u/cushiegal

Hi friends! My name is Shauna, and I'm a Cushing's survivor. Like so many of you, I know firsthand how challenging the journey can be, from getting diagnosed to navigating life afterward.

I'm also the Cushing's Syndrome Division Consultant for The MAGIC Foundation, and I'm excited to share that we're hosting a conference in Denver, October 16-18, dedicated to people living with Cushing's, panhypopituitarism, and adult growth hormone deficiency.

The conference is designed for patients and caregivers, with presentations from leading endocrinologists, practical sessions on managing life after diagnosis, opportunities to ask questions, and plenty of time to connect with others who truly understand what you're going through.

One of the hardest parts of having a rare disease is feeling alone. My hope is that this conference helps people find community, learn from experts, and leave feeling supported. **Scholarships are available** to help offset the cost of attending, so if finances are a concern, please don't let that stop you from coming. ❤️

If you're interested, I'd love for you to join us. You can learn more at the link below. Please feel free to reach out to me with any questions you may have:

https://static1.squarespace.com/static/6682f2b598cc152598a5fa35/t/6a7b1449d34cf06cbdac8d9f/1786451017476/ACV26+Program+8.11.26.pdf

Hi friends! My name is Shauna, and I'm a Cushing's survivor. Like so many of you, I know firsthand how challenging the journey can be, from getting diagnosed to navigating life afterward.

I'm also the Cushing's Syndrome Division Consultant for The MAGIC Foundation, and I'm excited to share that we're hosting a conference in Denver, October 16-18, dedicated to people living with Cushing's, panhypopituitarism, and adult growth hormone deficiency.

The conference is designed for patients and caregivers, with presentations from leading endocrinologists, practical sessions on managing life after diagnosis, opportunities to ask questions, and plenty of time to connect with others who truly understand what you're going through.

One of the hardest parts of having a rare disease is feeling alone. My hope is that this conference helps people find community, learn from experts, and leave feeling supported. Scholarships are available to help offset the cost of attending, so if finances are a concern, please don't let that stop you from coming. ❤️

If you're interested, I'd love for you to join us. You can learn more at the link below. Please feel free to reach out to me with any questions you may have:
Magic Foundation Conference

2024 GV70 2.5T AWD, Advanced Package (I think)

I literally just got my car back from the dealership after having a faulty ignition coil replaced. That took a month. Now I’m having an issue where my driver’s seat locks into place and won’t move (both while idle and driving).

Additionally I have an undercarriage rattle that sounds like it’s coming from the rear driver’s side. I suspect that’s pretty common.

I’m so hesitant to bring it back to the dealership because it took absurdly long (imo) last time to get it fixed, and it’s the only dealership within 4+ hours. Is there any simple fixes I can do on my end?

I have a *lot* of medical problems, like an obnoxious amount and most are things that I’ll have for life.

One of my lower priority medical issues is kidney disease, stage 3B. My kidneys have been functioning around 40%, my lowest was 25%.

Today my kidneys are in the normal range at 75%! My creatinine and BUN are also completely normal - like a normal person’s normal.

In January when I’d just started working out and eating healthier my kidneys were at 58%, which was already exciting, but today’s numbers just blew me away. The pride I’m feeling in myself in making this happen is probably over the top, but I was looking at dialysis within the next decade and I think that’s not my future any longer.

I’m 55 years old, and have had everything from brain tumors to needing all optional parts removed. I don’t have adrenal glands, so I need to take steroids daily. I had several heart attacks. I had labrum tears in both hips and both shoulders. If I can do this, I believe anyone else similarly motivated can too. The first step is always, always the hardest but you can do it!