal trigger shots next week despite that area dramatically improving. The only other thing I can think to do is to get internal work in the back. I’m also seeing a spine and nerve doctor who specializes in the pelvic floor in a few weeks. I’m also in PPT.

The pain is severely impacting my QOL and I’m feeling very discouraged. Can anyone help advise?

Will rectal internal work help (I’m a female)? Any specific stretches? Open to all feedback on what has worked for you but this pain and leaning backwards are my main issues especially when active. A lot of my other issues seem to be improving.

Is acupuncture or dry needling better for muscle pain? I have PFD and don’t really have pelvic pain at all aside from very light non-painful lessoning spasms which I’m getting trigger shots for in 2 weeks.

I do on the other hand have a lot of muscle pain that hops around. Lower back, hips, thighs, tailbone, sacrum. My mid and upper back are also always tense and my feet are itchy if I do a lot of walking or first wake up. There is def some nerve compression going on.

My pelvic specialist told me to avoid dry needling yet I have heard that’s where everyone has gotten the most relief. Thoughts? She highly recommended acupuncture but I’m down to try anything.

I have been in a mostly unrelenting flair for 2 months.

This is my story (that I have posted several times on other threads):

I have always been an anxious person but never depressed. I did egg freezing and a month later laser hair removal which was the trigger for my acute PFD. Before that I was a big runner and cyclist and never had pelvic, back, glute, or hip pain.

My symptoms have evolved dramatically the last 7 weeks:
Day 1 pelvic hypersensitivity, Day 2-8 Burning and some urgency, Day 9-20 leg muscle guarding spams and cramps. I also had the worst glute, hip, and lower back pain to the point could never get comfortable ever. Sitting was a challenge and I had to stand constantly.

Current main symptoms:
- Leg vibration and occasional spasms and cramping (worsens when I’m active)
-Hip or thigh exhaustion
-Nonstop pelvic spasms (but not painful just every few seconds unless I can find a position to stop them)
-Upper back pain (comes and goes but always tense)
-Occasional lower glute and back pain (comes and goes)
-Hard surfaces hurt without a special pillow

Occasional symptoms:
-pencil BM and muscle guarding in that area
-Unable to sit for long periods of time and very uncomfy

I feel like I have so many symptoms that can be anywhere from a 2/10 to a 9/10 and presents as wack a mole. I have good days when I take lorazapam and had 4 great days after my first internal PT work.

Given this, what’s everyone’s longest flair? I feel like I shouldn’t be in a flair this long and have had 5 internal PT sessions and take all the meds from my specialist (also have a pelvic wand). Considering lidocaine or Botox as I’m running out of options and don’t want this to turn chronic.

Does anyone who has hypertonic pelvic floor disfunction have mid and/or upper back pain?

For the last 7 weeks my symptoms impacted my lower half until they recently started traveling up my spine. AI searches says it’s because my body had to learn to stabilize myself when my pelvic floor was off but can people please share if they also experience with their condition.

My PT thinks it’s my nervous system as well.

Does anyone else get leg guarding, spasms, and cramping?

Mine started 9 days into my PFD onset and while the hyper excitability has gotten way better, they still cramp up all over like crazy. I actually think gabapentin might be making it worse because it was very quiet until I started the medication 2 weeks ago. My pelvic floor specialist thinks this with my upper back pain isn’t normal but I think it’s all connected…

Hi all,

I have been posting a lot lately but as I lay in bed with my pelvic floor spasming I really need your help.

My symptoms came on a little over 6 weeks ago acutely from 2 minor pelvic traumas (egg freezing which has zero issues and laser hair removal which triggered issues 24 hours later).

What started as normal pelvic floor disorder (burning, frequency, tight hips/glutes), has exploded into something severe.

I have full body spasms but they mainly occur in my legs, glutes, and nonstop in my pelvic area unless I find a position that gets them to quiet down. I have on and off glute, hip, and lower back pain but what’s most concerning is now I have mid and upper back/neck pain that has given my doctor pause.

ChatGPT says this is symptomatic nervous system related. What are your thoughts and experiences? I really just want my life back and I’m worried I’m going to be stuck like this forever.

If this truly is nervous system related how would I fix it? Is it just SSRIs and doing yoga in addition to all my manual work (PPT, wand, ect)?

I used to wake up pain free and now I wake up with muscle tension. Help please.

