Coping With Diagnosis
I, 30M, just had my Anti-Jo1 come back positive.
I've been having intermittent fevers over the past 1.5 years with no other symptoms. Recently started having wrist pain as well as a burning sensation on my skin when sitting still.
I have my rheumatologist appointment tomorrow to go over my results and from what I've read I assume we'll need to do a chest CT, lung capacity tests and maybe a muscle biopsy.
My Anti-Jo1 was borderline last year, but since two reumatologists were pretty dismissive about it, I didn't really dig into the diagnosis that much. However, now that I'm positive, I've been reading up on Antisythetase Syndrome and the other possible myositis-related conditions.
The last week has been hell. I've lost 5kg in 7 days, have zero to no appetite and no will to do anything. Every minute feels like an hour. I tried watching movies, reading books, working, but my mind keeps going to what's ahead of me and the limited life I'm going to have to live.
Nothing has really changed too muhc physically and I was in the gym 5x per week just a week ago, but the mental stress of this is killing me. I've started researching assisted suicide companies in Switzerland for crying out loud. Doesn't help that my gf is out of the country for almost a month so I'm stuck home alone. Haven't been going out because I suspect UV exposure is a trigger for me so I'm sitting here in isolation.
I also had cancer back when I was 18 and kinda felt like I'd done my share of suffering. Can't help but have "why always me" thoughts rn.
How did you deal with your diagnosis? I'd appreciate whatever tips you have...