7 months the doctors have been searching for a result
▲ 810 r/AskMedical+2 crossposts

7 months the doctors have been searching for a result

seven months i’ve been getting single side pupil dilation now, doctors have run every scan they can without an answer

u/natils — 10 hours ago

fenestration v aneurysm

Hey everyone,
Just wanted to post here to see if anyone can give me a bit of peace of mind while I play the ultimate NHS waiting game.
To give you the quick backstory, over the last 9 months, my left pupil has randomly dilated about 28 times. It always goes back to normal after a few hours. My neurologist did a full physical exam, said it was completely normal, and told me it’s just a harmless migraine glitch affecting my eye. My regular MRI and CT scans were totally clear and showed absolutely nothing pressing on my eye nerves.
But on my recent MRA, they found a 4mm spot at the front of my brain on the ACom artery. The report says it could just be a fenestration, which is a harmless split in the blood vessel I was born with, or a small aneurysm. To figure out exactly what it is, I went in for a CT angiogram a whole month ago.
That brings me to why I'm losing my mind and so stressed tonight. It’s been a full month and there is literally zero sign of the scan on my NHS app. It hasn’t been uploaded, and the neuro department hasn't replied to my emails, so it feels like it's just vanished into a black hole.
From what I've read, that specific artery is way at the front of the brain, and the nerves that actually control the pupil are further back. Am I right in thinking that even if this 4mm spot does turn out to be a tiny aneurysm and not just a harmless split vessel, it physically cannot be the thing causing my eye to blow up?
It’s so incredibly stressful sitting in administrative limbo waiting on a head scan report, even though I keep trying to tell myself the hospital would have called me straight away if it were an actual emergency. Just looking for a bit of reassurance on the anatomy and how long these app updates usually take. Thank you so much.

reddit.com
u/natils — 8 days ago

30f fenestration v aneurysm

Hey everyone,
Just wanted to post here to see if anyone can give me a bit of peace of mind while I play the ultimate NHS waiting game.
To give you the quick backstory, over the last 9 months, my left pupil has randomly dilated about 28 times. It always goes back to normal after a few hours. My neurologist did a full physical exam, said it was completely normal, and told me it’s just a harmless migraine glitch affecting my eye. My regular MRI and CT scans were totally clear and showed absolutely nothing pressing on my eye nerves.
But on my recent MRA, they found a 4mm spot at the front of my brain on the ACom artery. The report says it could just be a fenestration, which is a harmless split in the blood vessel I was born with, or a small aneurysm. To figure out exactly what it is, I went in for a CT angiogram a whole month ago.
That brings me to why I'm losing my mind and so stressed tonight. It’s been a full month and there is literally zero sign of the scan on my NHS app. It hasn’t been uploaded, and the neuro department hasn't replied to my emails, so it feels like it's just vanished into a black hole.
From what I've read, that specific artery is way at the front of the brain, and the nerves that actually control the pupil are further back. Am I right in thinking that even if this 4mm spot does turn out to be a tiny aneurysm and not just a harmless split vessel, it physically cannot be the thing causing my eye to blow up?
It’s so incredibly stressful sitting in administrative limbo waiting on a head scan report, even though I keep trying to tell myself the hospital would have called me straight away if it were an actual emergency. Just looking for a bit of reassurance on the anatomy and how long these app updates usually take. Thank you so much.

reddit.com
u/natils — 8 days ago

CT after MRA and MRI

30F. Looking for some insight while waiting for neurology follow-up.
Symptoms started with intermittent episodes of unilateral pupil dilation (“blown pupil”) which have been transient and return to normal. I’ve also had episodes of buzzing/pins and needles sensations throughout my head, dizziness, pressure/tightness at the base of the skull and neck, and tension-type headaches that often seem related to neck movement/posture.
So far I’ve had:
CT head (clear)
MRI brain with contrast (clear as far as I’m aware)
MRA head in April
I then updated neurology about the newer symptoms (head buzzing/pins and needles/dizziness) and have now received an appointment for a routine CT angiogram intracranial with contrast in June.
I haven’t yet had my MRA results explained to me, so I’m anxious about why the CTA has been requested. My question is:
How common is it for neurologists to request a CTA after an MRA even if previous imaging has been reassuring? Is this often done simply for clarification/thorough vascular assessment when symptoms are ongoing?
Not looking for a diagnosis online, just trying to understand the process while waiting for neurology to get back to me.

reddit.com
u/natils — 1 month ago

i’ve been getting tingling/pins and needles in my head almost daily and sometimes my left arm, but it’s like intense in my head. i was in the shop a couple of hours ago and i had intense pins and needles all round the bottom of my scalp and felt like i was all whoozy. i’ve had an mri and mra and all clear but it really scared me - i put TW cause wasn’t sure what flair was appropriate

reddit.com
u/natils — 2 months ago

i’ve been getting tingling/pins and needles in my head and sometimes my left arm, but it’s like intense in my head. i was in the shop a couple of hours ago and i had intense pins and needles all round the bottom of my scalp and felt like i was all whoozy. i’ve had an mri and mra and all clear but it really scared me

reddit.com
u/natils — 2 months ago