u/sentientscraps

May update on products I’ve used this year

May update on products I’ve used this year

All my empties. I finally feel like I’m making some headway! I am down to not that many products and it feels so satisfying.

Once I pair the rest of my items down to one each, my treat to myself is going to be a new, nice, toiletry bag. I can’t wait to have just one of each!

u/sentientscraps — 3 days ago
▲ 34 r/cfs

Ways to bring greenery into life being housebound?

Hii. I'm here to ask a hyper specific question that may not have an answer!

What are some ways that you bring green/floral/nature themes into your life that are not

a) real plants

b) plastic plants

I am looking for alternatives to my plastic plants as I make healthier swaps in my space & manage my air quality, but they bring me joy to look at so I'm hoping I can find an alternative that fills the void somehow! I'm housebound and spend most of my day in bed so don't get to be out in nature, which is why I thought I'd ask here as I know you will relate.

reddit.com
u/sentientscraps — 3 days ago

Canadian Laundry Hamper?

Hi friends,
Looking for a Canadian laundry hamper. My mind is blanking on where to look. Open to all sorts of styles. Currently leaning towards non-plastic but again, am open to it as well.

Must be able to buy online as I can't go in person.

reddit.com
u/sentientscraps — 5 days ago
▲ 8 r/cfs

Bed area improvements

I spend roughly 22 hours a day in bed and want to make my space more comfortable for me. What are some ways you have optimized your bed set up/the surrounding area?

reddit.com
u/sentientscraps — 8 days ago

(update) Minnow is still missing!

✨ Please keep comments focused on helping Minnow get home safely. Reddiquette, guys. I’m one of multiple of her owners and don’t get to make the decisions about her being indoors or outdoors, I’m just her PR team. Thank you for keeping conversation productive while we look for her. ✨

Hey Comox neighbours,

Apologies if this post is redundant, I want to make sure I'm doing everything I can do for the cat.

It has officially been 8 days since our Minnow was last seen.

Minnow is an indoor/outdoor cat, but she normally stays very close to home, usually within our yard or occasionally in the immediate neighbours’ yards. She is quite timid and generally will not respond enthusiastically if at all to people outside of her immediate family. Kind of a relatable if you ask me. When she is outside and called by us, she comes home immediately, which is why we are certain she is no longer in the area, or sadly may no longer be alive. Nevertheless, in the off chance that she is disoriented, trapped, or has travelled somewhere we ask that you continue to keep your eyes and ears open.

If you live in Comox, our family would be incredibly grateful if you could please check any security cameras you may have, as well as your gardens, sheds, garages, crawl spaces, or anywhere a frightened or injured cat may hide.

If you are caring for a neighbour’s property while they’re away, and they have been away since around the time of the 3rd, we would also be grateful if you could please do a quick check of their yard or outdoor spaces. Minnow is quiet and timid and may not make herself known to you, but if she became sick or passed somewhere hidden, we would also want to know.

If something may have happened to Minnow, for example, if you accidentally hit a Minnow resembling cat in your car 🐱💥🏎️, we would greatly appreciate you reaching out through the phone number provided. You can text or call. We understand it is hard to reach out, but if you have any information at all we would love to have some closure.

I thought I’d mention a few of Minnow’s physical characteristics more in depth in case anyone is on the lookout and wants some more relevant details!

Minnow has a predominantly black tail with very little white in it. Her nails are too long right now (It’s an ongoing battle), so she walks with a faint click clack noise on hard surfaces. As far as I remember, all of her paws are white. She’s got light green eyes and a pink nose that is outlined with a faint ring of brown making it appear mildly crusty, despite the fact that it isn't. On the lower half of her face and around her nose and mouth she has no black splotches. She has white ear hair and also has a tattoo in her ear that may be visible if you look closely although I think it's a bit down her ear canal. She’s average in size. At the time she went missing, maybe around 12lbs? Definitely not a lanky queen. She has a stubbier cat build but is not fat. She rocks a primordial pouch.

Lastly, thank you so much to everyone who has been keeping an eye out for her, sending messages with potential leads, and being so kind! Fingers crossed we can get some answers soon.

https://preview.redd.it/cb8tcwtnjl0h1.png?width=1206&format=png&auto=webp&s=21553764c2e7b166f180214b8081be77768287ef

reddit.com
u/sentientscraps — 10 days ago

Buy Canadian spread 🇨🇦

Been buying solely Canadian products since last year and having so much fun with it! Hope to make a lot more junk spreads

u/sentientscraps — 12 days ago
▲ 209 r/cfs

I feel triggered by the recovery stories I've been seeing.

For some reason in the past week or two, all of my feeds on every ME/CFS group/platform where I'm following ME/CFS creators have been flooded with recovery stories. Just now I had to delete the instagram app off my phone because I scrolled past two.

As someone has been sick for pushing a decade, I can't help but feel intense rage when reading recovery stories and I don't know how to navigate it. If I unfollow the groups, I have no community. But every time I scroll across a "I recovered!" post I have a visceral physical reaction.

