u/ptolema3a

household eating the only food we can have

I’m sure this is something lots of people experience but it just pisses me off so much!! I’ve only recently been diagnosed with UC, i’m 19 and live with my parents and siblings - I have to spend so much money on whole foods, pay top dollar for the only food my body will tolerate and people just eat it on you. It doesn’t matter how many times I remind them. They see a fresh loaf of sourdough and just go crazy, the few cuts of poultry and vegetables I can eat - gone. Guess I’m not eating then! They can literally eat whatever they want with no restrictions, but they MUST eat the only options I have. It’s so frustrating idk, i gotta start writing my name in sharpie on everything I buy or get a fridge for my bedroom atp. the amount of times i’ve gone hungry because someone has eaten the last of the few foods I can tolerate. If you didn’t buy it and it’s magically appeared on the counter, maybe ASK before you help yourself. Sorry for the annoying vent, I just wish people were more respectful.

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u/ptolema3a — 2 days ago

Start Investing or keep saving at 19?

Been working since I was 15, last year I had $25k saved. went on a 2 week holiday to japan with my friends, got home and bought a car, continued to work and am currently sitting at $12.5k in savings. I’m going to be working significantly less as i’m back at uni and have unfortunately been diagnosed with a chronic autoimmune disease that makes me way less able to work than when I was younger. I’ll hopefully be bringing in around 500 a week? give or take. $100 of that going towards board. I’m wondering if at this point if I should continue to gradually build my savings back up, or start investing somewhere - especially considering the fact I don’t know if my disease will leave me unable to work, i’d like a cushion incase it gets to that point. i’m very clueless when it comes to investments, but I recognise i’m in a fortunate position and have good savings for my age. Any advice would be great!

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u/ptolema3a — 2 days ago

Head Office being awful about my chronic illness now that i’ve switched to casual employment.

I’m an assistant manager and have recently received a pretty awful diagnosis that has changed the trajectory of my life, for months before this I have been dealing with the symptoms and was open to head office and my manager about this. When i was a part time employee they were so nice to me about it and told me to take extra breaks, don’t come in if im feeling too unwell, don’t push myself, your health is the most important thing etc etc. I thought wow these guys are so lovely and understanding, im so lucky. They offered from the start to have me switch to casual if I needed less hours due to my plethora of appointments and treatments so I took them up on that offer afew weeks later. The week after I switch to a casual employee (therefore no longer have any protections against unfair dismissal) there’s this insane tone change, everyone’s being so iffy with me all of a sudden. I was called into a meeting today with my manager and her manager basically telling me that i need to step up my game, do way more around the store, let the team know about my condition so they don’t think im being lazy, that they will check cameras while i’m on shift to see how much work i’m really doing, and that they will have to reconsider my employment if there isn’t major improvement. Nothing has changed with how much i’m doing around the store or my condition, I still come in and do the best I can I just tend to take my time and do more admin stuff wherever I can - all things we agreed was okay for me to do. It’s very evident that they want me to leave due to my condition, but haven’t been able to let me go until now. I’ve worked for this company for 3 years, have always been an extremely efficient hard worker. but i have been wanting to leave this job for a long while now, so this is probably just the push I need. i’m just upset, I only received my diagnosis recently and am still processing it so it’s just not what I need right now. Due to the nature of my condition I will not be able to work a “normal” job once my disease progresses, so this is just getting the ball rolling for me to figure something else out. Just wanted to complain / vent. I am not allowed to feel normal and keep my life the same after learning earth shattering news, must also be unemployed and struggling. yay. I haven’t been unemployed since i was 14 so will definitely be weird for me, don’t know if they’re going to fire me or if i will leave myself yet. if anyone’s had similar experiences please lmk this sucks lol

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u/ptolema3a — 6 days ago

Ulcerative Proctitis at 19

(19F) I had my colonoscopy today and they found mild Ulcerative proctitis in the first 10cm of my rectum, they also found beginning stages of cobblestoning. I’m scared, confused and don’t know what’s going to happen. In 2 weeks my biopsies come back and i’ll begin a treatment plan with my Gastroenterologist. My Mum has had severe crohns since she was 15 and my whole life has been an array of her hospital visits and severe complications, i’ve seen how it’s destroyed her life and i’m terrified.

Can anyone tell me what I should expect? Can I live a normal healthy life like everybody else? Given my family history everyone in my life is freaking out and it’s making me feel so much worse. I’m trying to stay positive in the fact that I have my Mum who’s been through this here to advocate for me and be by my side and go through this together, but it just sucks.

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u/ptolema3a — 10 days ago

Cannot finish my glycoprep

(19F) I have my colonoscopy tomorrow morning at 7am (Currently 9pm) I’ve been fasting for 2 days with only clear fluids. I’ve had 4 sachets of picoprep (1 Litre) And a 1.3 Litres of Glycoprep (Meant to have 2 litres of the glycoprep, have finished all of the picoprep) and I cannot finish the glycoprep. As of 7:30pm i was meant to have 500ml and have another 500ml at 3am and I just can’t. the thought makes me gag.

After my first picoprep yesterday I already started having clear dark yellow stool. As of today there is no particles and it looks like slightly dehydrated urine, still darker yellow but very clear can see the bottom of the toilet easily.

Given i’ve had the ideal clear yellow return that just looks like bile - am I likely to need to repeat the prep if I really cannot finish it? I fear if I push it i’m just going to throw up and make everything worse.

Update: Woke up at 3am and finishing the 200ml I have left from last nights dose - so i’ll be at a total of 1.5 Litres out of 2. Could be worse. I’m still passing the clear yellow fluid like yesterday so fingers crossed.

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u/ptolema3a — 11 days ago

I feel absolutely terrible, i’m 18 and i’ve only had my P1 license for 4 days. I’m always a super careful driver but was struggling to find parking this morning - I finally found one 40 minutes later and was rushing because I was late for class at this point. I had to pull in pretty close to a blue car on my right hand side to then reverse into the park opposite them - I had no music playing and my window down and while I knew I got really close I didn’t hear or feel anything at all - it didn’t even cross my mind I could have scratched their car. When I came back after class I noticed a small scratch on my bumper, some paint transfer that can be buffed out - very very minimal. Upon first glance I thought it was black paint (The car I ended up being next to was black, so I just assumed they must have scratched me on their way out) I just left thinking oh well, someone scratched my car. Then when I got home and took a better look I noticed some blue paint transfer and had the light bulb moment that oh fuck I must have scratched the blue car when I pulled in that morning. It genuinely didn’t even occur to me because I didn’t hear or feel anything with my window down even, I am such an idiot. I feel so terrible and don’t know what to do. I noticed the blue cars whole right door was smashed in (must’ve been T boned) so I want to report it to let the police know incase they try and turn around and say I caused that damage or something, I don’t know I just want to do the right thing - I already called the non emergency line to report it but they told me I had to go in person and bring the car and my parents are telling me not to do it and to just leave it and that it’ll raise my insurance even more. Some honest advice would be great, I will be learning from this mistake and never repeating it or letting myself get too close to a car no matter how much of a rush i’m in.

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u/ptolema3a — 24 days ago