urgent care concerns, yesterday.
Hi! 18 F hEDS with 9/9 beighton scale.
I called 111 (uk non-emergency line) yesterday because my knee had its first subluxation.
Key points :
I subluxated my knee at 5pm - it had returned to normal position as it happened.
It was done by sitting down normally.
Now usually my subluxations are in my ankles , shoulders and hips. Which cause minor swelling for about an hour and a sharp pain as it happens that dulls down. What was differant about this time was that I couldnt straighten my leg afterwards. And at around midnight - my kneecap and surrounding area had swollen to about half the size of it normally added on top with my foot starting to go very cold and when i pressed onto my skin on the base of my foot it started to turn a dark red/ maroon colour. This being why i called 111.
After going through the checks with 111, they asked me to go to urgent care in the next 4 hours. When I arrived at 1:09am i wasn't triaged - instead they told me that I was going to see the doctor straight away without being triaged. So I waited until around 5am when i was seen. He felt the swelling, asked for my history , and then sent me off to an x-ray.
The xray came back clear - which is what I expected anyway due to the fact that it had already popped back in. Due to it coming back clear - he said that I was fine and that it wasn't a dislocation (?). And told me to be more careful despite the fact I had told them it was just from sitting down.
My main concerns was that nobody checked the pulse in my foot due to it being cold (it still is going inbetween freezing and lukewarm temperatures). And nobody spoke about soft tissues in relation to hEDS as a probable issue - it was like they kept ignoring my condition as if it wasn't relevant. I was also given no brace or walking aids even though I am limping and struggling to walk or straighten my leg.
Am I right to be worried? I trust the hospital staff but I know how much hEDS is cast aside sometimes even in medical fields.