u/discombobulate92

Hi!

So, they suspect that I have SLE or MCTD due to my symptoms and ANA pattern.

My issue is that they can’t diagnose until all boxes are ticked and I don’t know when that will be. I’m currently in a flare that has been lasting for a year now. Rheumatologist, immunologist, neurologist and GI specialist are all treating different symptoms. I just really want to be able to move my body more but my joints are killing me.

It’s my shoulders and knees mainly. However, it cannot be seen from the outside and my inflammation blood markers are fine as well. They did find bursitis in one shoulder about a year ago (without being able to see anything from the outside). I had steroid injections, which helped my shoulder until it didn’t anymore.

Rheum won’t do more imaging due to it all looking fine from the outside but the pain is only getting worse (and spreading tbh, wrists, fingers, elbows, ankles and hips) and keeping me up at night.

NSAIDS are horrible for my stomach so I can’t take them when I need them. Diclofenac gel it is.

Is or was anyone in a similar situation and what did you do? I just want to move my body so bad.

Thanks!

Hi!

I’m looking for a place to buy chickpea flour but am struggling. Does anyone know where to get some in the Netherlands?

Thanks!

I’m looking for a portable BT speaker, best quality, low price.

It’s meant for our back room as a little bit of music from time to time but also for our wedding. I will be walking down the aisle to a song and I need it to be at least of decent quality. We listen to mainly pop, rnb, metalcore, hardcore, rock and pop punk.

The room we get married in houses about 50 seated people, so it’s not abnormally large.

I’ve seen JBL charge, Soundcore and Tribit been praised a lot.

What would you recommend for sound?

Thank you!!

Hi all,

I’m on the long road of getting diagnosed with SLE (for now my medical files say “suspected SLE/MCTD”).

One of my silly symptoms is chronic candida esophagus infection (and candida infections on multiple places on my body but that’s a lot more manageable to me).

My rheum seems to think that the candida infections are completely separate from my other symptoms and an immunologist is looking into genetic causes (genetic testing done).

To me, these infections started all around the same time as my other rheumatic/photosensitive symptoms, which makes it odd to me that they would be unrelated. They flare up when the rest flares as well.

Anyone else with a diagnosis/suspected SLE having a lot of trouble with candida overgrowth?

Thanks so much in advance!
(Any medical articles etc are super welcome for me to take with me to my rheum, so incredibly helpful)

Hi!

I love wearing all sorts of headwear but i struggle finding nice caps that truly fit my head.

I need low profile recommendations. I currently love wearing my dickies hardwick cap as it fits nicely. I usually struggle with caps falling over my ears, ideally I’d like them as short as possible.

Anyone with similar issues and has found a true fit?

Thanks!