u/matchy_blacks

48F. Surgery in 2002 to remove my right ovary, right Fallopian tube, 10cm cyst on ovary, and Stage 4 endometrial growths. Growths were found throughout my abdomen, including on and into my colon, on my bladder, on the sacrospinus ligament, and festively scattered around the “mass of scar tissue” surrounding my internal organs generally.

Before surgery, every couple of months it felt like deep penetration during sex was hitting the right ovary and causing pain. At first I thought it was just pain from cervix stimulation, but it was too far out toward my side and in exactly the spot that hurt when I ovulated. I _thought_ that after having the ovary and cyst removed, the pain would also go away.

Nope, still here. I still have a fairly regular period and the pain I associate with ovulation is still on my left. I do _not_ experience pain on my left side during sex.

I think I read that you can have bits of ovary left behind after an oophrectomy, so maybe those bits are there are flare up on a monthly cycle.

Thoughts and experiences welcome!

* this is the phrase my gynecologist used.

Soooo my neighbors recently got a 2” slack line that they’ve set up in their yard, low enough that if I stand in the middle, I’m 4” off the ground. It’s fun, but I _suck_ at staying on it. I can stand up for all of five or six seconds before I fall off, and this is with my arms out and my gaze up and forward. Walking is not happening at all.

What should I do to improve without building bad habits?

Some options I can imagine —

- Just keep falling off and getting back on (current approach)

- Use a secondary line

- Use a pole held vertically to push myself back up if I tilt too far to one side

- Wear no-lug shoes like Chucks or Vans

- Something else?

I worry that using a secondary line or a pole could throw off some essential prioperceptive sense or something, so just wondering what to try first. I learned to balance on a Rev board by starting near a wall and just poking it with my fingertip to reset my balance if I started to fall. I’m up to ten minutes on it on a good day, but I can keep my feet more horizontally offset on it than I can on the slack line.

Thanks!

Is there anyplace in town where I can vacuum the car without also getting a wash? I could swear I’ve seen a couple but can’t remember where. Thanks!

TL; DR: The title describes me. If it also describes you, were you able to get on systemic HRT? I’d love to hear about your experience.

My story/situation.

I’m 48 and still having relatively regular periods _but_ have definite peri symptoms. I’m also short an ovary after endometriosis surgery in 2021. Vaginal estrogen cream helps a great deal with preventing UTIs and incontinence, but it doesn’t address other problems. I would like to start systemic HRT, but neither my PCP nor gynecologist will prescribe it before someone at the high risk cancer center signs off because my mom had breast cancer before menopause….and they’re booked through September.

I’m really struggling with anxiety, insomnia, lack of task initiation, and low libido. I’ve been in treatment for depression, anxiety, and ADHD for years and those things were managed with meds and lifestyle…until this year. My psychiatrist thinks I should give HRT a shot bc it took so long (like, trying twenty drugs singly and in combination over eighteen years long) to find the right drug combo. That makes sense to me but I feel rotten. I’m asking to hear from others to give me a sense of what to expect.

A bit more about the family history —-

My mom had breast cancer at 45, before she reached menopause. it was found quite early and, after surgery and five years of tamoxifen, she went into remission. She says that she continued to have a period until she was 53, but her memory is somewhat shaky owing to some early dementia symptoms.

My mother’s sister was diagnosed with breast cancer at 73, but we are not close so getting more details is tough. My father’s mother was diagnosed with ovarian cancer at 91 and died of old age at 92 without intervention for the cancer. There is no other breast, uterine, ovarian, cervical, or other repro health cancer in my family.

Our org submitted the 1023-EZ in late November and so far…nothing, not even a request for further info. We do not appear in TEOS.

Has anyone submitted around the same time (or more recently) and been approved?

Details and what I’ve tried to get info are below, thanks for any insight or encouragement.

1. I know the IRS is hella understaffed, so I’m just trying to get a realistic answer about timing rather than the timeline posted on the site.

2. We’re almost to six months since submission. Searched this sub, it seems like in late 2025 approvals were a couple months, so I’m asking again.

3. I tried to submit our 990 marked “pending,” and our application appears in the IRS location that -should- let me “add it to cart” and fill out the 990. I click on the link to our app to add it and nothing happens.

4. I tried using different browsers to do the above with no luck.

5. My overly optimistic self has phoned different days of the week and at multiple times of day, and unsurprisingly has never gotten through. Lol for even trying, I know.