u/Western-Low-2314

Hi all I’m just wondering if anyone has been on the euro star or tunnel with this and been ok due to go in two weeks. I last went on an hour steam train about two years ago in the dark at night and felt horrible the train was tilting to one side which didn’t help I really felt panicked.
I managed the trip but was glad to be off and no after effect.
Due to go on the tunnel to scared to fly my last experience was horrible. I’ve not left the UK for 12 years now due to this disorder but I’m ok in a car.

Will I feel dizzy will I feel the motion ? Please someone reply to me 🙏

Hi so I’ve had VM for years worse now in peri menopause. I’ve been on this now 30mg for approx three weeks I also have PPPD all the time but have attacks so tinnitus ringing nausea and spins or intense dizziness.
I’ve noticed I’m getting the episodes still but their shorter than usual lasting only 30 mins and not building to full on vertigo which I’m beyond grateful for and hoping it’s the meds as now and then I do get a few weeks off the vertigo before I started this med.

Is it possible my attacks are still happening but less severe ? My allodynia on my scalp burning I usually get I haven’t had now for 16 days. I kind of feel like it wants to start like it’s there a sensation but hasn’t progressed.
Again I think this must be the med as I suffer that a lot.

I was so afraid to take this med but I’m sleeping amazingly I get some bouts of nausea but nothing to bad at the moment. No horrible side effects for me so far keeping up with water and veg fruit for those side effects.

I’m wondering if I go up to 60 I can stop the VM completely but I’m on this dose for another few weeks.

I booked to go to Disneyland Paris driving because flying gives me vertigo every time. I regret booking this trip I’m not driving my husband is it’s 3 hours to Dover stop over them three hours the next morning.
It’s in three weeks I want to cancel not left the country for years I’m so unstable but my kids had this trip as a present instead of Xmas presents and at the time I was having a quieter month when I booked and I thought I was improving.
I’m not I’m as bad as ever I’m so scared my last bad vertigo attack was about five weeks ago but I had vertigo last week for a few hours.

I’m so done I’m tired of being a burden letting people down and being ill abroad is so scary. How can I let my family down again but how can I go being so ill all the time I’m always dizzy. Things exhaust my brain days out walking etc I’m 40 years old and feel 100. I want to go I want to see my kids faces light up and give them an amazing time they haven’t even been abroad because of me :-(

Can I do this ? I don’t want to do it I’m afraid.

I’ve always had VM and I managed to get decent to get decent control for five years.
My VM goes away in pregnancy and comes back at the end. I’m now 40 and at 36 my VM went crazy it was shocking I had one huge vertigo attack for days and have not ever got better.
I’m getting hot flushes I wake up in the night drenched and spinning.
I feel like this isn’t even my body it’s like an aliens body I’m so depressed I’ve got PPPD then on cycle day 6-9 I get vertigo again and it all begins again while I’m on my actual period it calms down.
What can I do I’m so lost I’ve just gone on quilpta it’s early days so not sure it’s working yet. I got some wild yam cream have yet to try ?

I’ve always had VM and I managed to get decent to get decent control for five years.
My VM goes away in pregnancy and comes back at the end. I’m now 40 and at 36 my VM went crazy it was shocking I had one huge vertigo attack for days and have not ever got better.
I’m getting hot flushes I wake up in the night drenched and spinning.
I feel like this isn’t even my body it’s like an aliens body I’m so depressed I’ve got PPPD then on cycle day 6-9 I get vertigo again and it all begins again while I’m on my actual period it calms down.
What can I do I’m so lost I’ve just gone on quilpta it’s early days so not sure it’s working yet. I got some wild yam cream have yet to try ?

Finally plucked up the courage to take this am on day two. Felt like an attack will happen all day then I started getting severe dizzy spells took the Quilpta and the numbness I usually get is very intense along with burning on my right ear and face.
I can get this with migraine but this is so intense but didn’t happen yesterday when I took it and I also have burning in my left hand which I’ve never had.
I’m freaking out it took so much courage to try and I’m still dizzy and numb and burning. It’s so weird shall I keep taking it ? I don’t know what to do now I felt like this was my last chance I feel like giving up I’m so upset 😢😢

My VM is chronic and getting worse I’m so scared. They have given me quilpta I’m scared to try but the alternative is staying this way. Has it helped anyone my heads been numb days ringing ears and vertigo and dizziness. I can’t work and hardlr leave the house. Will this med help ? Don’t want to get worse

I suffer vestibular migraines pretty bad. Today I went the salon my brother is my hair dresser and now and then I use the sinks but mostly come home as tilting back is a trigger for vertigo so I’m very careful and aware of this. He washed my hair mostly upright I leaned back a bit for soap to come off and obvs he washed it rubbing my head about a bit etc
I was ok after didn’t feel dizzy and didn’t seem dizzy all day but while having it done my neck hurt a lot so I asked him to hurry. Came home cleaned the kitchen felt fine. Then tonight I got sudden nausea which is a prodome but usually now I just feel dizzy and rocky I haven’t had this vertigo for a good while.
I was just sitting when it happened and started having a horrible dizzy spell and I just knew vertigo was coming. It’s mainly positional but it’s pretty strong and I’m scared I’m praying it’s not BPV as that floors me and lasts days whereas my migraine dizziness isn’t as bad and does quicker.
Does it sound like BPV or migraine ? My head has now gone numb which is more usual for a migraine and I instantly needed the toilet for a number two sorry TMI
My heads still numb just very scared as my last BPV lasted weeks and I was housebound.
How will I know which one it is and can it start hours later. Help please