u/messyowl

My psychologist told me that she wouldn’t consider me to be a patient with OCD, but actually someone with OCPD. This has literally never crossed my mind. She points to my anxiety and rigid rules that I follow, justice sensitivity and the need to be in control of things. I can relate to these descriptors but I also would not consider myself a perfectionist at all, nor do I keep things orderly or tidy (my ADHD makes my room look like a teenagers and I’m 31)

I have been diagnosed with OCD since 8th grade and I have been on a medication for it since I was 18. I don’t struggle as much with compulsions but I do struggle with intrusive thoughts and rumination. I have thought I was AuDHD for the past few years, so the suggestion that I have a personality disorder really confused me and now I’m feeling lost. My sensory issues are extreme and I feel very much like I don’t know how to “do” social interactions right but she says she thinks that is due to social anxiety.

Anyone out there with OCPD? Or an OCD diagnosis that was then diagnosed with OCPD? Or OCPD and adhd / autism?

Thanks y’all <3

Hi everyone, I have adhd (possible autism) with pots and hEDS…and other chronic illness.

Do you feel forgotten or left out? I feel like I try to extend myself but it doesn’t really matter. I have a couple friends at my workplace, but I feel like I am closer to some people and then am shown I am not. I feel forgotten and often disrespected, like my authority doesn’t really matter. People get together and I’m left out: even if I feel like i was close to someone. I just feel like I don’t belong no matter how much I try or how much I can mask. Anyone else? 🫂

Hi yall, I have hEDS and POTS and I’m looking for some ideas for helping relieve fatigue. Currently dealing with a heat wave and bad air quality due to the wildfires in Canada. I am drinking electrolytes and limiting my exertion but am still really struggling. Is there anything in particular I that has helped you? Currently I feel like my limbs are heavy and weak and my heart won’t stop racing from the simplest of tasks. Even eating feels exhausting!

A PMR clinic finally accepted my referral and I was diagnosed with hEDS today. I feel so validated but also so confused why it took so long. I was prescribed a muscle relaxer and was wondering if this has helped anyone in the past with their hypermobile pain?

Thank you all for your encouragement <3 I was so devastated when UofM denied me.

I think my long-term chronic pain is related to HSD or hEDS but years ago I was diagnosed with fibromyalgia. I have been falling a lot due to poor proprioception and went to the doctor today as I really hurt my back and have been dealing with shooting pain down all my limbs since. She wanted to refer me to PMR, but they denied my referral. I am heartbroken. I think it’s because of my fibromyalgia diagnosis…they keep wanting to put me on antidepressants for my pain…it doesn’t help…I just want answers and I feel so hopeless. Ever since I was diagnosed with fibromyalgia I have been hopeless. Doctors don’t try anything anymore, they don’t care about anything anymore because it’s just fibromyalgia when I have painful subluxations daily and am a 7/9 on the scale. I have POTS, I have ADHD, I have mild scoliosis. I keep bruising so bad and my skin feels soft and I scar easily. I just feel so insane and doctors are never going to help me. I dont know what to do.

I finished 4 months of PT for hypermobility in my hips and shoulders as well as mild scoliosis. I have adhd and POTS as well, and I am medicated for POTS and anxiety / adrenaline I experience from POTS. I have always been a bit of a clumsy person, running into walls all the time, but I feel like it’s been getting worse lately even though I have been exercising regularly to support my hypermobility and POTS. I have fallen 4 times in the past year and it’s caused me long bouts of pain. I feel like my running into things has gotten even worse lately. Has any of you dealt with this while getting older? I’ve been hypermobile forever with chronic pain but I’m 31 now and I feel like my problems have progressed since I had Covid a few years ago.

Thanks y’all <3