Feeling like I’m falling apart
I feel like I’m physically falling apart and it’s frustrating and upsetting.
I feel like I’ve been really lucky. I was diagnosed when I was really young so we got a jumpstart on finding meds that work for me. For over a decade HCQ worked great for me. I had the occasional flare but I always bounced back quickly. I was active, I’m very into fitness, I have four kids I can keep up with, very labor intensive jobs, etc. my husband has said that he looked at chronic illness different because of how I haven’t let it hold me back.
But the last three months have just WRECKED me. It started with a bad flare. I did a prednisone taper and felt great. As soon as the prednisone was over, the pain and fatigue came back. I told my rheumatologist and he offered another round of prednisone and said we needed to discuss biologics. We’ve agreed on Benlysta home injections. It’s arriving on Wednesday and while im afraid to take it, I’m desperate for relief. I feel like my body is falling apart. I’m tired all the time. Walking is painful. Exercising isn’t enjoyable anymore and it’s hurting my self esteem. I feel miserable. I just need something to work or I’m going to lose my mind.