u/chronicallyiconic7

What do you guys wish people knew about ambulatory mobility aid users and dynamic disability?

Was pondering some interesting things I’ve experienced as a chronically ill individual and wondering what others have experienced.

Here are a few of mine:
- Being absolutely baffled as a nurse rolled me into the OR because it was SO BRIGHT. My brain thought it would be like the low lighting you see in most medical shows.
- Mailing my own blood.
- Getting the same exact medical bill from the hospital that was 100% fully paid almost exactly a year later, and the hospital would not give up that I had the full balance due $3k even though I had a receipt…(this is after they tried to bill an insurance that wasn’t insurance they somehow got information for?) they mailed some fake bill with the EXACT same CPT codes and costs and then after I sent the receipt they sent a detailed billing with additional made up information and sent me to collections.
- Reading a book post op while taking opioids and forgetting about it. I had the WORST déjà vu in the theater a year later when the movie was released. The entire move I felt like I’d seen it before but couldn’t quite remember what was next.

What are yours?

For those who are owner training, would love resources for anything that’s helped you. Books, YouTube Channels, Websites! You name it.

Looking to get my prospect this year.

Thanks in advance :)

EDIT: I do have a qualified trainer assisting me. Forgot to mention. Looking for additional resources to go along with.

Has anyone had success using Cromolyn? I’m willing to try if it works but it’s SO expensive.

We tired two OTC high dose Antihistamine types first for cost and it just didn’t work. Did that for two months using Pepsid and Zyrtec twice daily. I still had terrible congestion and sore throat…

Any help is appreciated.