Don't know what I'm doing wrong
Around December 2025 I got extremely ill and had to go to the ICU. I went from around 70% fev1 to the low 20s and now I struggle to get to the 40s.
When my initial decline happened I assumed it was because I neglected my treatments. I always had chronic psuedomonas that would usually flare up every 3 months or sometimes not for an entire year. Ever since I got ill in December I just can't seem to knock it down for longer than a month.
I follow my treatments now, but every month I find myself back in the hospital with low sats and a bad fev1, I don't know what to do. I recover fast with IV antibiotics and I'm usually back to 40% by the end of my admission but then I usually find myself breathless after a few weeks. Nothing just seems to stick.
Has anyone else been through this? Has anyone been able to solve this or is this gonna be my new normal?