r/chronicfatigue

Ive had a sleep study done with hospital equipment applied by the hospital. No sleep apnea, no sleep disorders, just "low quality of sleep" has been found.

I always need about 10 hours of sleep (I'm young adult and have chronic fatigue and chronic burnout)

Normally for me it goes like this:

• 10 hours optimal
• 9 hours is ok
• 8 hours I wake up very noticeably tired and I feel it the whole day
• 7 or less hours im just a wreck, doing nothing productive the whole day

So normally when I sleep between 9 and 10 hours I wake up completely fine for however longthat may last into the day, but now recently even sleeping 10 hours seems to be not enough anymore, it doesnt make me wakeup feeling restored at all, takes me like 10 minutes to do all the movements for getting out of bed...

What could be this be?

I'm AFAB, I've always struggled with gender dysphoria so I decided to try Testosterone (its been about 3 months) Unexpectedly it cured my fatigue as well as some other issues.

I have no idea what's going on and I would honestly rather die than try to discuss it with doctors / figure out what's going on. It's just so much easier to forget about it and enjoy being able to live for the first time in years.

Problem is, I'm not sure what my identity is or if I'm comfortable with changes such as facial hair. It seems unwise to me to transition genders when I'm not sure what my gender is, and I'm afraid I'll regret it later in life, but obviously I don't want to stop HRT.

Not sure what to do here

I have a cold and I can't function and I'm sad and want to complain. I'm so so nauseated even with a medication specifically to stop it. Can't do anything I caught it from my mother and she was still doing stuff with it and I can't. Boooooo booooooo make it go away boooooooo. ☹️☹️

Here in the Philippines, doctors refuse to treat me if i won't exercise. If i just tell them i exercise, they wont believe me so I will take videos of me exercising and wear a watch 24/7 even if its itchy. I've been to every hospital and doctor/specialist and they all say the same

My family also said if I won't take walks, they will grab me by the collar. I can't leave because I will be homeless and have no food to eat. There are no ambulance services here too. But I'm still lucky I'm not beaten with a hanger or a belt or if I become disobedient, they wont let me kneel on mung beans compared to other families.

Walking is so difficult withh plantar fasciitis too and my toes are turning black and my feet red and inflammed when walking.

So I've been having chronic fatigue since I wus 11 or 12 I'd say. Around that time I got really depressed and almost completely stopped going to school (my dad would try force me to) but I would literally lock myself in the bathroom and fall asleep on the floor im not joking. Not because i wanted to be a nuisance but because i wus THAT tired. My family blamed my older brother saying "you're just following in his footsteps" Because he dealt with even worse depression than me, nearly completely bedbound.

Through the years with medication, behavioral hospitals and working on myself I have gotten so much better. As of now im diagnosed with BPD, C-PTSD, ADHD, and autism....But I still will spend entire days in bed, miss my responsibilities, my own college classes that cost money. I've never had a job and I dont think i can work a full time one. Im 19 now. When I go to bed i tell myself "you WILL get up tomorrow. You have to. Just fucking do it." And 60% of the time I will get up. But 60% isn't nearly enough i need to get up everyday.

All i can ask myself is "why do u do this yourself?" And the only response is " I wasnt exactly trying to" well then...try harder! But what does it matter if i do, even if i have a good week ill always go back to failing again.

I dont feel depressed but its like my body does if that makes sense. I have the mental power, I mean my mind is a constant chatterbox, just irritating me all the time with thoughts thoughts thoughts thats all there is but barely any action. While my body just wants me to relax. But all I do is relax! So why dont I actually feel...relaxed idk.

Yall know that sleepy feeling when your sick with the flu or a real bad cold? Thats the type of feeling I get when I wake up. Like yeah I just woke up but I can sleep for another 12 hours tbh.

But also I've read that CFS is incredibly disabling so I probably dont have it in reality since I can get up a little more than half the time. I wus just wondering abt it since my fatigue has been a constant for so long. And im...tired of it loll. Caffeine doesn't work, i can fall asleep right after chugging a energy drink. Sleeping more doesnt work, just makes me want to sleep EVEN more.