Does anyone else get leg guarding, spasms, and cramping?

Mine started 9 days into my PFD onset and while the hyper excitability has gotten way better, they still cramp up all over like crazy. I actually think gabapentin might be making it worse because it was very quiet until I started the medication 2 weeks ago. My pelvic floor specialist thinks this with my upper back pain isn’t normal but I think it’s all connected…

Does anyone else get leg guarding, spasms, and cramping?

Mine started 9 days into my PFD onset and while the hyper excitability has gotten way better, they still cramp up all over like crazy. I actually think gabapentin might be making it worse because it was very quiet until I started the medication 2 weeks ago. My pelvic floor specialist thinks this with my upper back pain isn’t normal but I think it’s all connected…

I’ve been dealing with pelvic floor dysfunction for about six weeks (from initial symptom onset). It seems to have been acutely triggered by two things: first, egg freezing, and then laser hair removal about a month later. I zero symptoms after the egg retrieval and the laser hair removal really seemed to be the tipping point.

Almost three weeks ago, around my second period since all of this started, I began experiencing consistent pelvic floor spasms that have never fully stopped. Sometimes they happen every few seconds; other times there are longer breaks between them. They can be very subtle or quite intense. Fortunately, I’m able to sleep through them, and I sometimes wonder whether they actually stop while I’m asleep because as soon as I wake up, they start again.

Initially, the spasms weren’t painful, but they’re starting to become uncomfortable, which is making me increasingly worried. I also used to only experience them when my legs were stretched straight out in front of me. Now they happen in almost every position except when I’m standing.
I really need help figuring out how to break this spasm cycle because I feel like it’s interfering with otherwise really encouraging progress. Internal pelvic floor work has actually been very successful for me and has helped many of my other symptoms significantly.

My current action plan:
My pelvic floor specialist has instructed me to use diazepam suppositories every other day until August 27. If there’s still no improvement by then, she mentioned trying lidocaine injections or Botox. Hearing injections mentioned honestly terrified me and made me worry that my case must be unusually severe, even though I’m only six weeks into this.
So far, the suppositories don’t seem to be doing much for the spasms. They work for a few hours then come right back. I tried using one rectally because vaginal use was irritating, but I’m wondering whether I should try vaginally again since the very first suppository I used that way did seem to help.

I’m currently in PPT and the spasms appear to be getting worse after internal work even though it’s helping other aspects like lower back and hip pain.

If anyone reads this post and experienced spasms or is knowable about them can you please tell me what helped you. I’m worried this is going to be my new normal and my anxiety is through the roof.

I’ve been dealing with pelvic floor dysfunction for about six weeks (from initial symptom onset). It seems to have been acutely triggered by two things: first, egg freezing, and then laser hair removal about a month later. I zero symptoms after the egg retrieval and the laser hair removal really seemed to be the tipping point.

Almost three weeks ago, around my second period since all of this started, I began experiencing consistent pelvic floor spasms that have never fully stopped. Sometimes they happen every few seconds; other times there are longer breaks between them. They can be very subtle or quite intense. Fortunately, I’m able to sleep through them, and I sometimes wonder whether they actually stop while I’m asleep because as soon as I wake up, they start again.

Initially, the spasms weren’t painful, but they’re starting to become uncomfortable, which is making me increasingly worried. I also used to only experience them when my legs were stretched straight out in front of me. Now they happen in almost every position except when I’m standing.
I really need help figuring out how to break this spasm cycle because I feel like it’s interfering with otherwise really encouraging progress. Internal pelvic floor work has actually been very successful for me and has helped many of my other symptoms significantly.

My current action plan:
My pelvic floor specialist has instructed me to use diazepam suppositories every other day until August 27. If there’s still no improvement by then, she mentioned trying lidocaine injections or Botox. Hearing injections mentioned honestly terrified me and made me worry that my case must be unusually severe, even though I’m only six weeks into this.
So far, the suppositories don’t seem to be doing much for the spasms. They work for a few hours then come right back. I tried using one rectally because vaginal use was irritating, but I’m wondering whether I should try vaginally again since the very first suppository I used that way did seem to help.

I’m currently in PPT and the spasms appear to be getting worse after internal work even though it’s helping other aspects like lower back and hip pain.

If anyone reads this post and experienced spasms or is knowable about them can you please tell me what helped you. I’m worried this is going to be my new normal and my anxiety is through the roof.

