u/yedasentiencee

I had an awful UTI, high white blood cell blood count, starting to get a fever, passing clots of blood. It was terrifying. Wound up at the ER, and yes it has since gone away, but I’m still having cystitis symptoms. So how am I supposed to know when one is coming back? This paat one went from 0-1000 very fast, within 12 hours. I can’t keep running to the ER. And how am I supposed to just pray that the empiric antibiotic they choose works and I won’t be headed towards sepsis while the culture grows? I know EVERYONE who has UTIs deals with this, but am I thinking about this wrong? I’ve dealt with many UTIs in the past but none like that one and it’s like I have PTSD. I feel like it’s looming over me, but surely tons of people aren’t dropping dead from UTIs… anyone here have any sage wisdom?

As we speak my antibiotics were finished 8/8, infection confirmed cleared through MANY U/As and cultures and yet I am still having on/off cystitis symptoms. And the UTI that landed me in the ER was VERY subtle until it wasn’t. Genuinely am scared to death y’all.

Let me preface this by saying that I have extreme anxiety, I am getting help. Literally yesterday saw a psychiatrist that bumped up my meds. But that doesn’t help with this problem. Was diagnosed w a BAD UTI last week at ER, peeing out chunks of blood, high blood WBC. they ran blood cultures that were negative thank god but it’s been a complete spiral since. Was convinced I had a c diff from IV’d antibiotics. Been on Macrobid for 7 days and it mostly made it go away but I’m still peeing cloudy-ish urine. Never had flank/back pain but it seems there is no real way to know if it’s in your kidneys? It’s just like wait and see? I’m terrified it reaccur and I’m terrified of antibotics. I’m desperate for some advice/a comment or two from ppl who have been thru recurrent UTIs. Is my fear reasonable? I can’t work, I can’t do anything. I’m just peteified and have been for over a week. And now that I’m on first day off Macrobid it’s worse. The culture would be contaminated anyway bc I have been on antibiotics for so long. It’s like there are no answers and all you are given are vague symptoms to go on to possibly rush back to the ER. It’s insane. I feel insane. Any advice?

Hi all. Let me preface this by saying I have severe OCD and this has been one of the worst weeks of my life, please be kind. I had a really bad (passing blood clots) UTI, went to ER when pain got to be too much. They IV’d me Rocephin one dose there and started me on Macrobid, this was 6 days ago. After the second day I had horrible diarrhea, they did test me and I was negative, diarrhea had gotten slightly better. Now this morning, day 6, I’ve started with watery bright yellow diarrhea again. No one will retest me and my family thinks I’m crazy but the cramps are awful. I’m hoping my family is right and I am crazy but is it not possible that I was negative 3 days ago and could have it now? The diarrhea is way worse now. I was GDH, toxin, and PCR neg 3 days ago. Looking for advice from those who have far more experience with this. Thank you from the bottom on my heart.