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u/ashtraylover

r/finchie r/Dystonia r/FinchUnofficial r/FND r/Cameras r/finch r/PNESsupport
▲ 1 r/Dystonia

Functional dystonia and seizure questions

Hi FND friends! I have two separate questions so if anyone has advice for either that could help, that would be wonderful! Just in case **trigger warning** talk of seizure and dystonia symptoms
I apologize if this question gets asked a lot or has been answered: what helps your functional dystonia, specifically in your legs and feet? Mine is triggered typically the worst at night when I’m relaxing in bed and sometimes I’ve noticed when my legs are chilly. I had restless legs before my diagnosis and only ever found one thing that helped that but I struggle a lot with this later on in the day. It’s such a random problem for me that I really don’t have much advice picked up so anything is appreciated!
My second question topic is for my functional seizure friends. Do y’all have them bad when you sleep? I’m getting quite frustrated/annoyed because I’ve **known** I have nightmares and sleep issues but they aren’t happening much in the day anymore and now are like these things that I half remember but like **know** happened, if you feel me? I have to be slightly conscious when they begin but they “end” by me falling asleep. I used to have them very bad during the day. But how do you get a more restful sleep? I can’t really control them. Little side note: I’m not sure if I was having them in my sleep when I had my EEG, I can’t remember that entire hospital stay :/ but I assume they are functional? Idk lol. It would prob say in the EEG notes if any happened in my sleep, yeah?

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u/ashtraylover — 4 days ago
▲ 3 r/PNESsupport+1 crossposts

Functional dystonia and seizure questions

Hi FND friends! I have two separate questions so if anyone has advice for either that could help, that would be wonderful! Just in case trigger warning talk of seizure and dystonia symptoms
I apologize if this question gets asked a lot or has been answered: what helps your functional dystonia, specifically in your legs and feet? Mine is triggered typically the worst at night when I’m relaxing in bed and sometimes I’ve noticed when my legs are chilly. I had restless legs before my diagnosis and only ever found one thing that helped that but I struggle a lot with this later on in the day. It’s such a random problem for me that I really don’t have much advice picked up so anything is appreciated!
My second question topic is for my functional seizure friends. Do y’all have them bad when you sleep? I’m getting quite frustrated/annoyed because I’ve known I have nightmares and sleep issues but they aren’t happening much in the day anymore and now are like these things that I half remember but like know happened, if you feel me? I have to be slightly conscious when they begin but they “end” by me falling asleep. I used to have them very bad during the day. But how do you get a more restful sleep? I can’t really control them. Little side note: I’m not sure if I was having them in my sleep when I had my EEG, I can’t remember that entire hospital stay :/ but I assume they are functional? Idk lol. It would prob say in the EEG notes if any happened in my sleep, yeah?

reddit.com
u/ashtraylover — 4 days ago
▲ 6 r/FinchUnofficial

Helping Hand Advice Needed! :)

Hi Finch friends! ADVICE SUPER NEEDED! :)
I’m determined to complete this months’ Helping Hand Challenge, I’m just needing a little advice; I’m extremely disabled right now and basically bedridden. I only go to my appointments. I RARELY go anywhere else. I made a list of all of the tasks that aren’t really doable for me and I wanted to see if anyone had any ideas as a little ‘replacement’ so I can complete them too and contribute as much as I can. I know I’m supposed to be focusing on my healing (I just got out of the hospital a week ago) but I love love love to help others.

So I made a list and if you guys have any suggestions as a substitutions, It would so appreciate it!! (I also attached the goals that I have left just for easier reference!

1.	I would love to be able to pick up litter but I’m not really able to bend down. I do pick up litter when I can but in a day I don’t leave the house enough to be around even other humans (ugh); basically not out enough to even see 5 pieces of litter. 

1.	With the volunteer to help a friend out I’m really tied on this one. I used to love helping my friends clean their rooms and jazz like that but unfortunately I’M the one who needs the care and help right now :/ 

1.	Okay holding the door open for someone: I feel like this just sounds silly. But like I’m the one everyone holds the door for. I really need a substitution for that one. 

