RTC Problems - change of loation
I wonder if anyone has been in the same position, and/or can offer any substantive advice or insight.
I was diagnosed in April last year, through RTC with ADHDNet (also known as Holistic ADHD). I titrated with them, finished in September, and then the clinic went under investigation by Companies House and their local ICB, causing them to discharge all patients back to each patient's local ICB in December. My local ICB (Manchester at the time) referred me to Optimise Healthcare, based in the area, as a RTC patient. I had to start titration again, as ADHDNet didn't provide any information whatsoever to my GP or ICB, which finished in February/March. I have moved about 20 miles away, which, unfortunately, falls in a different ICB, and outside of Optimise's "catchment area".
Optimise have now informed me that, due to moving out of area, they can no longer treat me, they will have to titrate me off the medication and get my GP to refer me to the local ADHD route, which has an enormous wait time, potentially years. This is all a matter of funding, as I am no longer covered by the ICB that reassigned me to their services.
Now, I understand the process and decisions at every point, it all "makes sense", but obviously this is the exact opposite of what the RTC service is meant to be about. I pursued my diagnosis via the national pathway, not a local one, and at no point was I told that moving house/area would have any impact on my treatment, just that if I changed GP and they didn't accept my Shared Care Agreement then Optimise would take over prescribing.
Does anyone at all have any experience of dealing with this? Any other ADHDNet cast-offs who've been in this situation? I've already reached out to my new ICB, and asked the current clinic to try and provide some more information to me/my GP about what to do, but I'm coming up trumps.