u/nurseinmelb

Does anyone know if they are paper based or using EMR?

Any reviews on working for them?

40 this year, my mum went into menopause in her 30’s and completely lost her period. For the last 6 years I’ve had all sorts of strange health issues and Drs have been unable to diagnose anything.

A part of me has always thought hormonal. But my blood panels ALWAYS come back normal.

Main symptom is severe fatigue and brain fog. Last few months some palpitations and dizziness returned, my face skin has been hot red and incredibly dry, flaking off my face dry. My moods have been off, the last few years I just haven’t felt like myself I feel like 20% of the woman I used to be as I just always feel unwell and have energy for nothing.

6 years ago I was told nothing was wrong with me I have depression and anxiety. The anxiety and depression started because on my physical symptoms of feeling unwell.

I decided to go and find a female doctor this year as no other family doctors would listen, I think as soon as they see my name they think hypochondriac… I just feel so belittled by them. But the female doctor I went and saw has given me some suggestions and I wanted to see if I’m on the right track.

I told her I think it’s all hormonal, so she’s suggested:

- Magnesium glycinate and melatonin
- vitamin D with k2 for bones density
- zinc (I don’t really know why)
- she also wants to start giving me b12 shots monthly even though my levels are normal

She wants to run a full panel of bloods, including hormones, thyroid, insulin resistance etc

She did also suggest the mirena contraception for hormone regulation and starting me on some fluoxetine for PMDD.

I have decided to start on the vitamins and melatonin first for maybe 2-4 weeks, I don’t want to start everything at once and not know what works for me or if anything is of benefit.

Does this sound like I’m on the right track? It’s only been a few days but I think the melatonin is helping my sleep so far.

Just wanting a place to vent and maybe a helpful opinion (or two)

The last 5 years have been tiring. I can only describe it as one step forward and two steps back.

You may have seen my posts on the MCAS thread. Because I completely forgot about Sjogrens because the rheumy I saw and asked about an autoimmune condition last December immediately wrote me off because all of my bloods were negative. So automatically my brain thought “can’t be it” and I’ve been on the allergy path ever since.

My throat has felt “tight” and restricted since September last year, I’ve even seen 2 ENT specialists for it who have put a camera down my nose and have said there is nothing structural and again pretty much wrote me off. So naturally I’ve thought it must be allergies… I have been waking up every morning with eyelid oedema and my eyes are so severely sore and gritty feeling. No amount of antihistamines has helped and I take them daily, without fail. I even trialled PPI’s for reflux which didn’t help.

My scalp and face is dry and peeling. My scalp has been dry and flaky for 5 years. I was just thinking last night; remembering that i had an optometrist check the dryness of my eyes last year and the test came back that I had severely dry eyes - they dry out in less than 1 second when the normal range is 10-30 seconds! So if my eyes are severely dry, could this throat tightness feeling I’m experiencing actually be due to possibly having a dry throat?!

I have so many other issues that I don’t even know where to begin with, I’m seeing a new specialist in October this year but honestly I feel so defeated. I’ve been told by a cardiologist I have a variant of POTS. I’ve been told by a seperate rheumy I have Fibromyalgia.

Last September the throat issues, December I developed severely itchy skin with raised whelts if I scratched.

5 years of severe fatigue. Brain fog. Dizziness. Chronic diarrhoea. Bladder pain. Tinnitus. Swollen lymph nodes. Joint pain.

All this stuff came out of nowhere and because my blood markers are all within normal range (apart from white blood cells which are chronically low but Drs never seem to be concerned, once I also had random inflammed liver markers) rheumatologists just want to give me steroids and antidepressants.

Ugh. Sorry this was such a messy post. Like I said it’s been 5 years and no specialists want to listen, it’s like I’m always just out in the too hard basket.

The last 6 months have been nothing short of a nightmare. I still have until October until I see my private allergist/immunologist.

September of last year I felt my throat tightening/stridor. Saw 2x ENT’s, one who said it was probably reflux and to take ppi’s and reduce caffeine, 2nd told me it was globus sensation and to ignore… tried both suggestions - nothing helped, feeling still there daily.
November I developed severe itchy skin, initially treatable by antihistamines, then by week two of daily itch and antihistamines they just stopped helping and I developed dermatographism where anything that touched my skin left a bright red mark. I could even write on my skin with my nails, full sentences. I went to urgent care - 3 days of oral steroids stopped the itching. Continued the antihistamines.

Last month (April) the itching came back, during my period. Two weeks of itching again.

Last two weeks again my eye balls feel so swollen (lower eyelid) but they don’t visible look swollen they are just so uncomfortable on my face, along with my throat tightening feeling worse than ever. Went back to my GP who suggested I switch to phenergan which doesn’t really help much more than Telfast or Zyrtec.

My history is also severe abdominal issues for as long as I’ve known, sudden onsets of crampy diarrhoea, stetorrhoea? (Don’t know if I spelt that correct), iron deficiency.

I get cold temperatures urticaria flares in my legs in winter, and the sun gives me a rash through clothing in summer. I’ve had bouts of hives last months maybe 10 years ago which I never thought to have investigated.

My white blood cell count specifically neutrophils has been low my whole life, specialists have never been concerned. When I had the skin reaction in Nov my LDH (lactate) was elevated, was briefly reviewed by a haematologist who wasn’t concerned as everything else normal.

Before the allergies were this obvious I was also told I have IBS, chronic fatigue, fibromyalgia and a variant of pots due to all of my on going symptoms.

Anyway, today I’m just feeling super down. My doctor won’t trial much medication wise, wants me to wait to see a specialist. I’m on one antihistamine per day when it’s doing nothing. I just feel like I’m allergic to life at this point.