1.	With letting someone go in front of me in line, I don’t quite know what to do for that. Like maybe at an appointment? I have a neurological disorder so my young body looks like garbage so everyone always wants to help ME. I don’t go to stores really at all sadly (I miss that😢)

1.	Donating to a cause that matters to me, I don’t have a dime to my name so maybe donate a few things to the food pantry? Signing a petition? I wish I could give blood but I think I’m too sick right now; I’d love to though.

This feels like such a silly post and questions but I’d really like to accommodate to achieve giving my helping hand this month :) ANY advice anyone has would be so appreciated!! <3

Thank you Finch friends,
From Lil Purp and Me :)

u/ashtraylover — 2 months ago
▲ 56 r/finchie+1 crossposts

Helping Hand Advice Needed Please! :)

Hi Finch friends! ADVICE SUPER NEEDED! :)
I’m determined to complete this months’ Helping Hand Challenge, I’m just needing a little advice; I’m extremely disabled right now and basically bedridden. I only go to my appointments. I RARELY go anywhere else. I made a list of all of the tasks that aren’t really doable for me and I wanted to see if anyone had any ideas as a little ‘replacement’ so I can complete them too and contribute as much as I can. I know I’m supposed to be focusing on my healing (I just got out of the hospital a week ago) but I love love love to help others.

So I made a list and if you guys have any suggestions as a substitutions, It would so appreciate it!! (I also attached the goals that I have left just for easier reference!

  1. With the volunteer to help a friend out I’m really tied on this one. I used to love helping my friends clean their rooms and jazz like that but unfortunately I’M the one who needs the care and help right now :/
  2. Okay holding the door open for someone: I feel like this just sounds silly. But like I’m the one everyone holds the door for. I really need a substitution for that one.
  3. With letting someone go in front of me in line, I don’t quite know what to do for that. Like maybe at an appointment? I have a neurological disorder so my young body looks like garbage so everyone always wants to help ME. I don’t go to stores really at all sadly (I miss that😢)
  4. Donating to a cause that matters to me, I don’t have a dime to my name so maybe donate a few things to the food pantry? Signing a petition? I wish I could give blood but I think I’m too sick right now; I’d love to though.

This feels like such a silly post and questions but I’d really like to accommodate to achieve giving my helping hand this month :) ANY advice anyone has would be so appreciated!! <3

Thank you Finch friends,
From Lil Purp and Me :)

Edit: everyone commenting so far is literally so kind I appreciate y’all. I have a neurological disorder so these things are just a bit more difficult for me right now to to try to sort through and having everyone’s ideas is SO helpful so sending my love and thank you y’all are so awesome!

u/ashtraylover — 2 months ago
▲ 1 r/Cameras

Questions about Canon Elura 100 from 2006!!

Hi there! I got a Canon Elura 100 for my tenth birthday. I’ve had it for over a decade in a case (sheesh I feel old) anyways, I have a couple of questions regarding getting her up and running again. My camera seems to be in perfect preserved condition. I apologize for silly questions, I’m a bit too young to know these things myself.

  1. I lost the battery pack charger for the camera. I still have the battery that was in it when I got it. I don’t know, do they expire?

  2. Where am I able to find/get a battery pack charger for my specific camera? I know it’s very old. I added images of the battery it had in it.

  3. Where can I buy a new battery at, if they do expire?

  4. Where am I able to buy the cassettes that go in it (I added a picture of those as well)

  5. It also has and SD card inside that has 16GB on it, how do I find a reader for that that computes to more modern times?

  6. How would I go about transferring what IS already on the cassettes to modern media?

I know this is a gem to have and I would love love love to be able to use it. Thank you for reading and any advice is very appreciated!!

u/ashtraylover — 3 months ago
▲ 6 r/FND

Hey y’all, rather than Google, I’d rather ask my community who knows best: do you have seizures when you get into pain/severe pain? And second question to that, are your seizures worse when your body is in pain?
Personally for me, bowel movements are the actual bane of my existence so I usually have a seizures when I collapse in my bed after leaving the bathroom. Gotta love it. Same with when I’ve pushed my body too hard for the day and my pelvis, joints, legs, are killing me. The seizures keep a comin when my body feel like garbage. I wanted to hear everyone else’s experiences. Wanted to learn and feel less alone✨

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u/ashtraylover — 4 months ago