u/meg5675

Hi so I just started Ozempic 0.25mg last week and took my second shot today.

I am feeling slightly discouraged because I have heard many stories about how within the first week people seem to drop a lot of weight. Or some people have called it losing “inflammation” in the body.

I don’t think I’ve noticed a single difference in my body or on the scale. I know it’s early yet and everyone reacts differently to certain doses, but I feel like I have been consistent with a deficit so far.

Are there people who just don’t lose weight despite a deficit? I know this post might come off as impatient, but I am more so curious about how I can emphasize the effect of Ozempic in my body.

Let me know, thanks.

I started a GLP-1 today. Since having pots I have been unable to exercise and have gained a ton of weight. It wasn’t a decision I made lightly, but I have attempted calorie deficits as well and nothing has been working for me.

Ive heard that for some people since GLP-1’s can be anti inflammatory, they end up helping pots symptoms in some cases. Does anyone know how valid this is?

I’d love to hear if or how GLP-1’s influenced your pots if at all.

Thanks!

Hi.
I have been suffering with POTS for about a year now and I am just recently figuring out that I may have some sort of inflammatory condition as well. I still have to get tests to figure out whats causing all my symptoms if anything.

All my life I’ve had chronic gut issues, most of which I attributed to anxiety and poor diet. I am starting to think it may be more than just that. For the last 4 months I have had on and off diarrhea, really bad allergy symptoms, hives, abdominal cramping, dry skin, flushing of the face and more.

Also during the time when my POTS was developing I gained nearly 30 pounds and despite eating in a deficit the past 2 months have not budged at all in weight. I have had my thyroid checked already and ruled that out.

As much as I know about POTS, I still don’t know everything. It seems though to me like the POTS could have developed because of some other inflammatory or autoimmune disorder going on in the background.

I have some tests coming up to check for celiac, viral infections, autoimmune stuff etc.
I am wondering though, has anyone else’s POTS come on after or because of an autoimmune condition? Or has your POTS developed secondary to another illness you experienced?

Please let me know and if you have any knowledge on this topic at all enlighten me. I have been having such a hard time with my health and need some sort of clarity.

Thank you!!!!!!!

So I have been in kind of a flare up over the last 5 days or so. It’s been extremely hot recently and I know that can contribute, but my hydration and sleep have also been bad.

I have been feeling just super sluggish and like my brain isn’t turned on. It makes it hard to stay hydrated and I think thats what’s affecting my sleep as well.

I just wanted to know, do all these things feed into each other with POTS? Like if I am dehydrated, does my sleep get worse? Or if it’s hot out will I feel more brain fogged than normal?

I just need this streak of feeling sickly to end. I don’t know what to do to help myself. It’s so hard to keep every aspect of yourself healthy and feeling decent when you don’t feel well enough to keep up with it!!!! Sorry maybe this is more of a vent, but I’m just so tired all the time.

Thanks for reading :\

Hi so I 24F and my boyfriend 25M have been together for almost 7 years now. We also both live with our parents at the moment because of financial reasons. For context, I have borderline personality disorder amongst other mental issues. For the first 4 years of us dating I was really struggling to get a handle on my issues and would often lash out and do self destructive behaviours. I also had this habit of making issues way bigger than they actually were, or just making problems out of thin air.

Over the past 3 years or so I have been medicated, attending therapy, and have just been overall a much happier person. My relationship with my boyfriend got so much easier and I was not being an absolute psycho.

Over the last like year or so that I’ve been with my boyfriend I started to notice that he has become very cynical. He seems to hate a lot of things and is overall very negative in regard to people especially. The only joy he finds a lot of the time is in watching media, collecting and playing video games.

Now over the past month things have gotten much worse with his cynicism. His general distaste for people has seemed to gravitate towards me. He doesn’t seem to care or take interest in anything I’m doing. When I see him in person we always have fun and things feel normal. But then later on when I’m texting him he only gives me 1-2 word responses and shows zero interest in what i’m saying. Whenever I want to complain even mildly about something, he doesn’t show interest or says I’m “overreacting”. When I point out that he’s not showing interest he basically says “here we go again” as if it’s something I’m always complaining about.

For example yesterday I said “I’m not feeling good” and he immediately said I was overreacting. To which I replied “calling me dramatic every time i complain about anything fucking sucks to hear”. He replied “Just levelling with you”.

I can tell he’s going through something and after him putting up with me for all these years, it feels wrong to just leave him. At the same time though, if he truly has stopped caring about me then what more can I do? Should we break up? I’m going in person to have a conversation with him about this today. Any help on what to say would be greatly appreciated.

This is mostly a rant, but partly a question as well.

So today I went in the morning to go do my stress test at my electrophysiologist’s place. The two technicians were very nice and helpful and I felt mostly fine, maybe a bit nervous. So they hook me all up and my heart rate is sitting in the 120-130s while im sitting there. Which for me is somewhat normal.

So they get the blood pressure cuff on me and my blood pressure reads at 180/110. I am not officially diagnosed with hyperpots, but I have had suspicions thats I may have it. Though my blood pressure has NEVER been that high especially when just sitting down. So the technicians have to go check in with the doctor that it’s even okay and safe for me to do this test.

