How realistic is it to "Exercise four times a week for about 30 minutes with heart rate elevated to 80-85% of peak heart rate"

Specifically I'm referring to all those SPARX studies/results that show that intense exercise leads to slow progression of PD. Unless you're an athlete or in very good shape, how realistic is it to expect at 50-70 yr old to sustain such intensity for half an hour? (I'm 59) The discouraging aspect is when you read the results that show that "moderate" exercise doesn't seem to affect symptoms. Am I reading the results wrong? I'm asking coz the real question is: How do you get beyond the mindset that, if I can't reach an intense level, what's the point? And yes, I know there are other benefits to ANY kind of exercise, but I feel like I'm spinning my wheels (pun intended) here, with questionable benefits awaiting. I won't stop cardio & weight training & stretching, but any added input will probably help my motivation. I feel like I'm trying to get a picture of Bigfoot. I want someone to tell me he's not real so stop trying haha.

[For reference, I'm physically able to jog slowly, was doing a Run/Walk/Run program till I sprained my back, now am trying incline treadmill walking, I do strength training 2-3 times a week, & am trying to force myself to do more stretching. I also do Nintendo Switch boxing. But running/walking til I am "unable to talk in complete sentences...?" Not so much.]

I've gotten several emotional boosts from reddit (surprisingly!) so that's what I'm hoping for here!! TIA!

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u/fireworks1985 — 3 days ago

Earbuds not charging in one location, revived in different place!?

Earbud charging mystery: thought they were dead but came back to life later, how? On vacation I saw my earbuds case showed a decreasing percentage after a couple of days. I tried to charge them with 4 different cords, plugged into different situations: via usb, into multi charger, into a plug charger thing, nothing nowhere! I thought, well cheap Amazon device is dead. Came home, plugged it into the same kind of charger as before, bam, it charged fine!! Was I vacationing in the Burmuda triangle? Any theories? Just curious….thanks

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u/fireworks1985 — 1 month ago
▲ 9 r/Parkinsons+1 crossposts

Theracycle vs Regular recumbent bikes

That's it, in the title: What's the difference between a $5k Theracycle and a 200$ recumbent bike from amazon? What does "forced" mean? TIA!!

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u/fireworks1985 — 2 months ago

Levodopa On/Off Time clarification

i know that when you're medicated with levodopa, (i'm taking the "regular" rx, not extended release) your symptoms are meant to be suppressed, ideally. then when the meds wear off, the symptoms may reappear. but when i forget to take my meds, i don't feel ANY different than when i take them every 4 or 5 hrs...?? i am 59 y/o F, diagnosed less than a year ago & medicated for about half a year. i'm just wondering why i don't see any return of symptoms even if i only take the levodopa twice (instead of thrice) daily. [symptoms prior to medication=slightly altered gait (can't be any more clear than that, it just felt "weird" when i walked); slowness of movement (i ate REALLY slowly); stiffness (like when moving out of a corner i took many small steps instead of just walking out like a normal person); lack of arm swing when walking; & it was hard to brush my teeth] but when i miss a dose, i still can brush my teeth fine & don't notice any change in gait, my arms swing fine. husband said, Maybe the effects of the meds are cumulative? but i told him NO that's not what i keep reading. am i mistaken? i almost want to stop the meds to see what i notice but i think my neuro wouldn't like that! any insight is welcome! TIA

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u/fireworks1985 — 2 months ago

Still in denial?

diagnosed in august of last year, 58 y/o then, now 59. cried at diagnostic appointment, got 2nd opinion (& confirmed with dat scan) & after a while thought i was getting close to accepting my "new reality." but i'm still having problems believing that this is my future. i'm grieving the loss of the future i was looking forward to, retiring as a somewhat fit & healthy "older" lady. now i'll be a less fit...shaky? stiff? falling? older lady. neurologist called my case "mild" now, & said it WILL get worse but there's no way to predict how fast nor how bad symptoms will progress. i keep reminding myself that i was gonna get less mobile & old lady-ish anyways (due to just plain age/gravity/decrepitness) AND that i shouldn't assume the worst AND that i should enjoy the fact that right now i'm not shaking, i'm not stiff (after starting levodopa), no one could guess i've got this. but in the dark moments it's very hard not to worry. i'm prone to pre-worrying anyways, so here we are. and yes, i know that there's no value in assuming the worst, & i know i have to exercise, & i know stress makes things worse. what's my point here? there is no point! (see the orange bar above, it says rant!) i'm just putting this here coz i don't know anyone with PD & i can't keep complaining to my husband, i feel bad enough for him. to be clear: i'm only seeking commiseration, as misery loves company. thanks for listening! sorry for rambling...

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u/fireworks1985 — 2 months ago

Fatigue

Past experience tells me I should lead with this: I'm not seeking advice (thus, not flaired with "Questions/Advice") just asking if this is typical. I know, I know, everyone is different. Having said that: About 4 or 5 pm of a work day I feel like I could fall asleep in my Archie Bunker chair. I probably shouldn't sit in a recliner then, but...I think I could go to bed w/o dinner & just fall asleep if I let myself. Now, at my age 58F, I play that fun game of: Is this PD? Or menopause? Or just old age? (Or am I sick!?) Doesn't help that aforementioned work day is teaching 2nd grade. Isn't fatigue a symptom of PD? I read that your body gets tired due to all the movements, but I have very minimal physical symptoms--no tremors, just slow moving w/o meds & occasional (usual night time) mild spasms so...? Anyone with me? Just asking coz you're the only people with PD that I know!! (Have not "come out" yet IRL) THANKS!

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u/fireworks1985 — 3 months ago

Guilt when I don't exercise enough

The ONE common thread when researching PD is that patients MUST exercise if you have any hope of coping with symptoms. So, after the initial shock of the diagnosis, I started doing so full speed ahead. But two things are bugging the heck out of me: 1) I'm 99 percent sure I'm NOT exercising (I run/walk/run & elliptical) at the recommended 80-85% heart rate AND 2) When I don't exercise at all some days due to fatigue and/or apathy I feel VERY guilty, like I'm not fulfilling my required treatment. Not looking for advice, as I know the solution is: JUST DO IT, I guess I'm looking for commiseration ,,, does anyone else feel like this sometimes? TIA!

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u/fireworks1985 — 3 months ago