Seeking new pain doc in nyc after a terrible experience (CRPS patient- tlrd at the end)
Hi everyone. It’s been a long time since I’ve posted here. I hope everyone is finding at least a little peace today.
I’m feeling incredibly lost and betrayed by my pain management doctor, and I really need guidance and recommendations.
I’ve been seeing this doctor (“Dr. H”) since 2022. Last month I was late to an appointment after he moved from private practice to a hospital system in the Bronx, where everything has become much harder and, honestly, much colder. I called and emailed for a week asking to be squeezed in, seen via telehealth, literally anything. I even offered to come before or after hours. He was condescending, dismissive and told me to go to the ER for meds.
I told him I wasn’t comfortable doing that, but that my psychiatrist, who also treats CRPS patients, was willing to temporarily help until my next appointment. I emailed Dr. H saying exactly that. No response.
Fast forward a month to yesterday’s appointment. I had been without meds for 3 days, and the hour-long car ride from Brooklyn to the bronx sent my pain into a massive flare. By the time I got there, I could barely walk with my cane and was trying not to scream from pain, so instead I was crying uncontrollably.
Dr. H came in, looked at me for maybe 5 minutes, and said, “I cannot do anything for you if you’re like this. Go to the ER.” I wasn’t asking for anything. I could barely speak. I honestly just needed a moment for the flare to pass.
Then a nurse came in and told me, verbatim, “He’s never seen you cry before so he thinks you’re going to hurt yourself.”
Suddenly there were security guards, EMTs, nurses, and a cop outside the room because he was trying to send me for a psychiatric evaluation.
I cannot explain how humiliating and violating that felt.
I have CRPS, a condition literally nicknamed the suicide disease. He claims to specialize in CRPS, yet seeing me cry during a severe flare apparently justified treating me like I was dangerous to myself. Meanwhile, I’ve spent years minimizing my pain and emotions specifically because I feared not being believed.
I also need to be honest about something uncomfortable: I truly believe race played a role here. I’m a Black woman, and I have personally watched White women at this same practice cry, panic, and receive compassion, patience, and significantly higher doses of medication than I’ve ever been offered. I know people hate discussing race in chronic pain spaces, but pain management absolutely does not feel the same for me as what I’ve witnessed others receive.
I eventually convinced them to let me go home after calling a friend to explain that crying during a CRPS flare is normal for me.
Then today things got worse.
Dr. H called me furious that my psychiatrist prescribed my medication last month after he refused to see me. He tried saying “if you had told me,” except I DID tell him, in writing. Then he pivoted to criticizing my psychiatrist, who has honestly helped save my life over the last 7+ years.
Now he says he’ll write one final 30-day prescription but refuses to prescribe after that.
I’m not here to debate the laws or whether he technically can do that. I just need help.
If anyone in NYC has a compassionate pain management doctor who prescribes opioids responsibly, could you please share their name/hospital with me? I have an appointment tomorrow with Dr. Franklin McNeil, but I have no idea what to expect.
For context: I have never struggled with addiction, never failed a drug test, never abused my meds, and I haven’t even had alcohol in 3 years aside from one glass of sangria after my dad died in October.
I just want some quality of life back. I want to keep working remotely, walking when I can, and maybe someday leaving the house for more than an hour without paying for it physically.
Thank you for reading if you made it this far. And consensual air smooches if you have any NYC recommendations.
**TL;DR: Need recommendations for compassionate NYC pain management doctors who prescribe opioids responsibly after a traumatic experience with my current doctor, who is now refusing to continue my care after one final 30-day prescription.**