u/dumpsterfire7625

Discussion: What is your opinion about “Disabled” or “Person with a disability” ?

Just recently had a training for work that said most people find “disabled” offensive or derogatory, but I’ve always been “offended” (or I guess irritated) by the “person with a disability” description. lol, just wanted to hear from everyone, what do you prefer? Do you care? Lmk

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u/dumpsterfire7625 — 9 days ago
▲ 4 r/lupus

What does your work schedule look like?

Hey everyone, I have UCTD with slightly elevated ds-DNA (rheum thinks it will develop as lupus). I’m 20 and in college, currently working a part time job in retail. Right now I’m at about 4-5hr shifts in the evenings, and it’s relatively manageable with the help of meds but I’m not making the money I need to be making.

Any other young college girls (or guys) have any advice for how to manage being chronically sick and disabled while needing to pay bills and eat? Or anyone who has any advice, it would be much appreciated :)

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u/dumpsterfire7625 — 9 days ago

Hidden Disability, House/EDM show, worried

Hey, I’m going to a show tmrw and I’m worried about my seats. I have rheumatoid arthritis (and some other conditions) but I’m a 20y/o college girl and I do not “look” disabled — This will be my second concert at red rocks (first was literally 2 weeks ago) and I bought my ticket before I knew the accessible seats weren’t strictly for wheelchairs, so I have GA unfortunately.

I do have an ADA placard but since my seats are GA I’m worried that the staff will think I’m not actually disabled and maybe give me a hard time about parking. I’m also worried that I will have a hard time in GA, not sure how crowded it will be... etc. Just looking to hear from others with invisible disabilities and what to expect.

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u/dumpsterfire7625 — 13 days ago
▲ 1 r/chiari

Hi again, I just got diagnosed after an MRI on Saturday. Idk how may mm, it just says “greater than 5mm with crowding” on my test results. Had a short phone call with my neurologist on Monday confirming diagnosis, but she can’t get me in for a full appointment until 5/14. So I’m going a little crazy, pretty anxious.

If you had or are having decompression surgery:

What made your doctor suggest surgery over just symptom management? And how many mm were/are you?

Does it matter how many millimeters you’re at if you’re symptomatic and you have crowding?

Sorry if these are dumb or overkill. I’m just trying to get a better handle on what to expect or prepare myself for. I’m only 20 years old and in college. This is just a lot to take in.

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u/dumpsterfire7625 — 22 days ago