They come back in and say I can begin on the treadmill. So I start walking and obviously I am feeling awful and am out of breath. Heart rate is 160-170 after like 3 minutes and blood pressure is a whopping 230/100. I have never in my life seen my blood pressure this high. I can’t take it anymore so I stop it at minute 4 and then sit down to catch my breath. I am extremely dizzy and sick feeling and begin getting moderate chest pain.

The technicians tell me that the doctor is going to communicate with my family doctor and decide if they’re even going to keep me as a patient. Or if they will just send me back to my family doctor to be treated. Keep in mind this is after waiting 5 MONTHS to see the electrophysiologist and after doing MULTIPLE tests with him, including a 2 week holter.

What comes after a family doctor, cardiologist, and then electrophysiologist? If no one will treat me then where am I left to turn to? What more help is there for people with POTS?? I am so beyond frustrated I feel like crying right now.

My chest pain is also back and killing me so if anyone has tips for chest pain, please tell me :(

Hi,
Context: I have had POTS for months now and I have been on many beta blockers that never worked. Now I am on Ivabradine and it manages my symptoms better, but doesn’t fully manage symptoms. My resting heart rate never goes below 78 bpm even in my sleep.

I had a fitbit for about 6 months and I loved it until this most recent update made the heart rate tracking absolutely useless. So now I have an apple watch.

On my apple watch sometimes when I check how my heart rate has been throughout the day, it will appear somewhat normal. Then I will see that a small time frame will read my heart rate as 50bpm and sometimes lower. My first assumption was that the watch was just glitching out and not reading my heart rate correctly. My fitbit had never said my heart rate was ever that low.

My apple watch reads my sleeping heart rate usually in the 85-105 range. All the times my heart rate has “dropped” to 50 or below has been when I’m awake. Thinking back to the times it will read 50, I don’t think I experience any symptoms or notice feeling different.

For someone who always has a high resting heart rate, this just feels really strange. I want to automatically discount it as being an inaccurate reading, but I’m just not sure.

Would you guys chalk this up as being an inaccurate reading on the apple watch? Or is this another symptom of POTS that I could be experiencing? If anyone experiences heart rate drops like this please let me know.

Hi, I am currently wearing a holter monitor given by my electrophysiologist. I’m supposed to wear it for 2 weeks and I am currently on day 6.
I take Ivabradine 5mg everyday for my POTS and I was also advised by my doctor not to stop my meds during the holter monitor test. But as I’m going through this process I’m monitoring my heart rate and noticing that it’s spiking, but only into the 130-140 zone. My heart is capable of hitting the 170’s easily without medication.
So I am just wondering if maybe it might be worth skipping a dose of my heart meds so my doctor will take me more seriously?
I know this might sound stupid, but I have been brushed off by like 3 doctors already and I don’t want this electrophysiologist to be like “meh you’re alright…your heart isnt spiking too much”. Meanwhile I feel like I am dying and have insane orthostatic intolerance regardless.
My heart is resting at like 85-88 and then jumping to the 130s when im moving.

Sorry if this post is all over the place. Please let me know any advice.

Hi so I am a person with hyperPOTS and possible IST (still waiting on holter monitor testing). Since having POTS I have had some pretty brutal chest pain to the point where I am having to stop everything I’m doing to just breathe through it.

I know a lot of people say that when you have chest pain it only becomes serious when it’s “crushing” or when it spreads to your arm or jaw, or has other symptoms alongside it etc.

But at what point do I actually do something about my chest pain? Mine is very short bursts of pain, anywhere from 5-30 seconds and is stabbing or sharp. Do I even get this looked at? I feel like I’ve mentioned this to my cardiologist and he didn’t really seem concerned, but I’m concerned.

Also the pain isn’t usually something minor that I can ignore. I really have to focus on pushing through it and making sure I don’t yelp out in pain lol.

I don’t notice it at any significant or reoccurring times, it just seems kind of random. I am on Ivabradine to help with my resting HR as well, but I had the chest pain before and after the medication.

Anyways I just wanted to know, does anyone else experience chest pain similar to mine? What do you guys do to help the pain and have you gotten it checked out by a doctor?

I am getting so fed up with this illness I can’t take it anymore. Like 6 days ago I was having some intimate time with my boyfriend and afterwards, I got the closest to fainting I have ever gotten. Like nodding in and out and losing feeling in my arms and legs.

Since then my resting heart rate has been over 105bpm most of the day everyday. My spikes are so much more dramatic and I have been feeling like I am about to faint almost every time I stand up. My heart rate in my sleep increased from 85bpm to 95bpm on average. On top of that I have been sleeping SO poorly.

I am having all of these symptoms *despite* being on Ivabradine, which so far has helped my symptoms a decent amount.

Is this new flare in symptoms all because I had sex?? Is that even possible?? I have had sex many times with my boyfriend and I have never had a flare up this bad happen afterwards.

Also for reference I do have hyperadrenergic POTS.