u/abgc161

I was officially diagnosed a week ago today. I appreciate I have been very lucky to not be in hospital/on a ventilator.

I find it difficult to walk more than a few paces without holding on to something with support. I have constant pins and needles in my hands/feet and a loss of dexterity e.g. I can no longer open a bottle of Diet Coke.

It takes me twenty minutes to get to and from the toilet which is maybe 15 steps away.

Obviously with all this I’ve fallen massively behind at work. They have been brilliant up to now but I have constant emails chasing and cc’ing my manager in. Obviously he has to say something when someone involved him. I’m very concerned they will force me to take unpaid leave or, ultimately, sack me.

I’m UK based. If anyone has any support or experiences to offer I’d be very grateful.

So I had some sort of gastro issues in March and been officially diagnosed today after an NCS and EMG. I feel very lucky, I have constant pins and needles in my hands and feet and significant muscle weakness in my legs (I’m now using my grandma’s walker).

I appreciate this is nowhere near as bad as other stories but would just like to know, what the next few months look like?

I have been referred for neurophysio and a follow up in 2 months for a further NCS and EMG, then it will be a lumbar puncture from there.

I’m panicking and would like any advice. For context I can walk unaided for maybe 4/5 steps, then need support. My 84 year old grandma has donated her walker which doesn’t feel great, as I’m 29.

I have constant pins and needles in my hands and feet, shooting pains up my arms and legs, and significant muscle weakness in my legs. The muscles in my arms seem ok.

I don’t know, I was diagnosed today and just looking for some support