I’ve been dealing with pelvic floor dysfunction for about six weeks (from initial symptom onset). It seems to have been acutely triggered by two things: first, egg freezing, and then laser hair removal about a month later. I zero symptoms after the egg retrieval and the laser hair removal really seemed to be the tipping point.

Almost three weeks ago, around my second period since all of this started, I began experiencing consistent pelvic floor spasms that have never fully stopped. Sometimes they happen every few seconds; other times there are longer breaks between them. They can be very subtle or quite intense. Fortunately, I’m able to sleep through them, and I sometimes wonder whether they actually stop while I’m asleep because as soon as I wake up, they start again.

Initially, the spasms weren’t painful, but they’re starting to become uncomfortable, which is making me increasingly worried. I also used to only experience them when my legs were stretched straight out in front of me. Now they happen in almost every position except when I’m standing.
I really need help figuring out how to break this spasm cycle because I feel like it’s interfering with otherwise really encouraging progress. Internal pelvic floor work has actually been very successful for me and has helped many of my other symptoms significantly.

My current action plan:
My pelvic floor specialist has instructed me to use diazepam suppositories every other day until August 27. If there’s still no improvement by then, she mentioned trying lidocaine injections or Botox. Hearing injections mentioned honestly terrified me and made me worry that my case must be unusually severe, even though I’m only six weeks into this.
So far, the suppositories don’t seem to be doing much for the spasms. They work for a few hours then come right back. I tried using one rectally because vaginal use was irritating, but I’m wondering whether I should try vaginally again since the very first suppository I used that way did seem to help.

I’m currently in PPT and the spasms appear to be getting worse after internal work even though it’s helping other aspects like lower back and hip pain.

If anyone reads this post and experienced spasms or is knowable about them can you please tell me what helped you. I’m worried this is going to be my new normal and my anxiety is through the roof.

n.

Hi all-

I was diagnosed with pelvic floor disorder on Tuesday and already went to PT for my assessment this past Thursday. I’m going on 2 weeks of discomfort that seems to be evolving and not in a good way.

At first I was losing my mind over the uti burn for 8 days but it was literally released after just 2 days of at home stretches the PT gave (def a win). I did notice my tailbone was really sore and it hurt to sit but because I was so hyper focused on my burning it was background noise. Now that the burning stopped all I feel is the tailbone burn and my legs feel electric and tight almost like they are guarding non-stop 24/7 anytime I lay down or sit.

PLEASE TELL ME THIS IS FIXABLE WITH PT. What is happening?? Is this nerve irritation? How will the PT how me with this?

To my PFD community,

I never thought I would turn to Reddit but after 8 days of uti like burning I’m desperate.

About a month ago I did egg freezing successfully. Once it was over I really wanted to have my hot girl summer and treat myself to all the procedures starting with Brazilian laser hair removal. I had a really stressful week leading up to it with work travel, a new role, an ocular migraine that caused a panic attack, and being nervous before the laser. It ended up being painless but I was tensing so afterwards I fully relaxed and forgot about it. Around noon the next day I started feeling uncomfortably tingly and overstimulated in the treatment area. This feeling came and went. The next day it slowly started burning only to fully turn into what I thought was full blow uti including urgency to pee. After several days of it not improving I started getting horrific panic attacks with full body shaking and tremors that would last hours. I full lost my appetite and sleeping is difficult. The burning seems to come and go with different intensities throughout the day. On Saturday the pain was even gone for over 24 hours which felt like it was improving. However, the panic has made it impossible to relax and the burning always seems to return or stay in the wings.

After a negative uti and yeast test I got an emergency urology appointment where following the exam I was diagnosed with a pelvic floor disfunction where my body tightened up and during the exam my doctor said she felt a spasm. She concluded the egg freezing and laser were 2 triggers to bring this with the laser being the one to escalate symptoms.

Some days are worse than others and my urgency has gone away/it doesn’t hurt to go to the bathroom anymore. All that remains is the internal burn and I’m not noticing it hurts to sit on hard surfaces and I have to use a pillow.

PT is 3 weeks out and I’m just desperate for pain release. Is this going to be my new normal forever or for months/years? All the stories online are scaring me. My doctor said this is temporary and just a flair and I will get back to baseline following PT but I’m so scared.

Please help in any way you can.

Signed a very scared girl who just wants her life back.