u/sakurasangel

I saw my PCP and got a referral to a geneticist. She asked me why I wanted a diagnosis. I came up with whatever I could think of. If I need surgery again, it would be important. It will impact how I treat my wrist* and injuries going forward. It could impact my neice and nephew too, as i sort of suspect my niece may also have autism.

I understand it doesnt change how we treat my hypermobility, but there can be more to it. Yes, its a label. But why is wanting that bad? Why is it a problem?

To be fair, she didn't seem upset with my desire. She didn't come off negative or judgemental. She was fine saying I have HSD.

*I have a cyst from a sprain. My ortho said a steroid shot might be next, but it may rupture the ligament. I'd love to hear similar experencies!

Hi all! Im looking for recs of travel notebook size but thin journals. Im going through health stuff and have a shit ton of appointments to keep track of on top of work. I plan on bringing something small with me, as I intend to bring a folder of info with me to appointments. Im not against a pre made calendar, but I need freedom to write and doodle in it. Im too worried I will lose my bujo if I bring it around, sinxe that wouldn't fit in the folder.

I was looking on Etsy, but I am afraid a lot of the stuff is AI 😭

This morning I saw my PCP. A student came in and went over my symptoms... My doctor doesn't think it is worth seeing a rheumatologist because she does think I have hEDS. She even referred me to a cardiologist, as I have POTS symptoms. She did refer me to PT, which I think will help.

I think I am in shock about it all. I probably have dislocated my hips before and thought it wasn't a big deal. Am I able to say I have hEDS then, even if I'm not seeing a specialist for that diagnosis?

I'm nervous about PT and exercising going forward. (If anyone has tips, I would appreciate it.) I hope to try swimming, as my new gym membership has a pool.

I'm weirdly at a loss, but perhaps this is just relief?

I recently got banned in multiple twitch communities and was never told why. I was told just now it is inappropriate to contact mods and try to find out why. Like, I would have been fine with a notice of "You're banned"... I tried to respond to the person who told me it was inappropriate of me, but she must have blocked me.

No one values communication these days.

Im sitting here sobbing after a hard day, trying not to hurt myself in my frustrations.

Like, on one hand I want these people to know they are assholes. If I had been spoken to, I would have done something. But no! So I guess I'm just a bitch when I'm just confused and lonely.

So now I don't know what to do anymore. I used to spend a lot of time in streams enjoying these communities. Obviously they weren't welcoming or kind like they claim. And I just. Hurt.

Do neurotypicals just not feel this way? Why are they so cruel? Why is life so cruel to me?

Hi all. I ordered a skein from A Hundred Ravens mid March. I got the order receipt and notification, but never a shipping notice. I've emailed them quite a few times (all politely) and even tried calling, where I left a message. I never got a call or an email back. They haven't posted on socials for a while, so I am wondering if something happened or what I should do.

TLDR: I ordered yarn 2 months ago from A Hundred Ravens and haven't received it or heard from customer service after trying to contact them repeatedly.