Advice Needed For 14 yr old Daughter with Pots (UK)
My daughter lives in the UK, has just turned 14, and has been suffering from symptoms of POTS for over a year now. It reached a crisis point last year when she found every day difficult and started missing lots of school, which resulted in threats of fines and court action, as well as a horrible situation for my daughter, who was getting little support. She was referred to a cardiologist who fitted her with an ECG for the weekend, and they essentially referred her back to our local GP as they had no tilt table facilities.
Our GP is supportive, but it took me going in and emphasising how much of an impact this was having on her life and suggesting trying beta-blockers (propranolol) before any measures were offered. Since she has been prescribed this medication, she is doing much better but still missing some school. The school won't accept the GP letter as proof of having POTS and have told us we they need a diagnosis from a specialist.
Whilst it might be a slight struggle, we will find the money, but we live remotely, and I was hoping someone here might have a recommendation of a UK specialist who may be able to help us.