For those of you who work from home and live alone, and don’t have pets, how do you manage loneliness? Living here in a small town without having passive socialization in the day is driving me a little stir crazy (especially in the winter months). Any ideas/tips would be much appreciated!
Has anyone read “Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder” by Claire Smith? I’ve read Disjointed, Muldowney’s fantastic book, and a few others, so I’m debating on adding this one to my shelf. If you’ve read it, how helpful was it?
Also, if anyone has a resource for better understanding biomechanics in the EDS body, I’d be eager to know it.
Thanks!
My once monthly migraines turned chronic about a year ago. For the first few months, I’d have 26 to 28 days of migraines a month, after I got on medication it’s been better but still impacts my quality of life and ability to plan on doing…anything.
Over the past six months my partner has been frustrated with me, saying that he feels like I’ve been shrinking and not showing up in our relationship. He accuses me of avoiding my feelings. I need him to understand that most of the time I just don’t have the capacity to process my feelings in real time and when it comes to having wants and desires, I no longer allow myself wants and desires because it simply leads to daily disappointment. I feel like I have almost no agency in my life, why on earth would I want to put myself through the pain of wanting?
How do I get him to understand this? He knows that I can’t work full-time. He knows that I have to often cancel plans and yet he still seems to expect me to function at the capacity of a person who’s not disabled.