Visting with wheelchair

Hi- I'm Emi and I'm 18. My girlfriend lives in Cwmbran- and I am visiting her for about 5 days while my mum goes on a holiday she cant take me on soon. I will be getting the train and my mum is booking assistance for getting on and off, so thats not a worry.

Unfortunately, due to my health, I am currently mostly wheelchair bound outside of my house. I have visited cwmbran a lot as a child and quite a few times more recently, but I only needed a walking stick then. I am aware it can be rather hilly so that is a concern- but I was wondering if there are any good wheelchair accessible places people would reccomend i could shop at or eat at with her. I was in hospital for 2 weeks in may and have been bound to my house since, so I really want to try a few outings to shops ect if I can, especially since I havent been able to go out with my girlfriend for months now.

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u/Zesty_lemon_27 — 16 hours ago

New to using a wheelchair

Hi! I'm Emi, I'm 18 and I have moderate/severe ME/CFS that means that I am currently mostly housebound. My only chance of leaving my house currently is in a wheelchair- and my mum managed to borrow one off a friend. She is hesitant to buy one because she thinks that my current health setback will be really temporary, but it is likely I will require a wheelchair for any outing for the next few months to a year- and I will likely need it for longer outings for the foreseeable future.

It is not a self propelled- its a cheap little one that doesnt do curbs very well, but its something. I was taken to the beach in it, though that was a bad idea as it was far too big an outing and I was incredibly unwell. I am being taken to the dentists on Tuesday, a festival for maybe an hour to do face painting on Sunday, and I am going to my girlfriends house monday-friday.

I hate relying on someone to push me, but I know that even if I had a self propelled one, I would be too weak to push it. I am terrified whenever it has to be tipped to go up a curb, and I'm trying to get used to relying on people like my mum and my girlfriend to get around.

Are there any tips for me to get used to that feeling of being tipped to go up a curb? And for the people pushing me to help give me a good experience? I also found that even with a cushion I had that was my nans, my tailbone and bum in general hurt a lot after a while- any way to minimise that? General advice is also welcome- I have no idea what I am doing

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u/Zesty_lemon_27 — 16 hours ago

Small band big bust

Hi- I feel kind of out of place here and I probably am- but my band is 28 inches and my bust is 34- which makes me a 28 E in UK size. How the fuck am i meant to find a bra in that size- I already struggled to find a 28 D, then a 28 DD. I don't want to have to compromise on band size just to get one that fits my cup. They also keep growing and I'm not happy about it- I had B cups for most of my teens that suddenly exploded when I was 17 and a year later and they havent stopped. I dont want to have to be paying tons of money just for a bra that fits me but I fear I might have to. Other than M&S who i am a frequenter of- any good places? Do I have any hope of finding anything pretty and not just flesh coloured?

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u/Zesty_lemon_27 — 17 hours ago
▲ 6 r/CeliacTourism+1 crossposts

Gluten and dairy free options in Barry island

Simple question really- I'm going to barry island with my mum and brother for a beach trip, we've not all gone somewhere together for years. My brother is celiac and lactose intolerant- does anyone know any cafes or restaurants there that would be good to visit and have stuff he can eat?

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u/Zesty_lemon_27 — 8 days ago

Unsure about Labels

Hi- this is not something I thought I would ever do, but I think it is necessary for me to talk about this.

I have been an atheist my whole life. I have struggled to understand religion and I do not align myself with any at all. However, I feel deeply connected to nature and the world. I find the outdoors healing and comforting and specific spots to be particularly thought provoking. I often sit in said spots for hours and self reflect and just talk to the world. Nothing or nobody in particular. I also believe in spirits and souls, and that experiences can leave a mark on a place.

I consider myself atheist, but spiritual in some sense, and a friend said I should look into paganism, but i know theres lots of types. I was wondering if there are any that align with how i feel?

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u/Zesty_lemon_27 — 1 month ago
▲ 6 r/cfs

TLDR: I've had mild ME since September 2024. 4 week flare up, unable to eat solids or tolerate much light/sound/movement. Referred to treatment centre in Birmingham (uk) Need advice.

Tw for weight loss, i don't think there's anything else

Hi- I'm 17F and I've had mild ME for a year and a half now. At my baseline, I can normally manage college (2 a levels, so 2 lessons a day most days, one lesson a day on Friday and Thursday) without too much overexertion. I often feel very unwell come the weekend but then I rest for the entire time and go back the next week, it's not ideal but I want my education. I rarely have the energy to study outside of college or to see friends, often they have to come to me and I have to be resting. I can only wash 3 times a week because it's too exerting more often than that.

I have been in a flare since easter- it's fluctuated and my mum has been pushing me to go to college so it's getting worse. I got sent home from college after collapsing against my desk and passing out from exhaustion in both of my lessons. My doctor is referring me to the CFS clinic in Birmingham and has said I can have limited attendance at college for the next month while we wait.

I wonder if anyone has had experience with that clinic? And also what i can do to help manage this flare. I can't swallow full mouthfuls of water and can't really eat solid foods unless they're very soft. I managed a very well cooked burger patty cut up small and some soft cheese. My mum has gotten me some meal replacement shakes to help keep nutrition up. I can definitely have until Monday off from college, maybe that week as well if I do remote learning. I can barely go down my stairs (I had two banisters put in by OT), so I'm just in my room in the dark, not going on my phone much, only getting up to go to the bathroom, and eating small portions when I'm able. I've lost about 3.5kg in the time I've been in this flare, i was 52.5kg and now I'm 49. I worry about losing more. I'm 152cm so it's not dangerous yet but could be.

My girlfriend is incredibly supportive and she plans to visit me while I'm off and just sit with me so it's not too exerting, so that should help.

I appreciate that I'm privileged in that this flare isn't my baseline and that I'm able to function fairly well ordinarily but I worry about doing this wrong and worsening, so I'd appreciate any advice.

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u/Zesty_lemon_27 — 2 months ago