u/trashytvjunkee

I had to shop for a transport wheelchair today. Ive been crying and cant believe this is my situation now. Im floxed 5 months ago but symptoms didn't appear until 3 months ago. My legs have gotten like both my arms-- too fatigued to get through the day. I have a dr appointment next week at a big hospital like facility (getting.an emg test) and won't be able to handle the walk. God, I hope this is temporary. I'm scared this is the beginning of never getting out of wheelchair. I still walk around inside my house as much as possible but that's my limit. I guess i should be mote grateful for that but instead i focus on what ive lost so recently. I dont have any tears that I know of, just severe muscle soreness and fatigue in quads and arms. My prayers and thoughts are with those who are confined to a wheelchair.

This is just some of my symptoms. I have body widespread neuropathy and CNS issues too. Im bedridden 95% of the time and am on leave right now from work, going through Dr's trying to diagnose. I pray I can return to work again. My floxing is pretty severe. Im like a part time quadripalegic because my "battery" drains from arms and legs before finishing activities of daily living.

Do the issues with tendons usually move around and affect both sides?. Like it started with my arms, and now it's my quadriceps being weak and painful and burning.

Sorry since i'm new here, i'm trying to understand. When people talk about tendon issues, I don't know if they get like one spot on one side of their body, or if people have stuff jumping around and affecting them all over with this?

I'd like to hear your story. For those who've been going through this a while, did you first seek conventional medicine and not know what was going on? If so, what kind of specialist did you go to? What kind of test did they put you through? What was your story? How long did things take?And did they eventually give you any diagnoses? Please share symptoms to put in context in you could. Was any of that helpful for you? Especially those who have been floxed with more than one symptom of tendon issues...tendon like nerve issues, CNS.etc.

I'm going through typical primary care dr and mostly neurology right now. Funny that I think maybe some of this is tendon pain, but because I said weakness And it's related to some neurology stuff, everything seems to be in the neurology basket. Waiting to be diagnosed. That and I'll be seeing a rheumatologist. The neurologists already seem confused but in my case, i'm waiting on taking an emg.

I'm at day thirty of a large taper drop. I've been holding steady. My nervous system is still adjusting, and it feels like PAWS, which i'm hearing can still happen even if you're not completely off, from a large drop.

Most of my symptoms are nerve related such as burning or twitching at times. It's like my nervous system is sensitive. But the biggest surprise is how certain foods will taste too strong sometimes. This has happened more in the past week. I ate a cookie and it tasted like ten times sweeter than it used to. Was almost too sweet, but I was okay. Then I was eating a philly steak sandwich and it turned my stomach because of the oil on.It was just gross. The oil and meat taste was so strong and it's not something i've had a problem with before. Even though i've eaten at this restaurant before. Anyone else noticed their taste buds ended up recalibrating?