▲ 14 r/cfs

If you can write longer comments, what is your severity level?

It takes me a lot of time to write even short comments, I am moderate to severe so I think I should still be able to do that, but I find it difficult to put thoughts into words, this is something relatively new to me.

I could write much more a few years ago, but I am thinking now if I have other issues on top of this illness. I've had a lot of stress lately especially in the last few months and that could be another reason.

It makes me wonder if there are people who are severe but still can be quite active online writing longer posts and comments, and people who are moderate or mild who can for example go out but are much more fatigued by cognitive activities, meaning that ME could vary in severity of physical and mental symptoms depending on the person.

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u/colorsoforchid — 6 days ago

Why vitamin B5 and manganese supplemented on the same day make me tired?

Both nutrients help me, but when I take them on the same day I get very drowsy, then I need to wait a day or two for one of them to leave my system to not get this side effect.

The only thing I found that could explain this is that they both support acetylcholine synthesis and anything choline related is currently not my friend, but I'm not sure if that's the case. I take manganese within safe recommended doses and feel best within the upper limit range, but then even 5mg of B5 makes me very tired, while without manganese I can take 100-500mg.

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u/colorsoforchid — 1 month ago

Ten years of battle with a cruel illness and my situation becomes life threatening. Your support can help me make it through the next months and give me a chance to recover.

Hi everyone, I'm severely disabled by a neuro-immune illness that put me out of work for good. I am left on my own without medical support in my country and afraid of becoming homeless. I'm very sick and know that I would not make it outside, sadly I can't work anymore and have very little energy to make it through the day. I wish I could go back to work so much, but any continuous activity causes horrible symptoms that can last for days. This month I'm very short on money for rent and will soon run out of food, I'm already late on most payments.

I am fighting for my life and raising funds to keep a roof over my head to survive. The condition I have is called ME/CFS and the main symptom is extreme fatigue that deprives of all the energy, it makes it very difficult to focus on anything for longer than a couple minutes, and if I do too much all the symptoms get much worse. Even writing this is very challenging for me. I am still able to get out of bed but fear that with ongoing stress and hardships I will lose that functionality. With your help I am hoping to stay housed, visit ME/CFS specialist, find a supportive treatment and survive this very unfair illness.

If you could help it would mean the world to me:

https://whydonate.com/fundraising/help-me-survive-me-cfs

u/colorsoforchid — 1 month ago
▲ 44 r/cfs+1 crossposts

Running out of food and scared of losing my home, please help ❤️

I am moderate to severe with 10 years of ME/CFS, worked as long as I could and now barely surviving. I am scared of losing my home which is the only safe place for me and I have so little energy to do anything. If you could help it would mean the world to me. Thank you ❤️

https://whydonate.com/fundraising/help-me-survive-me-cfs

u/colorsoforchid — 5 days ago