Symptoms .. anyone ?
All Pots Symptoms ?
Since developing Long COVID/dysautonomia, I’ve been experiencing very strange and difficult-to-describe cardiac sensations that are not simply “anxiety” or classic palpitations.
I often feel squeezing, pressure, spasms, bubbling/fizzing sensations, or brief “electrical” surges in my chest and around the heart area.
Sometimes it feels like the heart, vessels, or nerves are struggling to coordinate properly or feel clogged or maybe nerves are struggling....
These episodes can happen both at rest and during exertion.
Deep breathing can feel extremely uncomfortable, almost as if something inside the chest is under tension or pressure. I also experience orthostatic symptoms (especially when standing), shortness of breath, dizziness, head pressure, nausea, and strange nervous-system sensations that are hard to explain... plus vision symptoms expecially flash white dots every now and then.
At times the sensations are accompanied by:
sudden adrenaline-like surges
tingling in the scalp/head, neck ,throath pressure and squeeze
chest tightness or fluttering
abdominal gurgling or pressure
tinnitus and ear pressure
feelings of internal instability or weakness
Occasional skipped beats
Despite how alarming these symptoms feel, repeated cardiac investigations have so far been reported as normal:
multiple ECGs
echocardiograms
Holter monitors (including long-duration monitoring)
exercise/cycling stress tests
Heart Mri with contrast
Brain Mri
Multiple ultrasounds
Countless bloods (including cytokines and those fringe ones plus Autoimmune etc...)
Anyway, normal sinus rhythm has been confirmed multiple times, yet the symptoms remain very real and debilitating.
Is any of this familiar to you guys ?
Just trying to make some sense...