What else can I try? Is there any suggestions?

I’ve been dealing with really bad fatigue for a long time now and I still don’t actually know what’s wrong with me. But I’ve started to understand that it seems like it’s more than just bad quality sleep or mild sleep apnea. It took me so long to get to that point too. So many doctors appointments, different professionals, tests, trying different things, etc. And honestly I feel like I’ve had to figure most of it out on my own.

It’s been really hard trying to explain to people what’s happening when I don’t even know how to explain it myself.

I’m also just really lonely. I’ve lost friends and I don’t really have many friends anymore, or at least not many close friends. And even when I do have people I care about, I can’t really hang out with them or do things with them because I’m so exhausted.

The friend who understood me the most and who I used to hang out with the most is Elliot. He’s actually still here right now, but he’s leaving tomorrow, and I think that’s probably going to make things a lot harder. He’s been the person who’s understood me the most through all of this, so knowing I won’t be able to just hang out with him anymore is really fucking difficult.

My mum has only recently, after quite a long time, started to actually believe me and understand that something is genuinely wrong. I’m really glad she does now, but it still feels pretty shit.

A big part of this is that when the fatigue is really bad, I basically can’t even consume new things. I end up watching YouTube videos or shows/movies I’ve already seen 100 times because that’s all my brain can handle. It can be comforting and it’s better than nothing, but I’m really, really getting sick of it. I want to actually experience things and enjoy things again.

I think I’d just really like to talk to someone who’s in the same boat. Someone who actually knows what I’m talking about without me having to explain everything. I’m not looking for anyone to diagnose me or anything, I have an appointment with a psychologist in two days. I’d just like to talk to people who understand and maybe feel a little less alone.

Idk. It just sucks. There’s so much suffering that comes with this and sometimes I just wish I had someone who understood what it’s actually like.

I’m (29F) suffering from what I believe is post-viral fatigue but posting here since I’m getting close to 6 months and am at my wits end.

I’m sleeping 8-9h per night, healthy diet, walking/moving a lot, and healthy person overall, yet I keep ”zoning out”, having brain fog, falling asleep after being up 2h, feeling lethargic, low energy. I don’t feel like my normal self in any way.

This fatigue has happened twice to me over the past 2.5 years, the first time it happened after a severe flu and lasted 2-3months. This time is came after a little cold combined with a lot of stress in my professional and personal life. It’s been going on for 6 months next week.

Over the months I have been trying to figure out what, despite knowing this isn’t ”curable” per se, makes me feel better, from vitamins, exercise, sleep, diet etc. I’ve discovered that nothing really does. But a few things ”wake me up” for a little, like taking a shower, walking, and simply eating.

What about you? What either helps you feel better or ”wakes you up”, even if just for a moment?

I’m a mom of a 2 year old (she usually sleeps through the night), I get up around 8-9am every morning. I wait 60-90 minutes after waking up before I drink coffee in the mornings. I am a type 1 diabetic and control my blood sugar with insulin in a pump, I also take Celexa for my anxiety. Usually by 12pm I am exhausted and have to take a 2-3 hour nap, which I hate because that’s when the 2 year old takes a nap and I want to use that time to do chores. The chores pile up often because I literally cannot stay awake. Context: I sleep 7-8 hours a night. Someone help!! What am I doing wrong?

How did you realize you had PEM vs being very fatigued? I’m fatigued all the time and I read that PEM might show up days afterward. As someone who rarely has a good health day, I’m trying to figure out how one would delineate PEM from the fatigue felt on a daily basis. I’m just nervous because I’m feeling like l haven’t been able to do nearly as much as I used to and afraid I’m overtaxing myself but don’t know how to identify or track PEM.

Is there a connection between ME/CFS or chronic fatigue !symptoms!, and wanting to eat sugar all the time? I have chronic fatigue symptoms (and suspected ME) and I could legitimately be munching on chocolate or candy all day, every day, and that’s what my body seems to want. I gotta assume it’s a metabolic thing, because to my understanding simple carbohydrates convert into energy quickly.