u/rainbowboots72

I was diagnosed with MGD and severe dry eyes in April of this year. I have run the full course of all the standard treatments - lipiflow, every preservative free eye drop available, warm compresses, omegas, tea tree eyelid wash, and restasis. The tear production has finally started to improve noticably for me in the last two weeks. There is still a lot of inflammation around my corneas that they cant explain. Since this all started i have done 3 rounds of steroid/antibiotic eye drops for this inflammation spaced out about a month each time. I assumed this was caused by dry eyes so didn’t think much of it. I just went in last week and my eye dr said the tear production looks better and doesn’t understand why there’s still inflammation. It’s mainly above and below the cornea. She asked if I scratched my eyes a lot when taking out my contacts because it looks similar to an abrasion. Has anyone else had lingering inflammation? I’m stressed about starting another round of steroids she prescribed for it because that feels like too much. Should I ask for another opinion or is this just normal for what I’ve been dealing with?

I don’t know what started my dry eyes as I’ve never had any issues before. I got tested for sjorgen and was negative. I cannot think of anything that would be scratching my eyeballs or causing irritation without my knowledge…

I am newly diagnosed and waiting to see a cardiologist. I have noticed a wide range of these symptoms to some degree since I was a teenager and am now 36. I’ve told myself it’s all in my head - the anxiety and dizziness fatigue brain fog or just symptoms of generalized anxiety. The heart problems I thought were due to anxiety. The agitation and irritability were postpartum hormones and anxiety (probably a bit true but not to the degree I have been experiencing them). I’m trying to keep expectations realistic on what will improve if I can manage this but wanted to see what everyone’s experience has been?I know there is no “cure” but assuming somethings must get better? Because I have felt like garbage for a long time and it’s gotten significantly worse after my most recent baby and I’m feeling a little hopeful to have maybe found some answers but I don’t want to get my hopes up for nothing 😩also if anyone has experienced dry eyes along with this please share!! I’ve read that can be related and have had horrible issues with that the last few months. I’ve tried every form of treatment that exists and nothing helps!