I don't hate people for recovering, but it just makes me feel so... angsty? Because it feels like the stories are always "I was sick 1,2, 3 years and then I just tried [xyz unproven remedy] and I'm finally recovering after ALL of this time! Wow it's legit been forever omg" and it's just. Idk.

I want people to recover. But I also don't want to hear about it, because I have tried every remedy accessible to me and nothing has worked so far and it's honestly agonizing. But then also, you look at the list of things many of these people recovering have tried and it's like- complex medications that even people on their deathbeds from acutely deadly diseases can't access here in Canada. Plus IVIG. Low dose Abilify. All of these holistic remedies, thousands of dollars worth of supplements. Home care. Around the clock caregiving. Girl. How.

It seems like every ME/CFS group I'm in, there are newly sick people sharing that they recovered and to "never lose hope" and I take it personally even though we obviously don't have the same stories or trajectories. It makes me feel like I haven't tried hard enough even though I'm trying my hardest every day.

I don't know how to make myself stop being triggered or having these immediate negative reactions to recovery stories, because I really am happy for people. It's just hard for me.

Idk I might be completely off base.

reddit.com
u/sentientscraps — 12 days ago

Good morning everyone,

Our cat Minnow is sadly still missing from Comox, and we haven’t had any sightings of her since May 3rd. Her fur siblings miss her a lot and we hope to see her home soon. We’re continuing our search, but I do have a couple of asks:

If you live around Cortez, Dogwood, Denman, Quarry, or neighbouring areas and you haven’t already, could you please take a few minutes to check sheds, garages, crawl spaces, gardens, under decks, and anywhere a cat could find themselves trapped? If you have family in the area who may not use social media, could you ask them to do the same?

With it being spring, if you live close and know of any neighbours who are currently away on vacation, we’d appreciate any information you could privately relay to us on that. This way we can stand at the edge of the property and call for her to confirm she’s not locked up somehow. She'd likely be most responsive to our voices and specific call.

If you’ve noticed unusual wildlife activity in the area recently, or have come across any signs that could be connected to Minnow, such as clumps of fur, we would greatly appreciate hearing from you as well. Even if the information is uncertain or unverifiable.

I’d also like to add that in the event something happened to Minnow, and you have information on what happened to her, we will not be mad.

If an accident occurred we understand.

We would much rather know than continue wondering what happened to her, and would be extremely appreciative if you gave us some closure.

Any details you can provide, no matter how small, can help bring us some answers.

Please message me or the number provided on the poster with any information you may have.

Thank you!

https://preview.redd.it/56r8tbs6txzg1.png?width=1206&format=png&auto=webp&s=aca346693ec17daa667e328ea1c0feff49267bbd

reddit.com
u/sentientscraps — 14 days ago

We are missing our girl! It is very uncharacteristic of her to be gone like this. If you have seen or heard anything please let me know asap! Thank you

u/sentientscraps — 17 days ago
▲ 5 r/cfs

I am so tired. I got sick several years ago around the same time two of my mom’s friends daughters got sick with Lyme disease, and were misdiagnosed with ME/CFS.

Once they both identified the Lyme, they treated it and got better and moved on with life. I also tested for Lyme and was negative.

Anyways, the one friend is constantly judgemental and assuming I’m not doing enough. Angry I won’t continue go see the naturopath that “cured” her daughter (keeping in mind he specialized in Lyme disease!!) I went to see them once and all they did was push their supplement line on me.

I. Don’t. Have. Lyme.
But sometimes I wish I did.

I know not everyone gets better from Lyme, especially not if there are complications but a lot do- including my moms two friends kids, who had straightforward Lyme with very few confections/none, who have gone on to live successful lives in their 20s. Travelling, jobs, marriage, etc.

I’ve continued to be housebound and unable to do anything. Have progressed 0% in the right direction despite my very best efforts.

It’s so frustrating to see my mom’s friends judging me for not getting better when their daughters never actually even had ME/CFS to begin with, despite the fact that the one mom can’t drop that label with her kid even though she’s 100% in remission and entered it directly after getting treatment for Lyme.

Generally I could not give a fuck about these two ladies opinions, because they’ve never walked my families path. But it almost seems like they take every opportunity to rub it in that their girls got better.

I wish I had something that could be treated effectively.

I wish I could take some antibiotics and get back to life.

reddit.com
u/sentientscraps — 20 days ago

Project pan has been so game changing for me. It’s bizarre to see the amount of products I was and am hoarding and the plastic waste I am creating. I look forward to making my way down to only a couple of sustainable, glass, products.

u/sentientscraps — 21 days ago

Hey buddies,

Hoping for some guidance towards specific brands that offer glass bottles for every day supplements. If you know of any please let me know as I am trying to reduce my plastic consumption in this department!

Thank you

reddit.com
u/sentientscraps — 26 days ago