u/iquitelikecatss

TLDR at the bottom

hi i know a lot of people post here when things are bad and everyone here is in a similar boat, but i dont really know where else to turn and i trust people with lived experiences. hopefully someone reads this but i understand if not.

i have spent my life overcoming health issues. growing up i was always pretty sickly but things became rapidly severe when i was 11 and i was pulled out of school, couldn’t get up most days, couldn’t keep anything down etc. eventually with a WIDE variety of treatments i was pretty healed by the age of 15 but always had low body weight, fatigue, low appetite etc. anyway, fast forward to when im 19 i start getting rapidly sick again.

this time, im diagnosed with GERD and gastritis (now on esomeprazole), gastroparesis (3 procedures and now on domperidone), endometriosis and adenomyosis (excision surgery incl. tumour removal, and yasmin). i was feeling a lot better for a while with all the medication. i got back to a healthy body weight, gained muscle, was outside all the time, exercising a lot, back at uni, socialising etc.

but i have been struck with horrific fatigue. i have always been super driven, disciplined and hard working; despite a lot of early life struggle i got into the top university in the southern hemisphere and sit around the top 3-5% of my cohort (BSci). but i am literally at the point where i feel like i can barely function because of this fatigue and i don’t know what to do. im trying to do everything right.

everything has been investigated; mris, CTs, X-rays, extensive blood work (iron, B12, nutrients, thyroid etc. all normal) and it doesn’t seem to have a cause. i’m dreading that it could be me/cfs. however i am awaiting an EEG for potential epilepsy have i have idiopathic myoclonus and since i have a family history of epilepsy, they’re wondering if it could be that.

TLDR: i want a way to achieve all of my goals, work hard, live a fulfilling life despite this debilitating fatigue. i desperately want to be healthy and will do anything. please give me any advice you have. thank you for your time.

TLDR at the bottom

hi i know a lot of people post here when things are bad and everyone here is in a similar boat, but i dont really know where else to turn and i trust people with lived experiences. hopefully someone reads this but i understand if not.

i have spent my life overcoming health issues. growing up i was always pretty sickly but things became rapidly severe when i was 11 and i was pulled out of school, couldn’t get up most days, couldn’t keep anything down etc. eventually with a WIDE variety of treatments i was pretty healed by the age of 15 but always had low body weight, fatigue, low appetite etc. anyway, fast forward to when im 19 i start getting rapidly sick again.

this time, im diagnosed with GERD and gastritis (now on esomeprazole), gastroparesis (3 procedures and now on domperidone), endometriosis and adenomyosis (excision surgery incl. tumour removal, and yasmin). i was feeling a lot better for a while with all the medication. i got back to a healthy body weight, gained muscle, was outside all the time, exercising a lot, back at uni, socialising etc.

but i have been struck with horrific fatigue. i have always been super driven, disciplined and hard working; despite a lot of early life struggle i got into the top university in the southern hemisphere and sit around the top 3-5% of my cohort (BSci). but i am literally at the point where i feel like i can barely function because of this fatigue and i don’t know what to do. im trying to do everything right.

everything has been investigated; mris, CTs, X-rays, extensive blood work (iron, B12, nutrients, thyroid etc. all normal) and it doesn’t seem to have a cause. i’m dreading that it could be me/cfs. however i am awaiting an EEG for potential epilepsy have i have idiopathic myoclonus and since i have a family history of epilepsy, they’re wondering if it could be that.

TLDR: i want a way to achieve all of my goals, work hard, live a fulfilling life despite this debilitating fatigue. i desperately want to be healthy and will do anything. please give me any advice you have. thank you for your time.